Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed- Dealing With Rude Comments

eblue

By eblue
in Coping with Celiac Disease

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

  Irish Heart is right, its on you to educate and cite reputable sources. 

 

 

  I used to think that people that were allergic to gluten were just being overly picky eaters.  I had no idea that all it takes is 1/8 of a teaspoon to chemically create a reaction in ones body.)  

 

 

 

I had you at "Irish Heart is right"  :lol: can you tell this to my hubs, my Mom, my sister, my ex husband,etc..?.

 

but seriously, sweet girl, I cannot endorse

EVER saying to anyone:

 

" I used to think the "allergic to gluten people were just being overly picky eaters"

 

because nothing in that statement is true. 

 

Celiacs are not "allergic to gluten" (celiac is NOT an allergy so, I would never say that)

 

and I am not " overly picky" 

 

so I would not ever counter an argument using that rationale.

 

Sorry, just clarifying, but  I do love your spirit! 

 

I just say this" Gluten is poison to me and  I do not eat it". Period.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eers03 Explorer
eers03
Posted

Okay, so....   Probably a good point...  Addendum approved!

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

this is great!  I'm going to work on memorizing it  :)

First, that really has to hurt.  No wants to feel like the person that takes a pass on the family casserole.  Irish Heart is right, its on you to educate and cite reputable sources.  I'm in sales and my thing is this...  State someone's objections before they can.

 

So...

 

Them (Eyeroll)

 

You (I know, right?!  Its crazy!  I used to think that people that were allergic to gluten were just being overly picky eaters.  I had no idea that all it takes is 1/8 of a teaspoon to chemically create a reaction in ones body.)  

 

Them: WHAT?!

 

You: Yeah, its insane.  Did you know that if I cheat on my diet and eat one meal containing gluten per month that my mortality rate increases over time by 600%?  Thats why I never cheat!!!

 

Them: Whoa!  

 

You: Yep, its true.  If I can't check out the ingredients on a recipe, I have to stay out of it.  I CAN eat ALL kinds of stuff though.  Fresh fruit, steak, pork, chicken, but I stay out of the processed meats.  I still have my dairy. (hopefully)  Nuts, etc...

 

Them: Oh....  So what happens if you eat it?  

 

You:  C'mon, now.  Nobody wants to talk about that...  Alright look, my body fights gluten just like it fights the flu or any other foreign invader.  Now imagine that your body has to react like it has the flu every time you eat a meal.  Your body gets into an "inflamed" state over time that can lead to other diseases or even cancer.  Every time I eat the stuff, the battlefield of inflammation becomes my GI tract, my liver, and my intestines and over time it inhibits my ability to get what I need out of food.  So trust me, its not a fad diet for me. 

 

You:  It was tough at first but I know my resources now and to be honest, I'm a nutritional expert.  If you ever have questions about anything, I can probably point you in the right direction.  

 

 

That's how I play it off sometimes.  If you've already had your own version of this dialog and those same people are giving you "the look" they need to "look" at themselves and ask why they are so selfish.  

 

 

I had you at "Irish Heart is right"  :lol: can you tell this to my hubs, my Mom, my sister, my ex husband,etc..?.

 

but seriously, sweet girl, I cannot endorse

EVER saying to anyone:

 

" I used to think the "allergic to gluten people were just being overly picky eaters"

 

because nothing in that statement is true. 

 

Celiacs are not "allergic to gluten" (celiac is NOT an allergy so, I would never say that)

 

and I am not " overly picky" 

 

so I would not ever counter an argument using that rationale.

 

Sorry, just clarifying, but  I do love your spirit! 

 

I just say this" Gluten is poison to me and  I do not eat it". Period.

IrishHeart Veteran
IrishHeart
Posted

Okay, so....   Probably a good point...  Addendum approved!

 

 

:lol:

 

I think we all have our ways of expressing ourselves...do whatever works for you! 

I suggest you be firm, use humor to deflate anger and frustration and learn to blow off criticism about celiac and the gluten-free diet.

