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Bloating, Cramps, Diarreha Still ..................... Attractive!

LolaB

By LolaB
in Coping with Celiac Disease

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LolaB Apprentice
LolaB
Posted

I have been gluten free for 9 months!  1 year scope coming September and cant wait to see if I am healing................ After close to 30 years of being ill and low weight. Finally told I have Celiac and I am not crazy!  I am 5'4" and hanging on to 112............ I know I am very careful, not gluten in my home, all makeup, soaps, shampoos I try my hardest to be gluten free.  But I need to know please, is it "nornal" to still have days of diarrhea? bloating like I am pregnant even after a glass of water at times?  My GI also told me I have IBS, along with most of the world.....when I stress or anxious the same day or a day or two later I will have diarrhea......could very well be my nerves.   I do have to say that I am most definitely a lot better then I was 9 months ago, and my husband reminds me of that when I start to feel low about the days I have diarrhea and bloating or cramps.....it always seems to come in waves ........ feel good......great.....then days when I need an imodium and no matter what I eat I have diarreha!!    Does anyone else understand or going through this?  I mean I can have quinoa for breakfast, green tea then cramp and gotta poop.......weird!   It makes me worry and scared that I am not getting better or I am slowly dying.....sounds dramatic but somethimes thats how I feel.    Please help ........ anyone? :(   thanks!

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IrishHeart Veteran
IrishHeart
Posted

try probiotics yet? getting enough fiber?

burdee Enthusiast
burdee
Posted

I have been gluten free for 9 months!  1 year scope coming September and cant wait to see if I am healing................ After close to 30 years of being ill and low weight. Finally told I have Celiac and I am not crazy!  I am 5'4" and hanging on to 112............ I know I am very careful, not gluten in my home, all makeup, soaps, shampoos I try my hardest to be gluten free.  But I need to know please, is it "nornal" to still have days of diarrhea? bloating like I am pregnant even after a glass of water at times?  My GI also told me I have IBS, along with most of the world.....when I stress or anxious the same day or a day or two later I will have diarrhea......could very well be my nerves.   I do have to say that I am most definitely a lot better then I was 9 months ago, and my husband reminds me of that when I start to feel low about the days I have diarrhea and bloating or cramps.....it always seems to come in waves ........ feel good......great.....then days when I need an imodium and no matter what I eat I have diarreha!!    Does anyone else understand or going through this?  I mean I can have quinoa for breakfast, green tea then cramp and gotta poop.......weird!   It makes me worry and scared that I am not getting better or I am slowly dying.....sounds dramatic but somethimes thats how I feel.    Please help ........ anyone? :(   thanks!

If you're not ingesting any gluten, then you need to consider other possible allergens (or 'intolerances' for people who don't consider delayed reactions allergies). I was not diagnosed with celiac disease until my 50s after a lifetime of symptoms and misdiagnoses.  During that time all the gluten damage to my intestines helped me develop allergies to many common food ingredients. An ELISA blood test and another Enterolab test diagnosed my 6 additional allergies.   Those test results were confirmed by my reactions after abstaining from and then eating the diagnosed foods.   

 

Also you might consider gut bugs, like bacteria, parasites and/or yeasts (like candida).  I was diagnoed with (stool tests) and treated for 8 different gut bugs over a 4 year period.  Then I learned that low stomach acid allowed food born bugs to go to my intestines and proliferate.  So improving my stomach acid also improved my digestion (eliminated gut cramps, reflux and indigestion).

 

I'm not saying that you have anything like i had after years of undiagnosed celiac disease.  However, you might consider other causes of your symptoms, if you know you're not getting any gluten.

AlwaysLearning Collaborator
AlwaysLearning
Posted

Is your tea gluten free? Lots of teas include a variety of ingredients that may be something other than just tea. My WholeFoods stores label gluten-free teas on their shelves with big green tags, and I'm always amazed at how few are actually making the gluten-free grade, though I don't doubt that there are some additional ones in the mix that are safe. There are probably loads of opportunities for cross contamination in the processing.

I'd look for a source of gluten that is slipping in there accidentally in addition to other food allergies, or perhaps before you have to eliminate even more foods.

Else, some vitamin deficiencies can cause IBS symptoms without being actual IBS so you could get your levels checked.

nvsmom Community Regular
nvsmom
Posted

I think a celiac's gut is more sensitive to other foods. I still get bloated and have pain on occassion too, after one year gluten-free. Just yesterday, I had a smoothy with spinach, hemp, cucs, and kiwi fruit and I bloated up mildly but had such pain that I took an ibuprofen (I usually skip pain drugs). I was get cold and clammy it hurt so much... No idea why. :huh:

 

i do know that processed junk food will give me discomfort within 24 hours. I don't feel good when I eat gluten-free bread, and apples and pears make me bloat up like a balloon.

 

My bathroom habits are mostly normal but I get days when i run to the toilet and then other days where I wish I could go...

 

I think it takes a long time to get better. We just need to stay gluten-free, keep and eye out for other food intolerances, and try to be patient.  :(

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    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
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      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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    • trents
      What should I do with these test results?

      By trents · Posted

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    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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