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LauraTX

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LauraTX Rising Star

Hi Everyone,

My Name is Laura and I live near Fort Worth, TX.  I was diagnosed with celiac via biopsy/blood draw in January 2013, been gluten-free ever since.  I have been reading this forum a lot so I figured I should finally sign up and join in on the fun.  I have a lot of other health problems, too- lupus and common variable immunodeficiency, that kind of limit what I can do some times.  I have a non-gluten-free husband and a cat who is like our child.  That's her in my pic :)  I am a big nerd and I love it.

 

I really enjoy cooking so maybe I will get around to posting some gluten-free recipes that I made for myself out of necessity, since you all know how eating out is.  If anyone is visiting the Dallas/Fort Worth area feel free to contact me and I will help you figure out where to eat. 


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kareng Grand Master

Welcome Laura!

Have you seen the What's for dinner thread? We like to post what we made for dinner, even if its just wine and pretzels! :)

1desperateladysaved Proficient

Hi Everyone,

My Name is Laura and I live near Fort Worth, TX.  I was diagnosed with celiac via biopsy/blood draw in January 2013, been gluten-free ever since.  I have been reading this forum a lot so I figured I should finally sign up and join in on the fun.  I have a lot of other health problems, too- lupus and common variable immunodeficiency, that kind of limit what I can do some times.  I have a non-gluten-free husband and a cat who is like our child.  That's her in my pic :)  I am a big nerd and I love it.

 

I really enjoy cooking so maybe I will get around to posting some gluten-free recipes that I made for myself out of necessity, since you all know how eating out is.  If anyone is visiting the Dallas/Fort Worth area feel free to contact me and I will help you figure out where to eat. 

Hi Laura,

 

Do you know if lupus/celiac are linked.  I mean can you have lupus without celiac?  I hope you will turn your health around!

 

I have a daughter living at GIAL.  Dallas area.

 

D

LauraTX Rising Star

The "Whats for dinner" thread is right up my alley!  I grocery shop once a week (well usually I forget something and go back mid-week) and I plan the meals I am going to make, I am always looking to do something different.  

 

D, I bet you are proud of your daughter to be at a place like GIAL :)  

 

From what I have been told by my doctors, the Lupus, Celiac Disease, and CVID triad of diagnoses are not a surprise, because people with immunodeficiencies tend to develop autoimmune conditions (like your body freaks out and the immune system goes haywire-how my doc explained it), and a lot of autoimmune conditions are very similar and can come in groups.  You can have lupus without celiac and vice versa, but they seem to go together a lot and can mimic each others symptoms.  I see a GI, rheumatologist, and immunologist and I think I have lucked out that they all understand how the other stuff affects what they are treating me for.

 

All these diagnoses were within months of each other, early this year, and I am finally on the right treatment for everything, and slowly getting better :)  It is definitely important for me to take care of all the aspects, though, because they do affect each other.

w8in4dave Community Regular

Welcome Laura :) 

I have Family that live in TX. A lil town called Gun Barrel City :) Lol kinda a cute name :)

I just wanted to say I understand about all the Auto Immune stuff, My friend that has Crones , also has Lupus , RA, and a few other things. Once you have an Auto Immune you can get another like you said. 

 

I will look forward to seeing your post. Good Luck!! :) 

Loey Rising Star

Hi Everyone,

My Name is Laura and I live near Fort Worth, TX.  I was diagnosed with celiac via biopsy/blood draw in January 2013, been gluten-free ever since.  I have been reading this forum a lot so I figured I should finally sign up and join in on the fun.  I have a lot of other health problems, too- lupus and common variable immunodeficiency, that kind of limit what I can do some times.  I have a non-gluten-free husband and a cat who is like our child.  That's her in my pic :)  I am a big nerd and I love it.

 

I really enjoy cooking so maybe I will get around to posting some gluten-free recipes that I made for myself out of necessity, since you all know how eating out is.  If anyone is visiting the Dallas/Fort Worth area feel free to contact me and I will help you figure out where to eat.

Welcome Laura! This is hands down the most educated, supportive loving & funniest group of people I've ever met! I was housebound for 3 years and my celiac family kept me going! I'm actually glad igot celiac because it led me to all of these wonderful folks!

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    • trents
      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
    • Jodi Lee K
      It doesn’t specify if it’s TTG I’m not sure how to tell for that. That would be so sad. We never eat out I try to be so strict. Yes many dental products have gluten! I only use ones that don’t on myself.    No follow up procedure has been done for healing. That is something I will ask about. Thank you for the suggestion.    I don’t take any Magnesium. What would be a good supplement? 
    • trents
      Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think dealing with that issue. Have you had a follow-up endoscopy to check for healing of the small bowel villi? Also, are you taking any magnesium supplements for bone and dental health? Very important. It works together with calcium.    
    • Jodi Lee K
      I’ve had GI issues since I was a baby! They never did any testing and always said diet issues and constipation. Things got a lot worse when I hit 25, eventually got a diagnosis and I am currently 29. Yes, just recently saw my GI doctor in January and things looked pretty good. Very slightly elevated IgA but IgG was good. My ionized calcium is elevated too. I also have hashimotos but my TSH was good. 
    • trents
      Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac antibody levels or healing of the villi?
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