Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get Tested?


Mellon7373

Recommended Posts

Mellon7373 Newbie

Hey all, i'm new to this. I currently believe I have a gluten intolerance and have already started a gluten free diet, I want to know whether you think it is worth going through all the tests if they might not give me a definitive answer. I'm really scared of doctors and hospitals and needles, so I want to know if it will be worth the stress it will put me through. I have read a lot about gluten intolerance being varied from person to person and I think that I have to work out how much gluten I can have without reacting. I think looking back I may have had this for maybe a year without realising, but recently have been really ill and I think this might be why. I'm not completely opposed to a gluten free diet as i'm trying to lose weight anyway. I know that it may already be in my genes as one of my cousins has had it severe since birth. Any help would be useful so I can make the decision about whether to get the doctors involved.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

If you have Celiac disease, then no amount of gluten is acceptable. So no taking the burger off the bun, eating non gluten-free oats, etc. Knowing that you have Celiac would let you know how careful you need to be and any other medical issues you need to keep track of.

It is best to get tested for celiac before going gluten free because you need to be eating gluten for a prolonged period of time before testing.

The Gluten Free .diet is not meant to be a weight loss diet. In fact, if you eat any of the replacement gluten-free foods, like bread or pasta, it often has more calories than the gluten version.

Mellon7373 Newbie

I understand it's not specifically for weight loss but at the moment I'm focusing more on what I eat and replacing things like pasta with rice and filling up on vegetables, which is better than what I was eating. I will go to the doctors tomorrow and see if I can get a blood test as I've only been gluten free for one day.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,373
    • Most Online (within 30 mins)
      7,748

    EvsMommy
    Newest Member
    EvsMommy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Levi
      I have taken D2 50K oral capsules once weekly for 7 years consecutively due to a dangerously low deficiency level of 17. It took 3 whole years before I reached D level 34, followed by higher D levels up to low 70s. Two or three times throughout the following 4 yrs my labs would show slight high TSH (hypothyroidism). Is it possible that the last 4 of the 7 consecutive years of D2 50K which gradually increased my D levels to 60s & 70s is causing current labs of high TSH, even though for at least the last 4 months I have reduced my D2 50K intake to half dosage, every other week vs. weekly? 
    • Scott Adams
      Untreated celiac disease is associated with arthritis and other autoimmune diseases which can cause such pain. These categories have research articles on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fibromyalgia-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/arthritis-and-celiac-disease/
    • Paula Andrews
      Hi! Did anyone experience severe body aches prior to being diagnosed?  Last year I suddenly experienced widespread pain, completely unexplained. After numerous tests with normal results I was diagnosed with fibromyalgia in August and started taking Cymbalta, which helped about 80%. Now other than pain, I did not have any additional fibromyalgia symptoms.    In the following months I started experiencing diarrhea, to the point where it was constant. In January I was diagnosed with celiac disease and microscopic colitis after having an endoscopy/colonoscopy. I've been gluten-free since that day and recently my pain level has dropped to ZERO.  I'm starting to wonder if I even have fibromyalgia, or if all of my symptoms were celiac and colitis.  I've seen several doctors and no one suggested this, but from what I'm reading it sounds possible.  The fact that I was diagnosed with two different diseases within a few months also seems odd. Has anyone else experienced all-over body aches with celiac?  And if so did the pain end after eliminating gluten?  Unfortunately I don't know anyone who has either celiac or fibromyalgia to talk to.
    • Scott Adams
      Understood, and with any positive blood test the usual next step is a biopsy to confirm celiac disease, and this would be true even if the tTg-IgA is negative.
    • Levi
      ADA, if that applies to you, has specific procedures, guidelines, rules, and regulations for employers to accommodate employees with disabilities. Check with your company HR Dpt. As Scott has mentioned this would be a quick fix, with the protection afforded employees with disabilities through ADA there is no need for you to job hunt. Hope this helps.    Ps. Coeliac Disease is now a listed Disability in the U.S.  
×
×
  • Create New...