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Neurological Manifestations Of Gluten Sensitivity


jcc

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jcc Rookie

I don't usually post here, but would like to share some information about the wide ranging neurological problems associated with gluten sensitvity...with or without celiac disease. Check out Post #3. If anybody seems to fall into this category..please consider stopping by the Braintalk Gluten Sensitivity forum where we have an increased interest in the neurological aspects of gluten sensitivity.

Open Original Shared Link

Cara


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Nevadan Contributor

Cara,

Welcome to the neighborhood. I can second your suggestion to visit the link you listed, particularly for those with neurological presentations and/or for those of us who don't have DQ2 or 8, but do have DQ1's. The site has lots of info regarding what gluten can do to some people even if they don't have celiac disease. I find that site a very good complement to this site.

George

(aka GeoInNV) :)

nettiebeads Apprentice
I don't usually post here, but would like to share some information about the wide ranging neurological problems associated with gluten sensitvity...with or without celiac disease. Check out Post #3.  If anybody seems to fall into this category..please consider stopping by the Braintalk Gluten Sensitivity forum where we have an increased interest in the neurological aspects of gluten sensitivity.

Open Original Shared Link

Cara

<{POST_SNAPBACK}>

Wow! that is impressive! Even more reasons to stay 100% gluten-free!. Also a great resource for those whose drs. AREN'T in the know. Thanks!

Matilda Enthusiast

..

jcc Rookie
Cara, thank you so much so all the superb work you've done.

Matilda

<{POST_SNAPBACK}>

oops...duplicate entry..see next!

jcc Rookie

You're welcome! As time goes on The Gluten File has become a collaborative effort of many, so I don't want to take all the credit for it, but I truly appreciate your kind words and its nice to know the information is making its way around.

The Gluten File began out of pure frustration because although my family looks very much like your average celiac family...we do not have celiac disease...don't even carry the main genes. We are definitely gluten sensitive, though!  I just kept collecting information that I found fascinating...that "fit" and supported our unique presentation...which turns out is not so unique but grossly underrecognized and unacknowledged by most celiac experts.

But,  I have to admit that even I have not read EVERYTHING in The Gluten File! I do think its a great collection of data, though  :P .

If you've been reading Braintalk you probably know my story, but in case anyone else is curious, you can find it second post here:

Open Original Shared Link

Anyone who feels so inclined might want to add their own entry, even if you don't have the time to take on an additional forum. I believe we can learn from each others experiences!

I also believe the more forums the merrier...the more people we can reach. What I find rewarding about Braintalk is that it is this huge umbrella forum of hundreds of neurological, neuromuscular, neuropyschiatric diseases...so we can reach so many people with neurological disease who would never in a million years think of gluten as the culprit...especially when it stands alone without any gut evidence of celiac disease.

This seems like a friendly place. I may pop in and read from time to time! We call it 'boarding around'...lol!

Cara

skbird Contributor

Welcome Cara - nice to see you post over here. I can't believe I haven't seen Al pop in yet... :)

Anyway, always good to help more people make connections, especially about non-Celiac gluten intolerance.

Take care!

Stephanie


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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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