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Does Anyone Understand?


Rae

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Rae Apprentice

Hello everyone. I am new to the board and only been diag. with celiac disease for 3 weeks.

Since then, trying my hardest to do a gluten-free diet, I have been extremely tired , weak, have nausea, and feel confused. Problem is I am a full-time student and work and it is getting harder by the minute. I decided to withdrawal from a course and I explained my problem to the college; however, I get the feeling that they just do not understand. They said to stick it out bc if I decide to w/drawal then they will have to take away from finacial aid and scholarship. I cannot afford that, but I cannot afford to keep up either. They just dont get the severity of the situation- having celiac disease. Did anyone else have a similar problem? I am going to keep on fighting to keep my financial aid, but I am so fustrated that they wont accomadate me for just one semester. Thanks for listening, feels good to vent.


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MySuicidalTurtle Enthusiast

I was diagnosed with Celiacs right before I graduated High School. I haven't really had any trouble in college (knock on wood). I used to tell my professors about my Celiacs and that sometimes I may have to leave early from a class if I get sick and such. They usually said we'd deal with it if any problems came up. Now, I just don't tell my professors unless a problem comes up. Maybe you should stick with it and deal with your professors rather that the institution. The whole situation seems to bad and I hope you figure something out.

GC1 Rookie
Hello everyone. I am new to the board and only been diag. with celiac disease for 3 weeks.

Since then, trying my hardest to do a gluten-free diet, I have been extremely tired , weak, have nausea, and feel confused. Problem is I am a full-time student and work and it is getting harder by the minute. I decided to withdrawal from a course and I explained my problem to the college; however, I get the feeling that they just do not understand. They said to stick it out bc if I decide to w/drawal then they will have to take away from finacial aid and scholarship. I cannot afford that, but I cannot afford to keep up either. They just dont get the severity of the situation- having celiac disease. Did anyone else have a similar problem? I am going to keep on fighting to keep my financial aid, but I am so fustrated that they wont accomadate me for just one semester. Thanks for listening, feels good to vent.

<{POST_SNAPBACK}>

Hang in there!! You're very likely to start feeling better any time now... actually, the first 4-6 weeks can be the worst. Your body is going through a major change, and that includes expelling toxins to rebuilding the damage from nutritional deprivation. And don't make the mistake too many with celiac disease do; don't diet/starve your recovery process. Your body will begin to heal once gluten is eliminated, and that requires quality/nutrient rich foods. Choose ones best suited for your genetics, but supply the whole, fresh, green, raw, etc, foods you've only absorbed partially in the past.

Hang in there, and good luck!

GC

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    • cristiana
      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
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    • Bebygirl01
      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
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