Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Gallstones


tka

Recommended Posts

tka Apprentice

Is there a way to tell the difference in celiac symptoms and gallstone symptoms? Been gluten free for 2 months. Just found out I have gallstones.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

I didn't have gallstones, rather a painful gallbladder. For me, the pain would isolated and so bad that i couldn't breathe at times. It made stomach cramps, be they gluten related or a stomach virus type, pale in comparison.

cyclinglady Grand Master

Gallbadder attacks (I had a non-functioning GB), caused me to 1) pass out, 2) wake up and vomit, and 3) severe cramping and diarrhea for up to 10 hours.  The last month prior to my surgery, I had nausea and indigestion.  That's when my gallbladder finally stopped working for good!  Infected and had to come out!

 

Used to be a asymptomatic for celiac disease, but I got glutened 2 days ago at a Red Robin Restaurant (gluten-free menu but poor cross contamination training).  Here are those symptoms:  indigestion, rock feeling in stomach, body aches, headaches, nausea, cramping and diarrhea.  I'm still sick! :unsure:

 

The effects of being "glutened" are becoming more dramatic as time goes by!  Ugh!  

tka Apprentice

Gallbadder attacks (I had a non-functioning GB), caused me to 1) pass out, 2) wake up and vomit, and 3) severe cramping and diarrhea for up to 10 hours.  The last month prior to my surgery, I had nausea and indigestion.  That's when my gallbladder finally stopped working for good!  Infected and had to come out!

 

Used to be a asymptomatic for celiac disease, but I got glutened 2 days ago at a Red Robin Restaurant (gluten-free menu but poor cross contamination training).  Here are those symptoms:  indigestion, rock feeling in stomach, body aches, headaches, nausea, cramping and diarrhea.  I'm still sick! :unsure:

 

The effects of being "glutened" are becoming more dramatic as time goes by!  Ugh!

The extreme burning high in my abdomen that sometimes goes thru to my back and down the side, sometimes with sharp little knife like pains interspersed, I think come from the gallstones. That's different from the area that I have pain from being glutened or just still recovering I think. I agree with the achy muscles and joints and headaches being associated with the celiac...and the fatigue. I belch like crazy with the gallstones more than with the celiac. But I can't seem to tell the difference with the cramping and diarrhea and sometimes the gas associated with them both. It's hard for me to gauge sometimes if I doing well or not on my gluten-free diet. I'm trying really hard, but sometimes something hits me and I wonder what I did wrong. But maybe it's the gallstones instead. Just frustrating!
tka Apprentice

The extreme burning high in my abdomen that sometimes goes thru to my back and down the side, sometimes with sharp little knife like pains interspersed, I think come from the gallstones. That's different from the area that I have pain from being glutened or just still recovering I think. I agree with the achy muscles and joints and headaches being associated with the celiac...and the fatigue. I belch like crazy with the gallstones more than with the celiac. But I can't seem to tell the difference with the cramping and diarrhea and sometimes the gas associated with them both. It's hard for me to gauge sometimes if I doing well or not on my gluten-free diet. I'm trying really hard, but sometimes something hits me and I wonder what I did wrong. But maybe it's the gallstones instead. Just frustrating!

How have you done since getting your gallbladder out? I'm trying to work thru this with diet, but don't know if I'm gonna last.
cyclinglady Grand Master

How have you done since getting your gallbladder out? I'm trying to work thru this with diet, but don't know if I'm gonna last.

It's been seven years since my gallbladder was removed and I was diagnosed with celiac disease in March 2013.  I have had no issues at all since the removal.    I did pass out about two months ago and that seemed like a gallbladder attack.  I had eaten lots of gluten-free tenders that I had fried myself. 

Maybe my bile duct wasn't very happy.

 

I started getting those gallbladder attacks when I was a kid.  Maybe if I had been gluten free, I might have saved my gallbladder.  I encourage you to hang tough and see if you can heal your gallbladder as your intestines heal.   But then, I didn't have stones -- just the family curse of a non-functioning GB.    If you can, keep all your "parts".   But if not, the surgery is not bad at all!

 

Good luck!

tka Apprentice

It's been seven years since my gallbladder was removed and I was diagnosed with celiac disease in March 2013.  I have had no issues at all since the removal.    I did pass out about two months ago and that seemed like a gallbladder attack.  I had eaten lots of gluten-free tenders that I had fried myself. 

Maybe my bile duct wasn't very happy.

 

I started getting those gallbladder attacks when I was a kid.  Maybe if I had been gluten free, I might have saved my gallbladder.  I encourage you to hang tough and see if you can heal your gallbladder as your intestines heal.   But then, I didn't have stones -- just the family curse of a non-functioning GB.    If you can, keep all your "parts".   But if not, the surgery is not bad at all!

 

Good luck!

Thanks. Both my Mom and Dad have had their gallbladder out. They want me to get it taken out. I want to give it a while if I can like you said to see if healing and diet can keep me from having to have the surgery. All of the people I know who have had the surgery felt much better afterwards. But several people I have read on line have had more difficulty after. I am doing better at the two food lists I have to worry about now and my gallbladder episodes are getting better, but I have not had a full-blown, completely debilitating one yet like some describe. My doctor has already said if that happens, he wants me to have it taken out. I am still dealing with bloating and gas, headaches, fatigue and indigestion. But they are better too thankfully most days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Manaan2 replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Hidden Gluten in distilled vinegar

    2. - BIg Nodge replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Opinions on my test results/symptoms

    3. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    4. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    5. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,854
    • Most Online (within 30 mins)
      7,748

    Keithyboy
    Newest Member
    Keithyboy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Manaan2
      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
×
×
  • Create New...