 

It's your life you are saving. ;)

Just my two cents, IMHO.

surviormom Rookie
surviormom
Posted

Well my father, responded as expected.  My sister however, is listening.  She plans to discuss with her doctor.  We know how her doctor will probably treat it, but at least she knows now, and perhaps will read about it.  My father would rather die than change his eating habits.   This is a man who has pancreatitis, liver disease, heart disease, odd rashes that pop up now and then, allergic to aspirin, and goes to the bathroom 3-4 times a day.  All of my life he has had 1 of those, half of my life he has had 3 of those, and the past 20 years 4 of them and the past 2 years all of them.  He is 69.  I left off that awful cough he wakes up with every day, another all of my life thing.

 

If they did to him what they just did to me I wonder what they would find?

IrishHeart Veteran
IrishHeart
Posted

.  My father would rather die than change his eating habits.   

 

This is, sadly,  the most ironic statement of all...and it applies to many people I know as well. :(

 

They may very well die too early, if indeed celiac is the root of their health problems and they do not change their eating habits..

surviormom Rookie
surviormom
Posted

This is, sadly,  the most ironic statement of all...and it applies to many people I know as well. :(

 

They may very well die too early, if indeed celiac is the root of their health problems and they do not change their eating habits..

:( Yep.  I tried.  

 

So there is rudeness everywhere.  Strangers, Friends, and Family.  Serenity, Courage, Wisdom.  I cannot change his health or attitude, I can change mine.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

:( Yep.  I tried.  

 

So there is rudeness everywhere.  Strangers, Friends, and Family.  Serenity, Courage, Wisdom.  I cannot change his health or attitude, I can change mine.

 

Sorry, hon..  I do know how hard it is to watch someone you love ignore what we see so plainly.

But ....take care of you and be an example of what good health looks like. 

w8in4dave Community Regular
w8in4dave
Posted

Wow, great idea. A non-processed food diet is ideal, right? Very healthy and great for weight management. I guess that's what I do automatically if I don't have the energy to explain Celiac disease, ha. Also, eblue, tell your family that Celiacs and people with food allergies are officially considered disabled by the government under the Americans with Disabilities Act. That should shake them up. :-D

Yup I ran into a friend of mine and she asked "why can't you go out to eat? What diet are you on? Don't tell me no carb diet either" I told her it is an all natural diet! It is "no" anything pre packaged she said " it's at a restaurant it is not pre packaged" I say " When restaurants cook alot of their stuff is pre packaged, I cannot eat it!" "So if I go with you to go out to eat I cannot eat." 

I feel she should respect my wishes, don't bug me about going out to eat! I don't want to go. Find someone eles to go with you!! 

I actually wish she would change her diet because she has crones <-- spelling  She eats horrible!! I wish she would think of her health a lil better. Dr. tells her not to eat lettuce, she runs hime and eats a bowl of salad. Too bad!! 

Salax Contributor
Salax
Posted

My sister-in-law said to me multiple times "I'd rather die than eat like you." (which I am gluten, corn and dairy (cow's milk) free). So I said, well thats pretty much what would happen if you did eat gluten with celiac...alot faster and a hell of alot more painful. Me, personally, food isn't a want/craving/desire. It's fuel, if you put bad fuel in your car it doesn't perform well. Same as your body, you put crap it, crap you get for performance, health issues, etc. She looked at me blinked and kept eating her gluteny cake, never said that to me again in the past 3 years. Hey, at least I got her to stop saying it to me. :)

 

People have a very large obession and I call it an addiction to food. Food has become a social thing, when really it shouldn't be...it's for nutrition and health, not events and parties. So it's hard to get people to break away from that stigma of needing to eat certain things or eating what everyone else eats, being accepted at parties, not making waves about food, etc. Me, I am at a point my health is far more important than someones feelings. I would never be nasty, but damn it I am not going to eat something to make you feel better. If thats the case that your feelings get hurt because someone didn't eat your food, you got your own (emotional) issues to deal with. :D

 

(You-as a generalized term)

 

Anyways, to the original poster. I does get better, just stand up for yourself and be kind but firm. Give it time.

