Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

moosemalibu

Recommended Posts

moosemalibu Collaborator

So I have noticed that I have a few swollen lymph nodes popping up on my body. First I noticed my inguinal lymph node and then I noticed a lingual lymph node. Have others had this phenomena? Does it go away? I found this AFTER a gluten-free diet change... I feel like I am having more symptoms now than pre-diagnosis. Is this normal after going on a gluten-free diet?

 

I am fatigued, still having diarrhea, bruising, insomnia, and now lymph node enlargement...sigh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Lymph node enlargement means your body is actively fighting something.  Usually a few enlarged nodes do not mean anything by itself.  I will also say that in my experience, when my nodes enlarge, it is my immune system telling me I'm sick.  It is then up to me to figure out what is triggering my immune system. 

 

Since you are diagnosed celiac, lymph node enlargement in you may be saying that you are still getting some amount of gluten which is triggering your immune system.  I would look at possible hidden gluten.

 

All the best.

 

Colleen

1desperateladysaved Proficient

Me too.  I had some problem with something I ate two weeks ago and feel a lot of nodes.  My practitioner and I are also considering whether a progesterone cream, with some of my allergens caused my issues,.  I was hoping applying it topical would work alright.  Meanwhile, I have never had it this bad, or at least I think I haven't.  I think my body is able to protest louder than ever since I am healing.

 

Jumping on the tramp is supposed to help.  What it did for me is make me feel more pressure in the nodes.  Sometimes things feel worse before better.

 

D

GF Lover Rising Star

Diana,

 

I'm assuming that jumping on a trampoline would help drain the lymph fluid? Is this what your saying?  I would suggest that this may in fact irritate the nodes more. 

 

The appropriate way to stimulate drainage of lymph nodes is to lightly massage the effected area in the direction toward the two main nodes which are located above the belly button and the top of the chest. 

 

Colleen

1desperateladysaved Proficient

Diana,

 

I'm assuming that jumping on a trampoline would help drain the lymph fluid? Is this what your saying?  I would suggest that this may in fact irritate the nodes more. 

 

The appropriate way to stimulate drainage of lymph nodes is to lightly massage the effected area in the direction toward the two main nodes which are located above the belly button and the top of the chest. 

 

Colleen

 

 

Diana,

 

I'm assuming that jumping on a trampoline would help drain the lymph fluid? Is this what your saying?  I would suggest that this may in fact irritate the nodes more. 

 

The appropriate way to stimulate drainage of lymph nodes is to lightly massage the effected area in the direction toward the two main nodes which are located above the belly button and the top of the chest. 

 

Colleen

Yeah, perhaps it is a better preventative than cure. 

D

 

I am sure I heard the information from this party.  http://www.reboundair.com/?gclid=CKfe5qnX8bkCFYwWMgodJW8A8g I also heard it from a gymnastic coach that coached Us Olympic trampoline team.

 

Nevertheless, I did get better, I think I got to the root and it wasn't a need to exercise.

moosemalibu Collaborator

I know I got glutened via Jose Cuervo margarita mixer during my camping trip several weeks ago (I'm 99% sure anyway as they do not list it as gluten-free on their website, whereas other items are listed gluten-free).

 

But other than that one incident I cannot see how I could be getting glutened. I am not saying it is impossible. But I have been going through all my day-to-day items I cook with or vitamins,etc. and I cannot find one that is suspect. I see my GI doc next week so if it's not better by then I'll ask him.  I haven't gotten any flu-like symptoms to make me think I just got a regular cold/flu either.

 

Thanks for your replies!

kareng Grand Master

 

I am sure I heard the information from this party.  http://www.reboundair.com/?gclid=CKfe5qnX8bkCFYwWMgodJW8A8g I also heard it from a gymnastic coach that coached Us Olympic trampoline team.

 

 

 

That is a website that sells trampolines. I wouldn't take medical advice from them.  :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moosemalibu Collaborator

Went to the doctor to figure out the painful swollen lump under the chin. Told me it should subside in 2 weeks and if not to return for follow up and possible ultrasound. Potential swollen lymph node or salivary gland.

moosemalibu Collaborator

Going back in because lump is making it painful to swallow and move my head from side to side and up and down. Has really enlarged and changed the silhouette of my jawline! Crossing fingers.

1desperateladysaved Proficient

Oh, wow!  I hope you will resolve this well and soon.

