Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Salicylates Intolerance

klisja

Recommended Posts

klisja Rookie
klisja
Posted

What are you celiacs with sals intolerance eating?

 

Klisja

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

I have figured out what my "load" is - the amount of sals I can tolerate. I can eat a small amount of sweet potato a day. That would be one small one, one half of a medium one, or one third of a really large one. I can eat broccoli too, but not on the same day as sweet potato. That is about the only high sals food I eat. The rest is meat, cheese, cauliflower, rice, peeled white potatoes.

 

Everyone has a different load tolerance. The secret is to find out what yours is. Cut out all sals for a while, then pick your favorite high or medium sals food and eat just a little bit. If you don't react, wait a day, then after a day off from sals, eat some more. It takes a long time to figure it out, but it's worth it.

klisja Rookie
klisja
Posted
  • Author

I have yet to find the urge to stop drinking tea and coffie, I have no problem resting from fruit and veggies because that makes me so sick. I know I need a rest for few weeks, just waiting for the teabag to stop jumping in my cup (so rude).

bartfull Rising Star
bartfull
Posted

I didn't give up my coffee. I will NEVER give up my coffee!!!! I miss blueberries so much and I bet if I gave up coffee I'd be able to tolerate them once in a while, but even my beloved blueberries aren't worth giving up coffee for.

 

One thing to keep in mind - after you have been gluten-free for a while you might be able to tolerate more things. Don't give up hope. :)

cyclinglady Grand Master
cyclinglady
Posted

Are you allergic to salicylates or NSAIDs (e.g. Ibuprofen)?  I am, but I'm able to eat foods containing salicylates.  I guess I'll remain watchful.  I supposed moderation and rotating foods is helpful.  

 

My NSAID/Aspirin allergy has caused anaphylaxis (facial/eye, throat, tongue swelling) which was very frightening!  

bartfull Rising Star
bartfull
Posted

I'm not sure if my problem with asperin and other NSAIDs is a true allergy or just an intolerance. The last time I had any I was so sick anyway I couldn't tell. (Rash, extreme pain, and a cold verging on bronchitis.) I DO know that my jaw pain (unrelated to celiac) becomes UNBEARABLE when I am exposed and my psoriasis flares badly.

 

It's been a year since I have varied the sals in my diet. I know that a little over a year ago organic blueberries made me sick. MAYBE I could eat them now but the pain is so severe when I do react that I just don't have the heart to try.

klisja Rookie
klisja
Posted
  • Author

I didn't give up my coffee. I will NEVER give up my coffee!!!! I miss blueberries so much and I bet if I gave up coffee I'd be able to tolerate them once in a while, but even my beloved blueberries aren't worth giving up coffee for.

 

One thing to keep in mind - after you have been gluten-free for a while you might be able to tolerate more things. Don't give up hope. :)

 

Mmm blueberries.  :wub:  I used to eat them every day.

I've been testing abit and it has been a horrible week for me. I am afraid to test iceberg :wacko:

Maby if I would just drink coffie or tea, that would probable make a difference :)

 

 

Are you allergic to salicylates or NSAIDs (e.g. Ibuprofen)?  I am, but I'm able to eat foods containing salicylates.  I guess I'll remain watchful.  I supposed moderation and rotating foods is helpful.  

 

My NSAID/Aspirin allergy has caused anaphylaxis (facial/eye, throat, tongue swelling) which was very frightening!  

 

I think I am sensitive to sals, I am not 100% sure. But a started to suscepct it was sals when I had to remove all spices from my diet. But I can't tolaret the onion family either so, I don't k now. Need some testing :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Testing isn't very reliable. The best way to test is to do an elimination diet. Have you been to Open Original Shared Link ? They give lists of foods with their sals levels. For example, yes, spices are usually high in sals but you CAN have garlic. And although most fruits and all berries have rather high levels, you can eat bananas and pears if you peel those pears thickly. (The only reason I don't eat either of those is because it is almost impossible to get decent produce where I live.)

klisja Rookie
klisja
Posted
  • Author

Testing isn't very reliable. The best way to test is to do an elimination diet. Have you been to Open Original Shared Link ? They give lists of foods with their sals levels. For example, yes, spices are usually high in sals but you CAN have garlic. And although most fruits and all berries have rather high levels, you can eat bananas and pears if you peel those pears thickly. (The only reason I don't eat either of those is because it is almost impossible to get decent produce where I live.)

 

Yes, I am going by that list now. Or starting monday (I don't know how many mondays I've planned to start). I am allergic to bananas, and they make my colon puke (it feels like it). Where I live the pears are unripe and usually damaged before they become soft.

 

Garlic and onoins make me sick, eating garlic gives me flu like symptoms and I can't even eat garlic diffused oil (wich is supposed to be safe).

 

I am testing some things on the list, like iceberg, canned pears, cashews ect. Or I will this week when I am better.

 

Thanks for beeing here, I really appreciate the help :)

zevans23 Newbie
zevans23
Posted

I didn't give up my coffee. I will NEVER give up my coffee!!!! I miss blueberries so much and I bet if I gave up coffee I'd be able to tolerate them once in a while, but even my beloved blueberries aren't worth giving up coffee for.

 

One thing to keep in mind - after you have been gluten-free for a while you might be able to tolerate more things. Don't give up hope. :)

 

Hi... new to the board.

 

Yes I found that too. I have been intolerant to salicylic acid forever. As an adult with me it only seems to be apples, oranges and apricots that are guaranteed to take me over daily tolerance... the other suspects such as tomatoes seem fine.

 

HOWEVER before I was diagnosed coeliac I would occasionally get hayfever symptoms at times from eating a much lesser load. (That's how the salicylic issue manifests with me.)

 

Since going gluten-free I can eat a whole apple or drink two pints of cider, so I assume these two autoimmune disorders must somehow encourage each other to misbehave...

 

regards

Zack

designerstubble Enthusiast
designerstubble
Posted

Hey just seen this thread... Just wondered what symptoms you all get with you saly intolerances/allergies??? As I saw oranges and tomatoes included somewhere I wonder whether what I have could be a saly intolerance?? I became severely asthmatic to oranges lemons limes and tomatoes after going gluten-free. I assumed it was just a citrus thing? I thought a saly intolerance produced things like bone and muscle aches, gut troubles etc.... Hmmmmm

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would...
    2. MI-Hoosier
      - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy. With the condition my liver is in I am unsure moving back...
    3. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is...
    4. MI-Hoosier
      - MI-Hoosier posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Hi, I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect. During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am...
    5. Sunshine4
      - Sunshine4 replied to Sunshine4's topic in Related Issues & Disorders
      3

      Neurologic symptoms - Muscle Twitching and Hand Tremors

      Many apologies for somehow changing your first name Scott!
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,253
    • Most Online (within 30 mins)
      7,748
    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Hi,  I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect.   During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am 54. Do I need a biopsy to rule celiac in or out with this mixed test? Any thoughts are appreciated.  
    • Sunshine4
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By Sunshine4 · Posted

      Many apologies for somehow changing your first name Scott! 
×
×
  • Create New...