Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Going To Be A Long Week


Misty073

Recommended Posts

Misty073 Newbie

My blood test results should be in by next Thur/Fri but I'm feeling awful...not that I don't always feel exhausted, this past week I have just felt so run down and "out of it". Headaches, stiff neck puffy eyes etc. And my tongue is so sore I can barely eat.

Also I'm starting to wonder about my 7 year old daughter? She has constipation issues (despite eating lots of fruit, veggies and fiber). But she always has tummy aches :(

I'm thinking if my results come back neg I'm going to try gluten free and see if that helps us.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

My blood test results should be in by next Thur/Fri but I'm feeling awful...not that I don't always feel exhausted, this past week I have just felt so run down and "out of it". Headaches, stiff neck puffy eyes etc. And my tongue is so sore I can barely eat.

Also I'm starting to wonder about my 7 year old daughter? She has constipation issues (despite eating lots of fruit, veggies and fiber). But she always has tummy aches :(

I'm thinking if my results come back neg I'm going to try gluten free and see if that helps us.

 

Regardless of results, removing all gluten once testing is complete is a good idea as many more folks are gluten intolerant rather than celiac.  

 

That being said...with your daughter's symptoms she too should have a complete celiac antibody panel and nutrient testing before removing all gluten as once you remove gluten you lose giving the tests the best opportunity for accuracy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,374
    • Most Online (within 30 mins)
      7,748

    jbayer
    Newest Member
    jbayer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Levi
      I have taken D2 50K oral capsules once weekly for 7 years consecutively due to a dangerously low deficiency level of 17. It took 3 whole years before I reached D level 34, followed by higher D levels up to low 70s. Two or three times throughout the following 4 yrs my labs would show slight high TSH (hypothyroidism). Is it possible that the last 4 of the 7 consecutive years of D2 50K which gradually increased my D levels to 60s & 70s is causing current labs of high TSH, even though for at least the last 4 months I have reduced my D2 50K intake to half dosage, every other week vs. weekly? 
    • Scott Adams
      Untreated celiac disease is associated with arthritis and other autoimmune diseases which can cause such pain. These categories have research articles on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fibromyalgia-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/arthritis-and-celiac-disease/
    • Paula Andrews
      Hi! Did anyone experience severe body aches prior to being diagnosed?  Last year I suddenly experienced widespread pain, completely unexplained. After numerous tests with normal results I was diagnosed with fibromyalgia in August and started taking Cymbalta, which helped about 80%. Now other than pain, I did not have any additional fibromyalgia symptoms.    In the following months I started experiencing diarrhea, to the point where it was constant. In January I was diagnosed with celiac disease and microscopic colitis after having an endoscopy/colonoscopy. I've been gluten-free since that day and recently my pain level has dropped to ZERO.  I'm starting to wonder if I even have fibromyalgia, or if all of my symptoms were celiac and colitis.  I've seen several doctors and no one suggested this, but from what I'm reading it sounds possible.  The fact that I was diagnosed with two different diseases within a few months also seems odd. Has anyone else experienced all-over body aches with celiac?  And if so did the pain end after eliminating gluten?  Unfortunately I don't know anyone who has either celiac or fibromyalgia to talk to.
    • Scott Adams
      Understood, and with any positive blood test the usual next step is a biopsy to confirm celiac disease, and this would be true even if the tTg-IgA is negative.
    • Levi
      ADA, if that applies to you, has specific procedures, guidelines, rules, and regulations for employers to accommodate employees with disabilities. Check with your company HR Dpt. As Scott has mentioned this would be a quick fix, with the protection afforded employees with disabilities through ADA there is no need for you to job hunt. Hope this helps.    Ps. Coeliac Disease is now a listed Disability in the U.S.  
×
×
  • Create New...