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Going To Request More Tests....

taynichaf

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notme Experienced
notme
Posted

Little vent-My Mom is another story.  She tries to be helpful, except I've asked if she cannot loudly proclaim in the grocery store, "Do you see any of your gluten foods?"   I bite my tongue because I want to say, yes I see PLENTY of gluten foods, but I need gluten-free.  Do you think next time we're near the diet coke, I should loudly exclaim, "Do you see any of your aspartame beverages?"  end rant

 

 

LOL *snort* 'aspartame beverages'  that is too funny - i'm going to do that to my mother-in-law!  she is constantly trying to feed me cupcakes - i don't know if she is just dumb or what her deal is - but she does love the aspartame beverages.  ima hafta tell her sugar is the same thing don't worry about it hahaha - thanks for the chuckle :)

 

tinychef - settle down, now.  everything's gonna be alll right.  my son is a diabetic so let me tell you this:  it's hard to figure out what combination of things are going to make you feel better!  when he was first diagnosed his sugar was all over the place so we had to figure out how to feed him, whether his background worked better for him taking it in the morning or at night, should he have a bedtime snack, blah, blah, blah - it took awhile but he is doing well with it.  it's all a learning experience - you can have a million tests and still be paralyzed with no hard and fast answer.  but, yes, get your stuff together and ms. karen will help you sort it out.  we're all here for you. now, go wash your face, put on your big girl pants and let me see that smile.  yeah, that one  ;)

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kareng Grand Master
kareng
Posted

And don't forget to clean your bathroom!

( maybe I should aim that comment about 6 foot high at my house?)

If you have all your Celiac lab work reports....post what you have. Give the "ref. ranges" and the answers. If it looks completely odd, message me. Maybe I can help you figure out what to post. If we need to, you can cover your name, address, hospital, etc and scan them and email them to me. Then I can explain what the ranges are or tell you the stupid doc didn't give you what you thought you had! Cause.....that never happens ( said sarcastically).

taynichaf Contributor
taynichaf
Posted
  • Author

And maybe a few loads of laundry and clean your bathroom? :)

Hahahahahhaha! I actually do need to do my laundry... bad! Ha, i'll do that too:)

taynichaf Contributor
taynichaf
Posted
  • Author

And don't forget to clean your bathroom!

( maybe I should aim that comment about 6 foot high at my house?)

If you have all your Celiac lab work reports....post what you have. Give the "ref. ranges" and the answers. If it looks completely odd, message me. Maybe I can help you figure out what to post. If we need to, you can cover your name, address, hospital, etc and scan them and email them to me. Then I can explain what the ranges are or tell you the stupid doc didn't give you what you thought you had! Cause.....that never happens ( said sarcastically).

I just got more blood work friday... So I should get the results by this coming friday, and then i'll post! The doctor also did other tests. She did one to check for iron deficiency anemia... So if that says im anemic again, I think I can tie that back to eating gluten again(last time I got tested ai was gluten light/free for awhile and it came back borderline, but normal) But I will deffinatly talk through it all with you, thanks.

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    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Does Kroger Offer Affordable Gluten-Free Options?

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    • Scott Adams
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By Scott Adams · Posted

      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
    • trents
      Test uncertainty

      By trents · Posted

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