Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help, What Am I Reacting To?


Minstinguette

Recommended Posts

Minstinguette Rookie

I am hoping some of you can help me understand what I am reacting to. I have been having mild reactions on and off after in the last two weeks. I get the usual migraine and feel very sleepy and foggy. I have been trying to identify the culprit but I no luck so far. I get these reactions after eating breakfast and figured it has to be one or several of theses:

 

Justin's almond butter

Bob's Red Mill flax seed

Bob's Red Mill chia seeds

Let's do Organic shredded coconut

Larabar Jocalat hazelnut

 

I stopped eating the Jocalat bars thinking it was that, but I kept having reactions. I am confused because  I have been able to have the other ingredients with no problem on other occasions in the past.

 

I react to gluten, corn and dairy. I feel like this is more of a corn reaction but I am not sure. 

 

Any ideas?

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

any of that stuff have soy in it?  soy gets me if i eat too much of it and that's kind of the reaction i have.  i used to think i was getting glutened but it goes away sooner.

Minstinguette Rookie

Thanks notme! No, no soy in any of these things. I know what you mean about soy too, I get the same reaction to soy milk (tamari doesn't seem to bother me though). 

pricklypear1971 Community Regular

Remove all possible offenders for a few weeks. Add each one back one at a time. Watch what happens.

dilettantesteph Collaborator

Remove all possible offenders for a few weeks. Add each one back one at a time. Watch what happens.

 

That's what I was going to say.  That works best for me.  You can drive yourself crazy trying to compare your reactions to the reactions of others.  This takes diligence but works.

  • 2 months later...
Minstinguette Rookie

Thank you both for your advice. I just wanted to post an update. I found out that I react to some of Bob's Red Mill gluten free flours. I'm thinking gluten or corn cross-contamination. I react strongly to corn, so that might be it. Now I need to find a safer brand, or make my own...

dilettantesteph Collaborator

Do you know if you react to oats?  I reacted to BRM too, and I talked to them about it.  At that time, they processed their gluten-free oats in the same facility as all the other gluten-free items.  Or, of course corn.  That's a difficult one, I hear.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,552
    • Most Online (within 30 mins)
      7,748

    ABA Steps LLC
    Newest Member
    ABA Steps LLC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @TexasCeliacNewbie! The test results you posted strongly point to celiac disease. It is likely that your physician will want to perform an endoscopy with biopsy of the small bowel lining to confirm the results of the celiac antibody bloodwork results you just posted. It is important that you not cut back on gluten consumption until the endoscopy/biopsy is complete, assuming, that is, one is forthcoming.  Can you post the actual reference ranges used by the lab for the tests to determine positive/negative/normal/high/low? Scales used by these labs are different from one place to the other so the raw numbers don't mean much without the scale used by the lab. There aren't industry standards for this. By the way, you probably won't be able to edit the original post so please post the extra info in new post. May we ask about the cancer you mentioned? There are some things that can elevate the antibody test scores, at least mildly, besides celiac disease.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me that otherwise are worrying me that my previous cancer is recurring.  Thank you for all of your expertise in this area! Immunoglobulin A, Qn, Serum 140 (normal) Deamidated Gliadin Abs, IgA 256 (High) Deamidated Gliadin Abs, IgG 65 (High) t-Transglutaminase (tTG) IgA 31 (High) t-Transglutaminase (tTG) IgG 10 (High)
    • trents
      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    • TerryinCO
      Here's the test result I was refering to.  I may not be understanding this correctly.
    • trents
      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
×
×
  • Create New...