Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Pic - Do You Think This Is Dh?

SiandAshs Mom

Recommended Posts

SiandAshs Mom Apprentice
SiandAshs Mom
Posted

Hello all. I know that you aren't able to diagnose my son but I would love to hear your thoughts. My 6 year old son has a rash on both of his elbows (one side is worse than the other) and I want to be armed with as much info as possible before we go see the doctor. Do you think it's possible that this is DH? He says it's itchy sometimes but not all the time so that leads me to believe that it isn't. I'll have the doctor look at it anyway but do you think it's worth asking for a biopsy? Just not sure what to do next (if anything at all!). Thanks for your input :)

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

Here's some more info. My son has not been diagnosed with celiac - he has allergies (dogs and cats and hay fever to a lesser extent) and has struggled with reflux since he was a baby. I believe either celiac or ncgs is in our family. My grandmother has always said she had celiac disease though I don't think she was officially dx'd. My grandmother, my brother and myself all deal with gi issues, apnea/snoring, and skin issues (eczema, keratosis pilaris) as well as fatigue and depression (oh and I am really low in iron as well). I recently had celiac blood work done which all came back negative. Obviously celiac/food sensitivities are on my brain and there is a strong possibility that I am simply being an over-concerned parent but skin issues seem to signal internal issues. I'm just trying to figure out what to do next... I can almost guarantee the doctor will give me some cream to put on his elbows and send us on our way. That just doesn't really get to the underlying issues IMHO. I'd love to hear some of your opinions (even if it's that I'm being unreasonable!). Thanks :)

squirmingitch Veteran
squirmingitch
Posted

DH is itchy, itchy, itchy!!!!! He would be clawing himself raw. And photos can be tricky..... It doesn't really look like dh. It could be psoriasis of some kind. I wouldn't push for a biopsy for dh for this reason ~~ If he does it & it's negative then you'll play hell getting him to biopsy it again for dh at a later date should the need arise.

SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

DH is itchy, itchy, itchy!!!!! He would be clawing himself raw. And photos can be tricky..... It doesn't really look like dh. It could be psoriasis of some kind. I wouldn't push for a biopsy for dh for this reason ~~ If he does it & it's negative then you'll play hell getting him to biopsy it again for dh at a later date should the need arise.

Thanks squirmingitch. That's what I thought. I'll take him in to the doctor anyway, just to see what he says, but I won't push for a biopsy. I appreciate your thoughts!

squirmingitch Veteran
squirmingitch
Posted

YVW!

A question. Does anyone in your family have celiac disease? I haven't been on the other forums in a while so don't know your situation. So I'm wondering what made you think it might be dh? 

 

There are many rashes & skin problems associated with celiac disease. If at some point you suspect again that he really does have dh, then come back here before you have him tested so you can get the right info. to walk into the doc with so you can make sure he gets tested the right way.

SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

YVW!

A question. Does anyone in your family have celiac disease? I haven't been on the other forums in a while so don't know your situation. So I'm wondering what made you think it might be dh? 

 

There are many rashes & skin problems associated with celiac disease. If at some point you suspect again that he really does have dh, then come back here before you have him tested so you can get the right info. to walk into the doc with so you can make sure he gets tested the right way.

Ah! I had a long post with more info but it seemed to disappear (all my posts need mod approval since I'm new so maybe that's why). My grandmother has always said she has celiac disease but I don't think she was ever actually dx'd. My grandmother, my brother and I have all dealt with GI troubles (cramping, diarrhea), snoring/apnea, fatigue and depression (and I recently found out I am really low in iron). My doctor recently sent me for celiac blood tests - they all came back negative. My son has not been tested for celiac - he has had reflux since he was a baby (repeatedly on prilosec, I think it was) and has bad allergies to dogs/cats (and hay fever to a lesser extent). I'm probably just being an over-concerned parent but the skin issues, in my opinion, signal internal issues. Anyway, it just sucks feeling like something's wrong but I never seem to make any progress (and I meet a lot of resistance from family too)! I appreciate your help/advice though. There's so much knowledge here - it's just awesome!

notme Experienced
notme
Posted

Ah! I had a long post with more info but it seemed to disappear (all my posts need mod approval since I'm new so maybe that's why).

 

(sorry!  it should be still there, just out of sequence because there were other replies after that one)  :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

(sorry!  it should be still there, just out of sequence because there were other replies after that one)   :)

No worries! 

squirmingitch Veteran
squirmingitch
Posted

Oh I see. That's why I didn't know. It was like cross posting happens.

