Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bowels During Early Dx


africanqueen99

Recommended Posts

africanqueen99 Contributor

I am not a celiac, but I'm looking for any guidance you can provide.

 

My 1.5 y/o is ready to start using the toilet and transitioning from diapers.  She was DX about a month ago and has been 100% gluten-free for two weeks.  During that time I've seen her stools become more of a "normal" consistency and at much more regular intervals.  I wouldn't say that her bowels are anywhere near the best they can be, though.

 

My question: how long did it take your bowels to really regulate?  Did you have many bowel changes (going from diarrhea to constipation) during those early months?

 

Like I said, she's showing clear readiness to get out of diapers, but I want to recognize that this might not be the best time for her as her body is changing and repairing itself.  If you have kids you know that the window of them wanting to "take the plunge" is pretty small so I don't want to over think this if that's what I'm doing!

 

Any guidance you have is appreciated.  And, if you're not interested in sharing this totally TMI topic on a public forum please feel free to PM me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



w8in4dave Community Regular

Awweee good luck with potty training!! Yea I know weird talking about the big "D" on a forum! But yea thats what we do! I actually had a better time with mine about 3 days in. It is different with everyone tho. so be for warned! I eat fresh fruits and veggies and fresh meat now. It is sooo much better for me! I really try to refrain from the processed foods! I am eating better than ever! Every time I get a processed food in me I seem to have a problem.. I hope some of this helped! I hate to see kids suffer! I wish it didn't have to be this way! But lucky you found it while she was young. Good luck! 

Adalaide Mentor

She may heal more quickly because she is so young. She also may heal quickly because she she hasn't gotten old enough to have been eating enough gluten to cause the amount of damage some of us older people had. It took me 34 years to get a diagnosis. It only took 2-3 months to start going and have it be at least someone normalish. It did take about a year for me to end up regular as clockwork. During those first 2-3 months I would flippity flop back and forth, just like I always had but it seemed to become less and less of an issue every day.

 

If she feels like she's ready and after just a few weeks gluten free is at the point already where she knows when she has to go with enough time to get to a bathroom (which in my experience as an undiagnosed child is honestly the biggest part of the problem) then imo go for it. If the potty chair is a little more difficult to clean, maybe they make liners for it? At least she'll be going!

nvsmom Community Regular

Hopefully her BM's will continue to normalize as you potty train. That "urgency" could even make the fact that a BM is coming more obvious to her. If she is ready for the potty, I say go for it.  Waiting for her BM's to be normal could take some time. I'm guessing it will be a bit faster for her because of age but it can take months to get normal... I'm close to 1.5 years gluten-free and I'm still waiting for it.  LOL

cap6 Enthusiast

I agree with Adalaide ~ children heal so quickly as opposed to us adults.  At 3+ years I am just starting to be "normal", altho to be honest I have never been normal so not sure what normal is!    I would probably go with what your little one is telling you.  If she acts ready then give it a try. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,130
    • Most Online (within 30 mins)
      7,748

    Anna Poulin
    Newest Member
    Anna Poulin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Skg414228
      Okay yeah that helps! To answer your last bit my understanding was that you need to have multiple tests to confirm celiac. Blood, biopsy, dna, and then I think symptoms is another one. Either way I think everything has to be confirmed with the biopsy because that is the gold standard for testing (Doctors words). You also answered another question I forgot to ask about which is does a high value push to a higher % on those scales. I truly appreciate your answers though and just like hearing what other people think. Digging into forums and google for similar stuff has been tough. So thank you again!
    • trents
      The tests outlined in the article I linked are rated according to "sensitivity" and "specificity". Sensitivity refers to how well the test does in not missing those who actually have the disease being tested for, in this case, celiac disease. The DGP-IGA test is estimated to have a sensitivity of 75% to 95%.  Specificity refers to how well the test does in not producing a positive score to medical conditions other than the one being tested for, in this case, celiac disease.  The DGP-IGA test is estimated to have a specificity of 90% to 100%. Obviously, in your case there is no issue with sensitivity. So, the only remaining question would be in relation to specificity. It is my observation from participating in this forum for many years and reading the posted test results from many, many forum contributors, that the likelihood of misdiagnosis due to a specificity issue diminishes greatly with high test score numbers. Still, there is a slight chance it could be due to something else. Think about it. If this were not so, why would your GI doc even be scheduling you for a biopsy?
    • Flosdiner
      How cold is Ottawa in winter?    
    • Skg414228
      It is interesting you mentioned that it could be other things because I asked my gastro and she literally said it means nothing else. That that value was only considered for Celiac which is kind of why I asked here because I didn't understand how a celiac only value could be high and it wasn't celiac. 
    • Skg414228
      I did read this article and all it helped me determine was that I am too dumb lol. Plus with DGP IGA 75-95 is a huge range. I was also confused on if it meant 75-95% of people with positive dgp iga have it or if it meant that of 100% of the people that have Celiac 75-95% this value will be positive.  Most of my symptoms are GI related but the other one that stands out is inflammation. It almost felt like I had body aches and I have soreness right now that I don't have when I am on the paleo diet full time (which is gluten free when you never cheat on it, which I was occasionally). My doctor suspected Raynauds but never did a blood test for it, and then I have had ADHD which I can't remember if it was directly related or not. I have a healthy mix of a lot of stuff going on so honestly it would be a relief if it was celiac because I could at least manage that. Im a pretty healthy person exercise daily high intensity and endurance and a pretty good diet but I haven't been able to lose weight in like 7 years. 
×
×
  • Create New...