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All Symptoms Point To Celiacs...

Hmcampbell7878

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Hmcampbell7878 Newbie
Hmcampbell7878
Posted

I have had digestive issues for at least 6 years now. It has recently became a major life issue. I have diaharrea constantly unless I take something to control it, bloating, gas but no pain. There is also an urgency in my need to get to a bathroom.....a very big urgency. I have seen my regular doctor and was tested for celiacs, which came back negative. I have also had a colonoscopy, which gave no results. The symptoms I have seen for celiacs, are what I experience. I have an appointment at a large hospital near where I live to try and get some answers. Any input from anyone is welcome.

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cyclinglady Grand Master
cyclinglady
Posted

What about food allergies or intolerances (for example, eliminate all milk products from your diet)?  Parasites?  These also mimic Celiac Disease symptoms.  

0range Apprentice
0range
Posted

Get tested for SIBO and h.Pylori! I found out that this may be causing symptoms in my case

Lock Newbie
Lock
Posted

If you have celiac and your antigens are "burned out" you may test negative on the blood tests. Did the tests include total IgA? Also, I don't believe a colonoscopy will tell you anything one way or the other about celiac. They have to see the upper small intestine. I'm glad you have the appointment for further evaluation. I bet they will schedule you for an upper endoscopy.

Hmcampbell7878 Newbie
Hmcampbell7878
Posted
  • Author

Thank you for all ofthat your responses!! I have tried cutting out dairy, tree nuts and other things with no results. I have had an allergy panel done and I am not allergic to a darn thing. Totally at a loss. My life based on where a bathroom is. My husband jokes that I should start a blog on the condition of bathrooms where ever we go. Fingers crossed that the doctors at U of M can help.

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    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      Oats gluten free?

      By trents · Posted

      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
    • Scott Adams
      Test results

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • Levi
      Test results

      By Levi · Posted

      Search “deamidated gliadin Abs, IgG is 26.6/abnormal high” online for articles on your exact question above, and I’m sure this forum has an expert in explaining your test results as well. 
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