Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thank You

tiredofdoctors

Recommended Posts

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I just want to thank everyone who posts and shares on each & all of the categories in this forum. I have learned so much from all of you, and have been given the strength and motivation to begin and continue my gluten-free lifestyle. I used to be skeptical of things of this nature -- thinking it was just a place to "whine". Boy, was I wrong. I am amazed that I learn something each time I read through a thread. Whether we have communicated or not, I want you to know how much I appreciate your sharing your stories, advice, recipes, coping strategies . . . whatever it may be. It has made a big difference in my attitude toward my disease and in my life. G-d bless you all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

After reading the above...I am certain no offense was intented. Perhaps a simple typo.

We are grateful that we have the benefit of this wonderful site that has been literally, a life saver for many of us. I, too, would like to express my gratitude to all the many that have responded to my posts with question that they have already answered to others that preceeded me.

I, every day, read the posts and add my two cents when I feel I can do it safely and supportively. We are all struggling, if we were not, we would not be here. So, we struggle together and make our way.

Maybe some day, I will be as wise as those who have helped me.

Lisa B.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Some people don't write Gods name out fully because it is too special. They simply took out the "o."

I am glad you found help, tiredofdoctors!!!

Guest jhmom
Guest jhmom
Posted
G-d bless you all.

I would say that means "GOD bless you all".

Guest jhmom
Guest jhmom
Posted

Hi Tired,

I'm glad you found this site helpful, it truly is a wonderful place filled with a lot of information. I believe if it wasn't for this site I would still be suffering on a daily basis and still being told it was IBS as my blood work was always negative for Celiac.

Take care and God Bless you too! :)

Nantzie Collaborator
Nantzie
Posted

If I remember right, in the Jewish tradition (I think?) God's name is considered so holy that you're not supposed to say (or write) it out loud. So when a person is writing about God, they spell it G-d. That way they don't break that rule, but still everybody knows what is meant.

Hopefully I got at least some of this right.

But back to the original content. I'd like to second tiredofdoctors. This is an amazing place. I've never learned so much about something in such a short amount of time. I'm so glad to have found this board.

:D

Nancy

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted
If I remember right, in the Jewish tradition (I think?) God's name is considered so holy that you're not supposed to say (or write) it out loud.  :D

Nancy

<{POST_SNAPBACK}>

I am Jewish and that is true. We write G-d instead of the full form. G-d in full is too holy.

-Jackie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Great, I am truly glad this issue is over........now we can get on to other things.

Thanks to our Jewish friends on board (not-non- religious friends) that easily cleared up an SMALL issue.

We are all bonded here by a common infliction. We come from all walks of life and religion has no place here. I do feel stongly that this forum should be dedicated to the issues that it has been dedicated to...information and support for those inflicted with Celiac Disease.

Thanks for letting me vent. This is a small pet-peeve of mine.

Lisa B.

VydorScope Proficient
VydorScope
Posted

Wow, okay sorry I did not pick up on that! :mellow: My apologies!

Canadian Karen Community Regular
Canadian Karen
Posted

Hi TiredofDoctors!!

I agree totally with you. This board has been a godsend for me also. Without it, I would still be sooooo in the dark about celiac disease because I have learned more here than 50 doctors could have told me in person. But more importantly, I have found friends here that I am so thankful for and consider myself very lucky for knowing them.

Remember, 6 months from now when you are an "old pro" at celiac disease, you are going to be one of the ones people are going to be thanking profusely for sharing your knowledge...... That is what it's all about, people helping people....

Hugs.

Karen

Lisa Mentor
Lisa
Posted
Wow, okay sorry I did not pick up on that!  :mellow: My apologies!

<{POST_SNAPBACK}>

It's okay, don't worry.....Just is a simple mis-communication/or reaction. Keep us with you. We are alll one BIG Family here. We could start a thread about Theology, Sex and Politics............. wouldn't that be interesting. Think that we better stay where we are. Made some good friends here, don't want to go there.

Keep posting, we are all here.

Lisa B.

VydorScope Proficient
VydorScope
Posted
It's okay, don't worry.....Just is a simple mis-communication/or reaction.  Keep us with you.  We are alll one BIG Family here.  We could start a thread about Theology, Sex and Politics............. wouldn't that be interesting.  Think that we better stay where we are.  Made some good friends here, don't want to go there.

Keep posting, we are all here.

Lisa B.

<{POST_SNAPBACK}>

Oh trust me long ago I learn to not even read those threads. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,027
    • Most Online (within 30 mins)
      7,748
    toyatang
    Newest Member
    toyatang
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Celiac pain relief

      By cristiana · Posted

      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By trents · Posted

      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      My son newly diagnosed

      By Nicola McGuire · Posted

      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Celiac pain relief

      By Scott Adams · Posted

      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
×
×
  • Create New...