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24 Hour Urine/follow Up Labs

eers03

By eers03
in Coping with Celiac Disease

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eers03 Explorer
eers03
Posted

Apparently my creatinine clearance is sky high and my proteinuria is high.  I don't have the numbers yet.  My doc is still waiting on my blood work.  My blood work was completely clean sans my deamidated gliadin as recently as January of this year so I don't my blood work is going to reveal a whole lot.

 

I was referred to a urologist last year and did a pretty full workup for my prostatitis at that time.  Everything was fine from a cyst-retro/PSA perspective.  I have never had a 24 hour urine though and asked for one from my PCP last week.  

 

My PCP is waiting for my blood work to come in and compliment my results.

 

I have a little fat on my liver, Absent IGA, some bone/joint aching, and pinker than my usual for the eyes.  Those are my current symptoms.  No noticeable swollen lymph nodes, no edema, no swelling of my joints, no low back pain...

 

Not sure what to make of this.  Trying to figure out I'm going to incorporate a kidney friendly diet into my gluten-free and still maintain weight.

 

Thoughts?

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GF Lover Rising Star
GF Lover
Posted

Is there a reason your looking at a kidney friendly diet?  You said you are still waiting for test results from your PCP.  The prostrate tests look good.  Are you concerned about a fatty liver?  I'm not quite understanding what your asking.  If your willing, give a little more information about your specific concerns.

 

Colleen

surviormom Rookie
surviormom
Posted

I am not sure if this is a good place for this, but this is the third time, that in a check-up, my son, who is now 13, has to give a second sample.  He had keytones? in his urine yesterday.  It happened last year as well and the year before.  So this is becoming routine.  The number was low, so they want to check him again, same thing they said before.  Before the second samples were good.  So, what is going on here, is this a red flag to anyone?  And if so for what?  It is a red flag to me, but I have not a clue to what, just that it should not be ignored, year after year.

GF Lover Rising Star
GF Lover
Posted

Here is information on Ketones.

 

Open Original Shared Link

 

You should consult his Doctor with your concerns.

 

Colleen

frieze Community Regular
frieze
Posted

he is burning fat for energy..

GF Lover Rising Star
GF Lover
Posted

he is burning fat for energy..

Frieze,  this occurs in Type1 Diabetes.  There are also other reasons for having Ketones. 

 

Survivormom, I assume the Doctor has ruled out Diabetes?

 

Colleen

frieze Community Regular
frieze
Posted

if you follow Atkin's you will "spill" ketones, from burning fat for fuel.

Frieze,  this occurs in Type1 Diabetes.  There are also other reasons for having Ketones. 

 

Survivormom, I assume the Doctor has ruled out Diabetes?

 

Colleen

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surviormom Rookie
surviormom
Posted

I will check that page out Colleen, but to answer your question, no not yet.  So far he passes on the second urine test.  I think its because it is usually later in the day.  He always has had a good breakfast before we go, but that is all, breakfast.   I like morning appts.  The return visits for the second test have been in the afternoon, works in the schedule better, so I see a pattern.  Just wondering why the doctor has not and if I should point it out or if I just need to let him do his job.  We all know when it comes to what gluten does to our bodies the doctors make mistakes, well, can something be being missed here too?  My house is gluten-free for me and 2 other sons, so for the past year, he only consumes gluten when he is out with friends.

 

Thank you, for the direction.

surviormom Rookie
surviormom
Posted

he is burning fat for energy..

That explains why he has NO fat.  We do not really follow any diet except totally gluten-free in the house.  If he is outside of the house as a party he may eat something gluten-free.  I try to go paleo, but do not force it on the family, just the gluten-free is forced on the whole house.  He eats well, plenty of meat, and veggies at dinner, lunch is 2 PBJs on gluten-free bread (UDI) and breakfast is an egg, I put bacon and gluten-free toast out for all so I am never sure how much he gets of that, but he is a one-two egg eater.  

 

Thanks for the insight, you see the same result over and over and you just wonder should the doctor want to test something else...

eers03 Explorer
eers03
Posted
  • Author

Is there a reason your looking at a kidney friendly diet?  You said you are still waiting for test results from your PCP.  The prostrate tests look good.  Are you concerned about a fatty liver?  I'm not quite understanding what your asking.  If your willing, give a little more information about your specific concerns.

 

Colleen

I guess I am curious if anyone else had experience with proteinuria and increased creatinine clearance levels.  Both numbers were high for me on the 24 hour urine test.  I do have a high protein diet and that week I did go on two endurance bicycle rides (relative to me) for the first time in quite awhile.  I've also been highly stressed from work.  From what I can gather those can be potential reasons for the increased creat but the protein is stress on the kidneys.  I didn't know if there is something I can do to get the proteinuria number down.  I think the creat can correct itself.