Okay. I understand where you're coming from & I don't think you're overreacting; you're just keeping a weather eye out & rightly so! Well, there's nothing to keep you all from going gluten-free. The only thing with your kids is that an official dx would make things easy for school b/c you could prove to them that he/they need to eat gluten free. That may be an issue, so you have to decide how to proceed & I don't envy you the decision ~~~ it's a tough one.

SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

Oh I see. That's why I didn't know. It was like cross posting happens.

Okay. I understand where you're coming from & I don't think you're overreacting; you're just keeping a weather eye out & rightly so! Well, there's nothing to keep you all from going gluten-free. The only thing with your kids is that an official dx would make things easy for school b/c you could prove to them that he/they need to eat gluten free. That may be an issue, so you have to decide how to proceed & I don't envy you the decision ~~~ it's a tough one.

Yes, I would love an official diagnosis if he does have celiac. It would be better for school and it would make it easier for our family to accept it. If I were to make my son gluten free without a diagnosis I can guarantee my parents and my inlaws would disregard it. Oh well...

squirmingitch Veteran
squirmingitch
Posted

I completely understand. And it's frustrating for you as it's like being caught between a rock & a hard spot.

 

Hang in there.

SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

I completely understand. And it's frustrating for you as it's like being caught between a rock & a hard spot.

 

Hang in there.

Thanks! I have a doc appointment for my son on Monday. If anything comes out of it, I'll post :). Thanks again!

  • 4 weeks later...
Mum in Norway Contributor
Mum in Norway
Posted

What did the doc say?

I have had a rash that looks just like that, only more read, my whole life, have just reasently started to wonder if it might be DH...

  • 3 weeks later...
SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

What did the doc say?

I have had a rash that looks just like that, only more read, my whole life, have just reasently started to wonder if it might be DH...

Sorry - I only checked this now... his doctor looked at it and said it was nothing. I am assuming he's correct and that it isn't DH but I still feel it seems fishy. Just not indicative of anything in particular. I have come to the conclusion that I need to figure out my own health first and get an appropriate diagnosis for myself before I can help my kids with their concerns. Hope you are able to sort out your own health as well :)

w8in4dave Community Regular
w8in4dave
Posted

Looks like my rash ... CAn they do a swab test? Mine is on my back 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,218
    • Most Online (within 30 mins)
      7,748
    LinnWikman
    Newest Member
    LinnWikman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Scott, I know full well that celiac disease is an autoimmune disorder and gluten sensitivity is not. And I agree that there is inconsistency in the use of the terms. But my contention is that "gluten intolerance" should not be used of NCGS since "gluten sensitivity" is actually found in the gluten disorder known as Non Celiac Gluten Sensitivity and, therefore, "gluten intolerance" should be reserved as a common/nonmedical equivalent for celiac disease. It also seems to me that "intolerance" implies something more severe than does "sensitive". And it just seems to me that, though there is still a lot of inconsistency in the use of these terms, there is a movement toward using "gluten intolerant" to refer to celiac disease rather than NCGS. But that is just my opinion and perhaps, to be honest, a bit of a personal crusade. Actually, we would all be better off if we quit using the those informal terms "intolerance" and "sensitivity" and just speak of celiac disease and NCGS.
    • Jason Dyer
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Jason Dyer · Posted

      Wow. I mean, I REALLY don't want to give up beer, but I NEVER cheat. I get caught (glutenized in my vernacular), but I never cheat. I didn't even know that was a thing...
    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      I wonder why they put dextrose in it?
    • Scott Adams
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Scott Adams · Posted

      PS - Many new celiacs report that they can go gluten-free, with the exception of giving up beer. That seems to be a bridge too far from many celiacs, and may be why nearly 20% cheat on their diets:  
    • Scott Adams
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Scott Adams · Posted

      For those with celiac disease we know that there is a huge range in sensitivity, for example we've had many members here who report that even smelling wheat bread cooking in a bakery, for example a bakery in a supermarket, triggers an immediate gluten reaction that can last days or longer. Is there science to back this up--not that I've seen. Does this mean that it can't happen? Since it does seem to happen to some people, I can't say that there isn't something real happening to these folks.  Similarly there seems to be celiacs who can drink even regular beers, many of which have detectable gluten at under 20ppm, without issues, and many drink gluten reduced beers made from barley on a daily basis without issues, and without elevated antibodies or damaged villi. I also know that some celiacs report getting very sick from a single sip of gluten reduced beer. To be on the safe side it's probably best to stick with a naturally gluten-free beer, however, many of them lack the real beer taste, thus, some celiacs cheat on their diets and just drink regular beer. In this case I think having a choice is important, and drinking a gluten reduced option would be better than regular beer. 
×
×
  • Create New...