w8in4dave Community Regular
w8in4dave
Posted

My sister-in-law said to me multiple times "I'd rather die than eat like you." (which I am gluten, corn and dairy (cow's milk) free). So I said, well thats pretty much what would happen if you did eat gluten with celiac...alot faster and a hell of alot more painful. Me, personally, food isn't a want/craving/desire. It's fuel, if you put bad fuel in your car it doesn't perform well. Same as your body, you put crap it, crap you get for performance, health issues, etc. She looked at me blinked and kept eating her gluteny cake, never said that to me again in the past 3 years. Hey, at least I got her to stop saying it to me. :)

 

People have a very large obession and I call it an addiction to food. Food has become a social thing, when really it shouldn't be...it's for nutrition and health, not events and parties. So it's hard to get people to break away from that stigma of needing to eat certain things or eating what everyone else eats, being accepted at parties, not making waves about food, etc. Me, I am at a point my health is far more important than someones feelings. I would never be nasty, but damn it I am not going to eat something to make you feel better. If thats the case that your feelings get hurt because someone didn't eat your food, you got your own (emotional) issues to deal with. :D

 

(You-as a generalized term)

 

Anyways, to the original poster. I does get better, just stand up for yourself and be kind but firm. Give it time.

Love your way of thinking!! TY :) 

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

this is a great thought!  I am working on getting my food in check.  yes, I need to eat at regular intervals, and I need to put good fuel in my body, but I hate it when it makes people uncomfortable if I don't want to eat.  Listen, I'm not going to starve.  As long as I have water, I'll make it for awhile.

 

I tend to be an over-sharer at times  :)  i've been telling people if they offer me something that I can't eat gluten, and if they ask why, I don't say I have celiac even though I believe I do, but because I didn't get the gold standard diagnosis through biopsy, I still feel like I'm lying  :P  Instead I say, I had a positive specific celiac blood test and am no longer suppose to be eating gluten, and I try to leave it at that.  If they really want to dive in further and ask what it does, I politely say it stops me up inside  :D, makes my joints hurt, brain fog, etc.  hey they're the ones that asked  :lol:

 

anyway I understand that food is a symbol of love, but show me you love me when I refuse your food, albeit in a polite manner, because I know it will not make me feel good  :)

 

 

People have a very large obession and I call it an addiction to food. Food has become a social thing, when really it shouldn't be...it's for nutrition and health, not events and parties. So it's hard to get people to break away from that stigma of needing to eat certain things or eating what everyone else eats, being accepted at parties, not making waves about food, etc. Me, I am at a point my health is far more important than someones feelings. I would never be nasty, but damn it I am not going to eat something to make you feel better. If thats the case that your feelings get hurt because someone didn't eat your food, you got your own (emotional) issues to deal with. :D

 

 

w8in4dave Community Regular
w8in4dave
Posted

Actually I am finding it is easier and easier to say "No Thank You" I don't have to explain myself , I don't have to lecture, I just say "No Thank You" and that is that!! Even if they say "Are you sure? It's really good!" I say "No thank you, I am good!" "Thanks anyway" smile and continue on :) No worries I am happy!! :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,103
    • Most Online (within 30 mins)
      7,748
    Judithann
    Newest Member
    Judithann
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TerryinCO
      Status Update...

      By TerryinCO · Posted

      Thank you for the information. I did order/receive GliadinX to have on hand in the event of suspected exposure.
    • Dc91
      Celiac or not?

      By Dc91 · Posted

      Just had a letter through from the Celiac team, they’ve diagnosed me through my bloods, no endoscopy/biopsy needed. I guess I’ll be sticking around on this forum and I’m sure I’ll be back soon. thanks for all your help 
    • Ryangf
      Do I really need to get a biopsy?

