Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Wheat Allergy


CarolinaKip

Recommended Posts

CarolinaKip Community Regular

I was DX Celiac 3 years ago this past week. Shortly after DX, I was food allergy tested. The Dr told me I would not be positive for wheat because Celiac is auto immune etc. However, she was surprised when I reacted to wheat and barely. (skin test) I haven't thought to much about it because I must be gluten-free anyway. I've had good and bad days trying to feel better. I work at a school and am around gluten a lot! I try to do  my best at avoiding it.

 

Sometimes I notice if I am in the same room with someone else cooking gluten I start to cramp up. I just thought I was crazy until today.You know, it's all in my head thing. I was alone all weekend with no gluten in sight and I felt human! Today I picked my daughter up from her friends and she hugged me a lot. About 15 minutes later, I'm cramping and bloating. Now, call me crazy, I asked her what she had eaten. She said pancakes, am I crazy? They had made pancakes from a mix. Has anyone heard of this. I didn't want to write this, because I didn't want people to think I've totally lost it.

My daughter said she will go gluten-free all summer to see if this is truly an issue for me.

 

Has this happened to anyone else or am I crazy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

C Kip! I am so happy to see you! ;)

 

Want my opinion--from my "gut"? sure, why wouldn't you have a reaction of some kind?

if you are still having "good and bad days" 3 years later? SOMETHING is causing you grief.

 

Celiacs can also have a wheat allergy (and I say this often) and it is entirely possible that just being around wheat flour ( or people consuming it ) is giving you continuing symptoms.

 

If your daughter is willing to go gluten-free to see if you feel better, well, kudos to her..... and frankly, she may benefit as well as I am a huge believer in the hereditary aspect of this disease--no matter what the celiac test results say/

 

It is always great to "see you" either here or on GD site. Take care, dear girl!!

CarolinaKip Community Regular

C Kip! I am so happy to see you! ;)

 

Want my opinion--from my "gut"? sure, why wouldn't you have a reaction of some kind?

if you are still having "good and bad days" 3 years later? SOMETHING is causing you grief.

 

Celiacs can also have a wheat allergy (and I say this often) and it is entirely possible that just being around wheat flour ( or people consuming it ) is giving you continuing symptoms.

 

If your daughter is willing to go gluten-free to see if you feel better, well, kudos to her..... and frankly, she may benefit as well as I am a huge believer in the hereditary aspect of this disease--no matter what the celiac test results say/

 

It is always great to "see you" either here or on GD site. Take care, dear girl!!

 

Thanks Irish!!

 

I'm about to have a break coming soon, so you will "see me" more often!

gatita Enthusiast

I do have typical wheat allergy symptoms at times... last time I tried a gluten challenge, my lips, eyes, and face puffed up, and my heart raced. Classic allergy stuff...

 

But whenever I get glutened, my guts ALSO go freakin' bonkers. Classic intolerance.

 

So is it allergy or intolerance? My GI gave up trying to decide and just went with common sense: DON'T... EAT... WHEAT...

  • 4 weeks later...
Celiacmama83 Newbie

I was just tested for Wheat allergy and I should have my results in two weeks. I accidently ingested wheat and my eyes became swollen and I broke out in hives. My doctor said that it probably wasn't wheat, but maybe my makeup. I've been using the same makeup for years and it happens to be gluten-free. I don't know what else it could have been. We will see in a few weeks what is causing this reaction. It was pretty scary and hoping it doesn't happen again. I have never once had an issue, but once I went gluten-free I have become super sensitive to a lot of different things. I'm so nervous, I don't even want to eat :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,500
    • Most Online (within 30 mins)
      7,748

    debbie pearl
    Newest Member
    debbie pearl
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Art Maltman
      I did a test already not exactly sure if it was the right one the doctor I went to at first refused to give me the test but i evantail convinced him but he wasnt exactly sure what test to do. I didn't eat gluten on sunduy monday tuesday and i had the test on thursday. Is it possible the test will still be accuret
    • JA917
      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
      Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies.  Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy.  You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.   
    • cristiana
      Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan  and icing.   As usual, I've left it too late - we're meant to bake these things some time  in advance to improve the flavour.    I never remember.  But it never seems to matter! I thought I'd share it in case any UK coeliacs still haven't made theirs and don't have a recipe, or any of my friends across the Pond want to try making one.  Do you make iced fruit cakes like this in the US for Christmas? - I have no idea! I adapt it slightly as instead of fondant icing I make Royal Icing which sets hard and you can create exciting snow scenes with it if you can find any tiny model houses, churches and trees to put on it!  (my Mum used to do this).   https://www.coeliac.org.uk/information-and-support/your-gluten-free-hub/home-of-gluten-free-recipes/1511804/ With thanks to the charity Coeliac Uk for this recipe. Cristiana  
    • trents
      Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:   The physician may not be open to ordering a full panel but push for at least these two: total IGA and tTG-IGA. By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 
×
×
  • Create New...