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- Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Conflicting results
Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac. But there is a niggling doubt as I try and... -
- Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Conflicting results
As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet. -
- Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Conflicting results
Thank you. The borderline IgA deficiency is something I was wondering. Basically my query comes about because he had been offered an endoscopy to check for coeliac but a colonoscopy to check for IBD. We are keen to go ahead with endoscopy but trying to decide on the colonoscopy and the likelihood of it being coeliac is what is aiding our decision. His... -
- Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Conflicting results
PS - I forgot to mention, was he eating a lot of gluten daily for 6-8 weeks leading up to all blood tests? If not, this can cause lower than normal antibody results. -
- trents replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Conflicting results
Thanks. Now it all makes sense. So, it looks like he may be IGA deficient or on the cusp of it. So, the reliability of the tTG-IGA testing is dubious. Being that the EMA is positive, my money would be on him having celiac disease, especially with the symptoms he is experiencing. The next logical diagnostic step would be to have an endoscopy/biopsy done of...- 1
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Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac. But there is a niggling doubt as I try and make the right choice… I just want him to get better and be happy again!
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By Scott Adams · Posted
As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet. -
Thank you. The borderline IgA deficiency is something I was wondering. Basically my query comes about because he had been offered an endoscopy to check for coeliac but a colonoscopy to check for IBD. We are keen to go ahead with endoscopy but trying to decide on the colonoscopy and the likelihood of it being coeliac is what is aiding our decision. His inflammatory bloods are normal and so are stool tests. We basically are trying to decide the likelihood of being coeliac… If that likelihood is high then we are wondering whether or not to put him through the stress of the prep for the colonoscopy. Or see if the endoscopy confirms coeliac then decide after… He has been eating gluten containing cereal plus toast… Then sandwich plus all snacks gluten! We are naturally a low gluten family as dad is coeliac.
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By Scott Adams · Posted
PS - I forgot to mention, was he eating a lot of gluten daily for 6-8 weeks leading up to all blood tests? If not, this can cause lower than normal antibody results. -
Thanks. Now it all makes sense. So, it looks like he may be IGA deficient or on the cusp of it. So, the reliability of the tTG-IGA testing is dubious. Being that the EMA is positive, my money would be on him having celiac disease, especially with the symptoms he is experiencing. The next logical diagnostic step would be to have an endoscopy/biopsy done of the small bowel lining to check for damage. Has the physician mentioned this? Sometimes they are reluctant to do this on children. Please hear this: Before you attempt to put him on a gluten-free diet or even cut back on his gluten intake, make sure you aren't planning any more testing for celiac disease. Removing gluten from his diet will sabotage any future testing. From the way you spell "coeliac" I'm guessing you are in the UK so I realize there may be stipends and follow-up healthcare benefits available to your son if there is an official diagnosis of celiac disease. But I also understand it can take many months to get a procedure in place with the backlog in your healthcare system.
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