 

9 months ago all of my Mayo labs were within the reference ranges with the exception of my deamidated gliadin.  Surely, my blood serums haven't went from normal to tanking in just 8 months?  My creat clearance was 155 for 24 hour urine and my protein was 146.  I don't have any swelling around my ankles.  I have some intermittent bone aches and joint pains but nothing that I am medicated for.  I'm not short of breath.  So, I'm concerned about my kidney health but as far as daily life goes, I'm fully functional and took my bicycle for a 19 miler up and down hills non-stop the other day.  So "I think" I'm healthy overall considering but was taken back by my 24 hour urine metrics.

GF Lover Rising Star
GF Lover
Posted

I will check that page out Colleen, but to answer your question, no not yet.  So far he passes on the second urine test.  I think its because it is usually later in the day.  He always has had a good breakfast before we go, but that is all, breakfast.   I like morning appts.  The return visits for the second test have been in the afternoon, works in the schedule better, so I see a pattern.  Just wondering why the doctor has not and if I should point it out or if I just need to let him do his job.  We all know when it comes to what gluten does to our bodies the doctors make mistakes, well, can something be being missed here too?  My house is gluten-free for me and 2 other sons, so for the past year, he only consumes gluten when he is out with friends.

 

Thank you, for the direction.

Surviormom,  because the ketones release in the first drops of urine the morning test is showing it.  It's not surprising that the second test is then clear.  I would follow up with the doctor and point out the difference in tests knowing that the first test in the morning is showing the ketones.  I would want to know why if it were me.

 

Hope you get some answers.

 

Colleen

GF Lover Rising Star
GF Lover
Posted

I guess I am curious if anyone else had experience with proteinuria and increased creatinine clearance levels.  Both numbers were high for me on the 24 hour urine test.  I do have a high protein diet and that week I did go on two endurance bicycle rides (relative to me) for the first time in quite awhile.  I've also been highly stressed from work.  From what I can gather those can be potential reasons for the increased creat but the protein is stress on the kidneys.  I didn't know if there is something I can do to get the proteinuria number down.  I think the creat can correct itself.

 

9 months ago all of my Mayo labs were within the reference ranges with the exception of my deamidated gliadin.  Surely, my blood serums haven't went from normal to tanking in just 8 months?  My creat clearance was 155 for 24 hour urine and my protein was 146.  I don't have any swelling around my ankles.  I have some intermittent bone aches and joint pains but nothing that I am medicated for.  I'm not short of breath.  So, I'm concerned about my kidney health but as far as daily life goes, I'm fully functional and took my bicycle for a 19 miler up and down hills non-stop the other day.  So "I think" I'm healthy overall considering but was taken back by my 24 hour urine metrics.

As you probably read, your protein number was very high.  The protein from your blood could be leaking into the urine because the kidney filters may be damaged.  Did your Doctor say he would follow up with a UACR test?  Also, in early kidney disease you may not have any symptoms ie: swelling.  And since your tests 9 months ago were fine, it would be early in the process.  The creatinine number being high would go hand in hand with the high proteninuria number.  I think additional testing would be something to consider.  Here is some good information for you to read:

 

Open Original Shared Link

 

If it is the start of declining kidney function, I don't think a change in diet will suffice.

 

Let us know how this shakes out for you.  I am happy to help you research and you can bounce off your thoughts.

 

Colleen

eers03 Explorer
eers03
Posted
  • Author

My blood serum results came back spot on.  My deamidated gliadin plummeted from 83 last time to 15!  My GFR, blood calcium, potassium, creat, etc., were perfect.  

 

I'm going to stick with some of my halftime adjustments to diet and keep plowing forward.

surviormom Rookie
surviormom
Posted

Surviormom,  because the ketones release in the first drops of urine the morning test is showing it.  It's not surprising that the second test is then clear.  I would follow up with the doctor and point out the difference in tests knowing that the first test in the morning is showing the ketones.  I would want to know why if it were me.

 

Hope you get some answers.

 

Colleen

Clear again.  I pointed out that this was the third time this has happened and the time of day as well as his eating habits.  The answers were just little pats on the head, and trust us, answers.  Basically, he had not had enough to drink to flush it out of his system yet.  No explanation as to why it was there in the first place.  Do we all have them there in the morning?  NO.  And it was explained to me that their testing is just simple in office testing its not a serious test, it is to catch a real problem, no problem here.  I am concerned that there is.  I obviously have had health problems my whole life that doctors ignored because it did not look like a serious problem to them.  Where do I take him from here if I want this looked at further?

frieze Community Regular
frieze
Posted

closest pediatric endocrinologist, renal maybe

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