D

kareng Grand Master

Going back in because lump is making it painful to swallow and move my head from side to side and up and down. Has really enlarged and changed the silhouette of my jawline! Crossing fingers.

 

 

Yuck!  Did they drain it? 

moosemalibu Collaborator

Yuck!  Did they drain it? 

No - it is very firm. They said it could be a cyst or abscess but I have a pending CBC, chemistry, and they did an ultrasound yesterday so I will hopefully know what it is Monday. I hate waiting. I don't think it is related to the Celiacs but it is alarming none the less. I feel like a monster with this thing on my face! 

  • 1 year later...
Kati.o.rose Newbie

I know your lymph node issues was over a year ago, but did you ever find anything more out, about what caused it, etc? And are you doing okay? :) I have an u/s on Friday morning for a similar issue and was hoping to have a possible heads up. Thank you for any expiriences you may have to share.

SMRI Collaborator

Again, I know old post, but Mumps are going around the country so just be aware it could be that.  I had a salivary stone in a gland and oh boy does that hurt!  It was under my jaw to the right of my trachea.  Try massaging the gland from your ear toward your trachea and see if you get saliva out-often with a funky metallic taste.

  • 1 year later...
CELIAC SINCE 2011 Newbie

After being glutened over 1 week ago, I've quickly noticed swollen lymph nodes under my left arm pit and on the left side of my groin area as well.  I have been using hibiclens religiously and it has been going down, plus I have been preparing my own gluten free meals.  I do believe there is a correlation between the two.  I have a call into my doctor to get his opinion on this as well.  I will keep you posted. 

  • 4 years later...
Laudia Newbie
On 9/28/2013 at 8:12 AM, moosemalibu said:

So I have noticed that I have a few swollen lymph nodes popping up on my body. First I noticed my inguinal lymph node and then I noticed a lingual lymph node. Have others had this phenomena? Does it go away? I found this AFTER a gluten-free diet change... I feel like I am having more symptoms now than pre-diagnosis. Is this normal after going on a gluten-free diet?

 

I am fatigued, still having diarrhea, bruising, insomnia, and now lymph node enlargement...sigh

I too have the exact same, although the bruising seem to be much less. 

Scott Adams Grand Master

Hi @Laudia, welcome to the forum! The topic you replied to here is quite old, so you may not get replies from the original posters.

Are you on a gluten-free diet? Have you been diagnosed with celiac disease? If so, it can take up to two years for many of the symptoms to reside.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    2. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    3. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?

    5. - SportySue commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,048
    • Most Online (within 30 mins)
      7,748

    HeatherF
    Newest Member
    HeatherF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
    • KRipple
      Hello, My husband has had issues with really bad diarreah for over nine months now. In mid November, he went to the doctor for what they thought was a bad cold, which two weeks later was diagnosed as bronchitis. A week later, in December, I had to take him back to urgent care and from there, to the emergency room cause his vitals were too low. They said he was having an Addisionan crisis and he spent five days in the ICU. Since my husband has Autoimmune Polyendocrine Syndrome Type II (type 1 diabetes, Addison's and Hashimoto's), I fought for a blood test to determine if he had Celiacs. Given the results of the test, he was told to go to a gastro for an endoscopy. It took two months to get his first appointment with the gastro. Still waiting for the endoscopy appointment. He stopped eating gluten in the hospital and has followed a gluten-free diet since. His diarreah continues to be as bad as before he stopped eating gluten. Still has a horrible cough that makes him hack. His energy is so depleted he pretty much goes to work, comes home and goes lie in bed. He is having issues regulating body temperature. He is barely eating (he's lost 20 pounds since mid-December). Body aches. Totally run down. He has been taking more prednisone lately to try to counter the symptoms.  Today, we went to his endo to discuss these things. She said to continue taking increased amount of prednisone (even though I explained that the increased dosage is only allowing him to do the bare minimum). According to the endo, this is all related to Celiacs. I am concerned because I know that both Celiacs and Addison's can have similar symptoms, but don't know if he would still be having these many symptoms (worsening, at that) related to the Celiac's after stopping gluten two months ago. If anyone in this group has a combination of Celiacs and Addison's, could you please share your experience? I am really concerned and am feeling frustrated. His primary care provider and endocrinologist don't seem to consider this serious enough to warrant prompt attention, and we'll see about the gastro.  Thanks.
×
×
  • Create New...