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Do I Have Celiac?

Herreralovv

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Herreralovv Rookie
Herreralovv
Posted

Okay so after i had my baby-boy with c section i was breast feeding and making alot of milk. But then suddenly i wasnt making milk and starting loosing weight. At first i didnt pay no mind i just thought it was because i was breastfeeding, so i stopped. Then after i stopped, i continued to loose weight , and i didnt know why because i was eating alot like always. Over time i continued to get symptoms, which were:

Constipation

Weight loss

Thrush

Gurgling stomach noises

Bloating

Tired

Sleepy during the day

Difficulty falling asleep

Headaches

Hungry all the time

Mood swings

Blurry vision

Leg pain

So i went to doctor but i dont have insurance so i was paying. He suspected celiac. But need to pay 2000 for biopsy. J went on gluten free diet. And i dint feel better right away but i did feel better in couple weeks on going gluten free. I havent gained weight yet, but i havent loose weight either, maybe because i keep eating gluten accidently. When i do eat gluten by mistake i just gets a few symptoms but not bad like before, and some times i get it to the next day. People please tell me if u think i could have this.

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nvsmom Community Regular
nvsmom
Posted

You could have celiac disease or non-celiac gluten sensitivity (NCGS - it has the same symptoms as celiac disease but no villi damage). There are over 300 symptoms and associated problems, and your ymptoms fit in there. Many of your symptoms fit Hashimoto's thyroiditis too, with a swingbetween hyper and hypo symptoms (but I'm not a doctor - just thinking out loud).

The only way to know if it is celiac disease is to test. Could you do the blood tests instead if you want to know? The cost would be less.

dani nero Community Regular
dani nero
Posted

If accidents are happening, or if you haven't taken any safety measures to prevent your food from gluten cross-contamination, then I'm afraid that your diet has not truly been gluten-free. Being on a gluten-free diet means that your food needs to be free from even the tiniest crumb. Please read this post https://www.celiac.com/forums/topic/91878-newbie-info-101/ which will help you understand contamination prevention methods and other things. 

 

By the way, if you're planning on doing any tests later, then you should not go on a gluten-free diet yet, because all tests will come back negative if you're already gluten-free. 

Herreralovv Rookie
Herreralovv
Posted
  • Author

Doctors did test for liver enzymes, and checked my thyoid and it was fine. And also i was doing the gluten diet as changing the utensils. Not using the same griddle i use to make my husband and kid food. But when i go out i always get sick and tired. Like when i tryed the gluten free pizza from dominos, i forgot all about telling them to change the pan to a clean pan.

Lisa Mentor
Lisa
Posted

Pregancy can be a trigger for those who may be predisposed to Celiac.   Do  you have a family history (parents or other family members) of digestive issues, diabetes, thyroid or other autoimmune disorders?  Sometime, as my parents would say "a bad stomach" could be a genetic trait you may have inherited.

 

As mentioned, the Celiac Blood Panel would be less expensive than a colonoscopy/biopsy, but you must remain on a gluten free diet for the optimun accuracy.

 

 

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

Or, you may choose to go TOTALLY gluten free and see how you feel.

 

Hope this helps. :) And Welcome!

dani nero Community Regular
dani nero
Posted

Doctors did test for liver enzymes, and checked my thyoid and it was fine. And also i was doing the gluten diet as changing the utensils. Not using the same griddle i use to make my husband and kid food. But when i go out i always get sick and tired. Like when i tryed the gluten free pizza from dominos, i forgot all about telling them to change the pan to a clean pan.

 

It's gonna be a tough learning curve in the beginning but will become like second nature as time passes. If I'm about to eat at a restaurant, I first ask them about how they go about preventing cross-contamination. If they don't know what I mean, or tell me that they simply wash the pans that were used to prepare glutinous foods very well, I don't eat there. 

Herreralovv Rookie
Herreralovv
Posted
  • Author

From what i know. No one in my family has no kind of diseases. But my mom a while back had gastritis. But she avoided spicy and greasy food, and she got better. But my sister has also been having digestive problems. The doctors tell her she has gastritis, and shes been takeing medicine but hasnt got better. So until i know for sure that i have celiac. I will tell her to test for that. And thanks i will inform my doctor about the blood test. I know, its kinda hard to adapt. But now with my husband supporting me and making sure i dont eat gluten, its gottn easier with your loved ones supporting u.

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Herreralovv Rookie
Herreralovv
Posted
  • Author

Okay but now i just have one question. If i would have gluten sensisity, would i have to worry about cross contamination. Because from what i read, gluten sensitivity isnt as bad as celiac.

dani nero Community Regular
dani nero
Posted

It's really up to you to find out the amount of gluten you react to. We can't figure it out for you because we can't feel what you feel after consuming cross-contaminated food.

The blood test should help you answer that question.

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    • Nicbent35
      3 year old gluten intolerance?

      By Nicbent35 · Posted

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    • Scott Adams
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      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
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      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

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    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
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