Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wilson's Disease , Any One Have/ Know Anything About Wilsons Disease

cahill

By cahill
in Related Issues & Disorders

Recommended Posts

cahill Collaborator
cahill
Posted

Not sure if this is the correct forum for this topic since I do not know of any connection to celiacs but I did not know where else to put it ..

 

 

My youngest daughter is being tested for Wilson's disease . Does anyone have Wilsons or know anything about this disease ?

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Wilsons Disease does not have a connection to Celiac Disease.

 

Here is information for you:

 

Open Original Shared Link

 

Good Luck with the testing.

 

Colleen

cahill Collaborator
cahill
Posted
  • Author

Wilsons Disease does not have a connection to Celiac Disease.

 

Here is information for you:

 

Open Original Shared Link

 

Good Luck with the testing.

 

Colleen

Thanks Colleen,

I have not seen any type of connection to celiacs in the limited information I have read.

 

I posted in these forums hoping that  if  some one had first hand knowledge of Wilsons that they could share information with me .

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,233
    • Most Online (within 30 mins)
      7,748
    Josie98
    Newest Member
    Josie98
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Possible (Non)-celiac gluten sensitivity(?)

      By trents · Posted

      Welcome to the forum, @green-blossom! You can develop active celiac disease at any stage of life. It involves possessing the genetic potential plus some triggering stress event that turns the relevant genes on. NCGS (Non Celiac Gluten Sensitivity) is 10x more common than celiac disease but some experts feel it can be a precursor to the development of celiac disease. There is no test at this point in time available to diagnose NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. The difference between the two conditions is that celiac disease damages the lining of the small bowel but NCGS does not. They share many of the same symptoms. Without formal testing, there is no real way to definitively diagnose celiac disease. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% actually develop active celiac disease. So, DNA testing can only be used as a rule out measure, not as a diagnostic measure. Formal testing for celiac disease is normally a two step process. The first step is serum antibody testing. The inflammation of the small bowel lining caused by gluten ingestion in those with celiac disease produces characteristic antibodies that can be detected in the blood. If one or more celiac antibody tests are positive, there is usually a second step of diagnosis involving and endoscopy with biopsy of the small bowel lining to microscopically check for damage to the mucosal lining. This is done for confirmation of the antibody testing but it sometimes foregone if antibody test scores are extremely high. Please hear this. If you intend to pursue formal testing for celiac disease, you must be consuming generous amounts of gluten leading up to the testing dates. That applies both to the serum antibody testing and to the endoscopy/biopsy. If you eliminate gluten from your diet ahead of testing for even a period of weeks, the inflammation will cease, antibodies will begin to disappear and healing of the small bowel lining will begin. In other words, the things the diagnostic testing is designed to look for will disappear. 
    • green-blossom
      Possible (Non)-celiac gluten sensitivity(?)

      By green-blossom · Posted

      Hi everyone, I am new here, and have some questions. I recently discovered that ~15 minutes after eating durum wheat semolina pasta, I get a strange feeling in my stomach area. I have been struggling with stomach aches, bloating and difficulty with bowel movements etc for about 10 years now (im in my mid twenties.) I have tried a lot to fix this, apart from adjusting my diet. Unfortunately I can't cook and mostly eat pasta, pizza, burgers and so on. I tried a lot of other things to fix it, like working out, yoga, meditation and so on. It helps a bit, although I never really felt relaxed in my stomach area, which caused a lot of problems in everyday life. I tried going gluten free for one day. Everything I normally eat, but gluten-free. And I felt much better all day and had no problems with stomach aches or bloating. Now my question is: Could this be a case of celiac disease in my case? (I only 'suffer' from digestive symptoms) ... and is it possible to develop this during 'puberty' or at other stages of life in general? No one in my family has coeliac condition. I didn't have the problem until I was 15. When I was 20, a lot of bad things happened and I was very unhappy and also had IBS symptoms due to extreme stress. Should I see a doctor and is it safe to switch to a gluten-free diet for now?  Thank you. 
    • Scott Adams
      Celiac Maybe a Possibility?

      By Scott Adams · Posted

      The only issue with that approach, is that some restaurants may not want to serve you--if you say you get violently ill, or have a deadly allergy, etc.--remember, at least here in California, businesses can decline to serve you.
    • trents
      Gluten free vitamins

      By trents · Posted

      @llisa, have you also been diagnosed with celiac disease? You don't actually say but we have assumed that.
    • llisa
      Gluten free vitamins

      By llisa · Posted

      I had bariatric surgery in 2018. My doctor put me on multiple vitamins, D3, and calcium (in the form of 2 Tums daily). My endocrinologist monitors my levels of these things, as well as my diabetes and Hashimoto's.
×
×
  • Create New...