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Could I Be Celiac?


tljfe9

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tljfe9 Newbie

So right now Im waiting for my blood results but I was wondering what you guys think it could be. So my doctor has tested for almost everything in the book and it has come out negative. When I was little I used to be allergic to everything but then I went to NAET and got "rid" of them. 

 

Heres some of my symptoms:

-Since april I have had on and off constipation ( more of the time constipation then not) and one week diareaha.

-Even though I have had constipation I have lost a significant amount of weight and I eat alot. Also I have stopped exercising do to unhealthy weight and fatigue.

-I have had a lot bloating and constant flatulance and gurgling of the stomach.

-I have had discomfort in my low abdomen but its not really "painful".

-I have been alot more water and im always peeing, but my skin is so so dry. 

-I have had frequent headaches

-Alot of fatigue

- I have got a couple of nose bleeds and I have never had one in my life before this

-I have gotten sick alot

-My sleep has been off

 

I east very healthy with lots of fiber and different food groups. Any ideas???

 


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Mum in Norway Contributor

It's hard to say, but it could be. These are mostly not classic celiac symptoms, but celiac can present in many different ways. It's a good thing you're being tested, hope you get your answers and that you soon will know what is thet matter, so that you can get what ever treetment you need. Good luck to you!

cyclinglady Grand Master

Could be celiac disease, or an intolerance to gluten (my initial symptoms were only thyroiditis and anemia and not the classic celiac disease symptoms).  

 

However, you said you had allergies when you were little.  Bet those allergies (which may have never really went away.....) have come back.  I used to think that my allergies went away during the winter (told my doc this and he laughed).  They didn't really "go away" but my responses did diminish until SPRING!  When pollen counts were high or the wind was blowing dust/mold, my foods reactions came back with a vengeance!

0range Apprentice

Those sounds like a lot of my symptoms! I was dx with "IBS" (which is an umbrella diagnosis for there is something wrong with your gut but we don't know what :P). With gut symptoms - it really could be anything... from food intolerances to celiac to IBD to too much 'bad' bacteria in your gut. Peeing a lot (or being too thirsty) as well as having very dry skin could be an indication of an endocrine issue as well. Best of luck, I hope you get some answers soon! 

Satobsat Newbie

also check for diabetes. I have both type 1 diabetes and im celiac... Your symptoms are very familiar and explains the thirst

1desperateladysaved Proficient

Greetings!

 

I hope you will get some definitive answers soon.  I did have extreme thirst without having diabetes and have been diagnosed as having celiac.  My symptoms included bloating, brain fog, and extreme fatigue.  My bloating occurred without pain.  I am sensitive to scents and fungi.  These also make me bloat.  I think many of your symptoms could be from a gluten problem, and I hope your testing will be helpful.

 

D

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    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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