      By Ryangf · Posted

      Hi everyone I’m somewhat new here- at least this is my first time posting.    I have been having persistent stomach issues since July of 2024- so around 7 ish months I’ve been having issues. At first I thought it was just a bout of constipation because I had had that issues before but- it simply did not go away at first I went to urgent care for my bloating and stomach pain and constipation and they basically didn’t really check anything and just passed it off as constipation and gave me stool softeners. Then I started having joint pain and a sharp stinging sensation in my back that debilated me and urgent care passed it off as muscle spasms. Then I finally went to my primary care doctor and they put me on a lowfodmap diet- and that didn’t help…(I was still eating gluten product),then I told her that didn’t help and then she didn’t contact me for several weeks not even trying to pinpoint the cause of my discomfort. So I started doing my own research from reputable sites- and analyzed my symptoms. Then suddenly I started losing weight rapidly 23 pounds in a month to be exact and I had like pale yellowish stool. Then I started realizing maybe it was gluten that was irritating me and I cut it out and started feeling a little bit better but still had some discomfort. Then I contacted my doctor again for a blood test for it and it came back negative. But I still was worried at least if it could be anything else going on in my stomach though I was sure it was celiac disease. Then after me practically begging her to let me get an endoscopy eventhough she insisted I was fine- I choose a doctor to see that was not my primary care doctor to evaluate me and they recommended I get an endoscopy…and I had an endoscopy a few weeks later. That came back negative for celiac with my biopsy too and no other damages from my ultra sound I got or anything. So I was naturally extremely confused. So I started to feel like maybe I was over exaggerating. But then I started researching on endoscopies- and found out for a confirmed positive blood test and endoscopy I had to be CURRENTLY eating gluten something neither of my doctors notified me about nor the GI specialists. So I realized my doctor probably would not order me another endoscopy…and also I just decided do I really need to go through the pain of eating gluten again for an endoscopy- when I could just stop eating it? So I weighed it and at the moment I decided- I would not get an endoscopy and just be gluten free- and for a little bit- I was fine- then my stomach started hurting again- a few times could’ve been from cross contamination but I also saw that a lot of the gluten free products I was eating contained corn and I tested it and stopped eating corn products for a few days and felt better. So I also did research on corn and found that some people with celiac disease can respond negatively to corn because it has a protein in it similar to gluten. So I cut that out completely and felt better for a long time. Except for ocassional corn cross contaminations I felt fine- until recently where I think I may have had corn products a few times consistently- and not noticed despite my stomach upset because I had been dealing with stomach issues so long I thought it was the norm. Now for the past few days possibly because of the consistent corn exposure for the past month I’ve been having an upset and bloated stomach eventhough I stopped eating the corn- because I think (though studies are not sure on corn damaging celiacs stomach lining) corn may have been damaging my stomach lining again during that time- and I may be developing some new intolerances or conditions. I want to go get that checked out but I don’t want to be gaslighted by doctors again- cause it makes me feel crazy. And I’m also debating on whether or not I want to go through the pain and stomach damage again for 2-6 weeks to really confirm if I have celiac disease- and I’ve been even more reluctant because now I am in classes again and I have to be in class consistently standing up a lot (culinary class) for multiple hours on end and I don’t think me being fatigued and sick and in pain is going to be good for me during that time. Should I get an endoscopy to confirm if I have celiac disease again this time actually eating gluten up to that point- or should I just first try to figure out what intolerances I may have developed or other conditions via a doctor- or wait for a while until my stomach lining has repaired sufficiently or at least enough before getting an endoscopy and a blood test again at a time when I am not busy a year or so from now while maintaining a gluten free corn free diet until my endoscopy is booked and then I will begin eating gluten and corn up until the endoscopy? (Sorry I know that was a lot.) 
    • trents
      Less than 10 parts per billion issues

      By trents · Posted

      I have no specific recommendations but I would suggest looking for products that are advertised as produced in a dedicated gluten-free facility. That should eliminate one possible route of cross contamination. It doesn't guarantee that none of the ingredients going into the product are totally gluten free but is should eliminate adding more CC to the mix via processing machinery.  One of the issues you may be experiencing is that testing has shown that a significant percentage of "Certified Gluten Free" products can test far in excess of 10ppm. There was an article appearing in this forum back last summer outlining the results of testing that showed this to be true. So, it may be somewhat of a pig in a poke when you buy this stuff, regardless of how it is billed. It may be safe for you if it actually fits within the stated requirements of it's billing.
    • Hauama
      Less than 10 parts per billion issues

      By Hauama · Posted

      I can still have a reaction from “certified gluten free” products I don’t like having to use the eat and see what my body does approach are there really any purely gluten free products or do I just have to make all of my own food? 
×
×
  • Create New...