Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another One? Come On!


Rowena

Recommended Posts

Rowena Rising Star

So now, I'm trying to eat VERY 'cleanly' with my esophagitis, gluten intolerance, and lactose intolerance (with likely casein allergy).  But stupidly, it would appear now that I've got something ELSE I'm not responding to, and I can't figure out what it is.  I itch, and if I had white skin it'd be flaming red.  (I'm a brownie so red doesn't show up on my skin)  And then there is the fact the corners of my mouth are very cracked, and my throat feels swollen.  Faceplant.  NOW what?

 

I am SOOOOOOO frustrated now!  I want to feel good!  Is it too much to ask to figure out EVERYTHING all at once?

 

Also, I'm considering seeing an allergist, but those tests where they see if you flare, I'm afraid nothing will show up because I've got brown skin and don't turn red so they will say I don't have any, when obviously I do...  Are there other alternatives to it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Food diary would help some here. Keep track of everything you eat. You might be able to find a pattern.

 

As for the allergist, it might be good to go see one anyway.

mommy2krj Explorer

I think with the skin scratch tests, it's not so much if you turn red as it is with the amount of swelling. At least that is what I got from it when we did my sons'. If they based it on the redness...my oldest would be allergic to everything while my little guy, not so much.

 

But since they looked more at the swelling, my oldest son has a slight (they were hesitant to even say that) allergy to cats and nothing else. My little guy? His cat reaction took over half his back. There was a good amount of swelling....though the redness wasn't as pronounced. It was there but definitely secondary to the swelling. I'm tempted actually to go back and have them do it again...but without the cat. I think the cat kind of ruined the test for those things around it....it was that bad. :(

GFinDC Veteran

An elimination diet is good way to go.  There are lots of threads about them here.  the advantage of an elimination diet is it will find food intolerances as well as allergies.  But allergy tests won't find food intolerances.

Juliebove Rising Star

Cracking at the corners of the mouth can be a vitamin B defiency.  I have to take a B Complex vitamin or I get that.

 

Not sure what to tell you about the hives.  I get them sometimes and never know the cause.  It's not always from what I eat.  But recently I accidentally ate oats and got hives.  I have an oat intolerance.

 

I also have intolerances to various herbs and spices, including mint.  You might try switching toothpastes.  I currently use one from Greece called Korres.  It's eucalyptus and that took some getting used to.  They also make a spearmint/lime which I can not use.  I did try an unflavored that was recommended here.  I had no problems with it but the lack of flavor was odd.  I got it online at dentist.net, I think.  Might have been .com.  You can also try Closeup which is cinnamon.  If your are currently using a mint toothpaste that is.  Or you can simply try baking soda.

 

You might try eliminating seasonings except perhaps for salt.  See if that helps.  Or it could even be something wacky like lettuce.  I have read several stories recently of people having reactions to lettuce!

Rowena Rising Star

I think with the skin scratch tests, it's not so much if you turn red as it is with the amount of swelling. At least that is what I got from it when we did my sons'. If they based it on the redness...my oldest would be allergic to everything while my little guy, not so much.

 

But since they looked more at the swelling, my oldest son has a slight (they were hesitant to even say that) allergy to cats and nothing else. My little guy? His cat reaction took over half his back. There was a good amount of swelling....though the redness wasn't as pronounced. It was there but definitely secondary to the swelling. I'm tempted actually to go back and have them do it again...but without the cat. I think the cat kind of ruined the test for those things around it....it was that bad. :(

 

Ah its swelling?  Didn't know that!  Thanks that makes me feel SOOO much more relaxed about seeing an allergenist.

 

An elimination diet is good way to go.  There are lots of threads about them here.  the advantage of an elimination diet is it will find food intolerances as well as allergies.  But allergy tests won't find food intolerances.

 

Yeah, I'm thinkin I might do that since eating clean doesn't seem to resolve the issue.  Though since I am eating pretty clean (which includes common allergens, I'm not sure what else to eliminate.)

 

Cracking at the corners of the mouth can be a vitamin B defiency.  I have to take a B Complex vitamin or I get that.

 

Not sure what to tell you about the hives.  I get them sometimes and never know the cause.  It's not always from what I eat.  But recently I accidentally ate oats and got hives.  I have an oat intolerance.

 

I also have intolerances to various herbs and spices, including mint.  You might try switching toothpastes.  I currently use one from Greece called Korres.  It's eucalyptus and that took some getting used to.  They also make a spearmint/lime which I can not use.  I did try an unflavored that was recommended here.  I had no problems with it but the lack of flavor was odd.  I got it online at dentist.net, I think.  Might have been .com.  You can also try Closeup which is cinnamon.  If your are currently using a mint toothpaste that is.  Or you can simply try baking soda.

 

You might try eliminating seasonings except perhaps for salt.  See if that helps.  Or it could even be something wacky like lettuce.  I have read several stories recently of people having reactions to lettuce!

 

 

Yeah the corners of the mouth isn't a B deficiency, I take a vegan B complex (I had NO clue they put lactose in medicines too!  Crazy right?) so I am pretty sure I am good there.  (My GI associates the corners of the mouth cracking with allergies/intolerances too which is why I think there is STILL something else!)

Hahaha intolerances to spices eh... I already know one I can't have... Throat swells up, lips crack and everything for rosemary.  Worst thing EVER!   But yeah, I switched recently my toothpaste to a non mint toothpaste because that is what was recommended for esophagitis since mint can make that flare apparently.  So now I use an antiplaque and whitening toothpaste from tom's made with fennel.  Tastes weird like black licorice (which I hate mind you!) but I'm getting used to it.  But yeah, I had never really heard of allergies/intolerances to spices, but apparently I have one!  (I don't even remember how I discovered it was rosemary actually!)  I know I'm okay with your basic herbs like basil for example, and cinnamon.  But not sure what else.

As for something wacky, I think it really is something wacky since I'm currently eating as clean as I can.  Don't think its lettuce, since I haven't had any rec-- actually scratch that... I did have lettuce a couple times the past week.  Wonder if it could be spinach too... That would SUCK if it was spinach frankly.... I LOVE spinach

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,553
    • Most Online (within 30 mins)
      7,748

    Bariatric Psych Support
    Newest Member
    Bariatric Psych Support
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @TexasCeliacNewbie! The test results you posted strongly point to celiac disease. It is likely that your physician will want to perform an endoscopy with biopsy of the small bowel lining to confirm the results of the celiac antibody bloodwork results you just posted. It is important that you not cut back on gluten consumption until the endoscopy/biopsy is complete, assuming, that is, one is forthcoming.  Can you post the actual reference ranges used by the lab for the tests to determine positive/negative/normal/high/low? Scales used by these labs are different from one place to the other so the raw numbers don't mean much without the scale used by the lab. There aren't industry standards for this. By the way, you probably won't be able to edit the original post so please post the extra info in new post. May we ask about the cancer you mentioned? There are some things that can elevate the antibody test scores, at least mildly, besides celiac disease.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me that otherwise are worrying me that my previous cancer is recurring.  Thank you for all of your expertise in this area! Immunoglobulin A, Qn, Serum 140 (normal) Deamidated Gliadin Abs, IgA 256 (High) Deamidated Gliadin Abs, IgG 65 (High) t-Transglutaminase (tTG) IgA 31 (High) t-Transglutaminase (tTG) IgG 10 (High)
    • trents
      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    • TerryinCO
      Here's the test result I was refering to.  I may not be understanding this correctly.
    • trents
      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
×
×
  • Create New...