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- knitty kitty replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2New Guy Here...
Welcome to the forum, @TerryinCO, Have you been checked for nutritional deficiencies? Damage to the intestines like your doctor found affects the absorption of essential nutrients. Supplementing with B Complex, Vitamin D, and minerals like magnesium help ensure you are absorbing vitamins your body needs to heal. Weight loss is often seen in the malnutrition... -
- knitty kitty replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms27
Can food allergies like milk and soy flatten villi?
Pancreatic elastase is a digestive enzyme that requires Thiamine Vitamin B 1 to be produced. Thiamine is needed to make insulin, too. Thiamine, Niacin B 3, and Pyridoxine B6 are needed to make digestive enzymes and turn carbohydrates, fats and proteins into energy for the body, and for repair and healing of the body. The Gluten free diet can be low in... -
- trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2New Guy Here...
Welcome to the forum, @TerryinCO! Do you know what blood tests were ordered? Was it for like you would have done for an annual physical (CBC/CMP) or celiac disease specific antibody tests? I find it interesting that your GI doc did the endoscopy and biopsy before he/she ordered blood tests to check for celiac disease, assuming the blood tests ordered... -
- TerryinCO posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2New Guy Here...
...so lotsa questions and unknowns for me. Gastro Doc did an endoscopy and found villi damaged so Celiac is suspect/known. Subsequent blood work done and am awaiting evaluation from NP or Doc. I've started gluten free diet and that's going well. I don't have any real symptoms but have lost ~ 10# over last year or so....180 down to 170 ( I'm... -
- Scott Adams replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Enegy level extremely low
@EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August.
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By knitty kitty · Posted
Welcome to the forum, @TerryinCO, Have you been checked for nutritional deficiencies? Damage to the intestines like your doctor found affects the absorption of essential nutrients. Supplementing with B Complex, Vitamin D, and minerals like magnesium help ensure you are absorbing vitamins your body needs to heal. Weight loss is often seen in the malnutrition that accompanies Celiac Disease. Weight loss, Barret's esophagus, and hypothyroidism are related to Thiamine Vitamin B1 insufficiency. Talk to your doctor and nutritionist about supplementing with Thiamine in the form Benfotiamine and other vitamins and minerals. Best wishes for your new journey with Celiac. Keep us posted on your progress. -
By knitty kitty · Posted
Pancreatic elastase is a digestive enzyme that requires Thiamine Vitamin B 1 to be produced. Thiamine is needed to make insulin, too. Thiamine, Niacin B 3, and Pyridoxine B6 are needed to make digestive enzymes and turn carbohydrates, fats and proteins into energy for the body, and for repair and healing of the body. The Gluten free diet can be low in the eight essential B vitamins. Gluten free processed foods are not enriched with vitamins and minerals like their gluten containing counterparts. Supplementing with the water soluble B vitamins can ensure you're absorbing sufficient amounts of B vitamins to keep the body healthy. Benfotiamine is a form of thiamin that helps heal the digestive tract. Benfotiamine and Vitamin D help to reduce inflammation and calm immune responses, so if you are accidentally exposed, your autoimmune response might not be so bad. Supplementing with the B Complex vitamins is beneficial while healing. Have you talked to a nutritionist? -
Welcome to the forum, @TerryinCO! Do you know what blood tests were ordered? Was it for like you would have done for an annual physical (CBC/CMP) or celiac disease specific antibody tests? I find it interesting that your GI doc did the endoscopy and biopsy before he/she ordered blood tests to check for celiac disease, assuming the blood tests ordered were indeed specific for celiac disease. Normally, the sequence is the other way around. Was the GI doc doing the endoscopy for some other reason in the first place? The endoscopy/biopsy is considered the gold standard for celiac diagnosis so I also find it interesting that the doc reflexively felt a need to order blood work as well. Just a heads up in case the bloodwork ordered was not specific for celiac antibodies: Going on a gluten-free diet before the blood draw for celiac antibody testing is done will likely invalidate the testing. You probably know this already but hypothyroidism (Hashimoto's disease) is common in the celiac population and there is a statistical correlation. And then there is the weight loss. And I assume you have suffered with GERD for a long time and that is what led to the Barret's. All symptoms of celiac disease.
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...so lotsa questions and unknowns for me. Gastro Doc did an endoscopy and found villi damaged so Celiac is suspect/known. Subsequent blood work done and am awaiting evaluation from NP or Doc. I've started gluten free diet and that's going well. I don't have any real symptoms but have lost ~ 10# over last year or so....180 down to 170 ( I'm about 6'0 and always been on the scrawny side). I'm 76 and up to now have not had Celiac/gluten issues, but do take hypothyroid meds, and diagnosed/treated for Barret's Esophigus. I'm exploring the site here - looks like a lot of info available. Talk with you later. Make yourself a great day! Terry
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By Scott Adams · Posted
@EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August.
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