Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mystery Diagosis


KarenCM

Recommended Posts

KarenCM Rookie

I just wanted to let everyone know that a Celiac episode aired today I didn't get the chance to watch it but luckily it is repeating next week Sunday October 23 12noon channel DHC. Did anyone else watch it today?

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

What show is this? Is it a drama or somthing? Never heard of "Mystery Diagosis"... what network carries it?

sb4480 Newbie

I watched it last night. The show is called "Mystery Diagnosis" and it's on the Discovery Health Channel. I think it was the first segment of the show. It told the story of a little boy who was really sick, he kept having seziures and they had no idea why. His mother had celiac disease but her doctors told her it was "rare" and not genetic so not to worry about her family. Well, low and behold, it turned out that his problem was in fact celiac disease but he had atypical symptoms. He had no GI problems at all.

I was so happy to see the subject being discussed. There was also discussion about the fact that celiac disease is not as rare as doctors used to think and should be considered regardless of symptoms if family members have it.

Stephanie

julie5914 Contributor

Yeah, the show usually covers people who go from doctor to doctor, knowing something is wrong but being unsatisfied with what doctors were telling them, essentially not knowing what was wrong. (Sound familiar?) They usually cover a few different people's stories (who have finallly found out what is wrong) in an hour episode. Last time we watched this, my husband said I should be on it - I am glad they are doing one on Celiac.

robbiesmom Rookie

I was thrilled to turn on this new show and discover they were talking about celiac! I taped the second showing so I could have documentation of this when we have to switch doctors or a second child has atypical symptoms. Anyone know when the House celiac episode is to be aired? I hope I didn't miss it!

CeliacMe Rookie

Me too! I was diagnosed with "IBS" 4 years ago and Celiac in July! You know, IBS isn't a diagnosis right? It's something the doctor says when he cant figure out you have diarrhea. LOL I hate doctors!

Yeah, the show usually covers people who go from doctor to doctor, knowing something is wrong but being unsatisfied with what doctors were telling them, essentially not knowing what was wrong. (Sound familiar?) They usually cover a few different people's stories (who have finallly found out what is wrong) in an hour episode. Last time we watched this, my husband said I should be on it - I am glad they are doing one on Celiac.

<{POST_SNAPBACK}>

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      6

      Am I nuts?

    2. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    3. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,837
    • Most Online (within 30 mins)
      7,748

    Chat
    Newest Member
    Chat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.