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kerri124

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kerri124 Apprentice

I was just diagnosed with Celiac 2 days ago. Now that the inital shock has worn off I have been doing some research online and I found this message board. I just wanted to introduce myself. I'm Kerri 29 and I beleive that I've had Celiac for at least 7 years if not longer. I have ALOT of symptoms including recurrent miscarriages. I've had 4 in all. My dr has put me on a detox program and of course the diet. I just wanted to ask you all how long it takes before you feel better?? Now that I know what I'm dealing with I'm anxious to feel better!! I have been to many many drs through the years all of which could not find the problem so they said it was "all in my head" I am sure you guys have been through all that before as well. I look forward to getting to know everyone soon! :)


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kerri124 Apprentice

My name is Kerri and I've just been diagnosed with Celiac 2 days ago. I believe I've had this disease for the last 6-7 years. I've been to many many drs before only to be told that "it was all in my head." I'm sure many of you had the same problem. They now believe that this was the cause of my 4 miscarriages. I just have a quick question. Once you started the gluten-free diet how long did it take you to feel better? I look forward to getting to know you all soon. Thanks.

travelthomas Apprentice

Hi Kerri,

It does seem to take a bit of time. I'm starting to feel really good after about one and a half years. I do have to mention that there were quite a few accidents with gluten. Now I just cook all my own food in my own space, and cook from raw food. The only processed food I eat is canned salmon from Thailand (Chicken of the Sea). I figure the Thai people do not even eat gluten lunches in the salmon factory.

I think the biggest trick is to find a diet that works for you. I can eat fish, brown rice, chicken, and vegetables. That's about it. I gave up drinking anything but water. I know it sounds a bit extreme, but it works for me. I'll do whatever it takes to feel good. B)

Good luck with your gluten free diet. :D

Laura Apprentice

Hi Kerry,

Welcome here.

It seems like people have widely varying times before they start feeling better. That partly depends how much damage had been done before they were diagnosed, but also it seems to vary for other reasons that are less clear. It's hard for me to know how quickly I felt better, since my symptoms weren't totally clear-cut so I didn't know they had been symptoms until they were gone for a while. I bet that going gluten-free with really help you not miscarry again. One of the very first changes I noticed when I did it was that I went from getting my period only every two or three months to being close to regular, so it can definitely have an effect on fertility issues.

I feel like cheering every time someone comes here having finally gotten diagnosed as celiac. Not because it's such a picnic giving up gluten, but because their lives are going to improve so much. Maybe not right away, but sooner or later it is going to make such a difference to your health.

(Oh, and I eat more things than travelthomas. I still cook for myself most of the time, and it's hard to eat out a lot of places, but I have lots of foods I can eat. Definitely read the food and recipes sections here, though.)

lauradawn Explorer

I have been gluten-free for 3 weeks now, and I am already starting to notice some improvements.... granted I have a long way to go, but I see improvements already!!

celiacfreeman Contributor

TOTAL IMPROVEMENT in 3 months

my symptoms were

night blindness

fatique

skinny

dark circle under eyes

anemia

ostepenia (this will take awhile to reverse)

waking 2 or 3 times a night to use facilities

hemoroids

gained 16 pounds in 3 months and feel like running a race.

Had sympton for a least 9 years

Lisa F

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      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
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