Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Causes Of Gastritis And Changes In The Duodenum


Renaye

Recommended Posts

Renaye Contributor

 I had to get a new gastro and he did an upper and lower gi yesterday.  Everytime someone does these, the results are the same.  I get a handout for h-pylori but my test will end up negative.  It looks like celiac but the biopsy will come back negative too.  I have a positive p anca but my colon is normal.  So I am waiting for this doc to get the results back.  I have a positive ana and have "sicca" now. Not sure what will evolve from that.  What else could be causing the gastritis and inflammation in my duodenum?

 

Scared of answers but wish I had answers.....

 

Renaye


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Well, I recently had a post-DX follow up biopsy and while I am healing, I have evidence of gastritis ( but neg for h.Pylori ) and it is my understanding that gastritis can be caused by a number of things: 

  • Certain medications, such as aspirin, ibuprofen, or naproxen, when taken over a longer period of time
  • Drinking too much alcohol
  • Infection of the stomach  with Helicobacter pylori

Less common causes are:

  • Open Original Shared Link (such as Open Original Shared Link)
  • Backflow of Open Original Shared Link into the stomach (bile reflux)
  • Cocaine abuse
  • Eating or drinking caustic or corrosive substances (such as poisons)
  • Extreme stress
  • Viral infection, such as cytomegalovirus and herpes simplex virus, especially in people with a weak immune system

Trauma or a severe, sudden illness such as major surgery, kidney failure, or being placed on a breathing machine may cause gastritis.

Open Original Shared Link

 

Since I do/have none of those, my guess is I did just sell my house and move 1300 miles away and we're building one right now, so maybe it's stress-related. Not sure, but I quit coffee and wine and took an acid reducer for a week and I feel much better.

 

I hope you can figure out what's going on. 

mommida Enthusiast

On my daughter's report after her endoscopy with biopsy there were still signs of gastritis.  She had the testing done to monitor the Celiac and Eosinophilic Esophagitis damage.  Like I said the main reasons for having the testing done for eosinophil activity and the gastritis was not even mentioned by the doctor.  I read it in the report.

IrishHeart Veteran

yes, my doctor was not even concerned about the gastritis. I read it on the report too and asked him about it.

He was more interested in the intestinal scarring I have from not being

Dxed all my life. He found it "fascinating". 

nutritionguy Rookie

 I had to get a new gastro and he did an upper and lower gi yesterday.  Everytime someone does these, the results are the same.  I get a handout for h-pylori but my test will end up negative.  It looks like celiac but the biopsy will come back negative too.  I have a positive p anca but my colon is normal.  So I am waiting for this doc to get the results back.  I have a positive ana and have "sicca" now. Not sure what will evolve from that.  What else could be causing the gastritis and inflammation in my duodenum?

 

Scared of answers but wish I had answers.....

 

Renaye

Upper GI and lower GI normal--that's good.  The fact that you have positive p anca, ana, and "sicca" suggests to me that some time of autoimmune phenomenon may be involved here.   Are there any autoimmune diseases in any of your relatives?  Whatever the case, take heart because even if it is some type of autoimmune phenomenon, it is my firm belief that it can be significantly improved through exercise and optimal diet--diet that is rich in healthful substances and which minimizes inflammatory substances.  Without optimal diet and exercise, the immune system will not function in the healthiest fashion.  So have you been diagnosed with any diseases for which you are presently on any medications?  Are you overweight?  Do you know what your fasting blood sugar is?  By the way, when you say that your biopsy "looks like celiac but the biopsy will come back negative too", was the biopsy done after you had been eating a gluten-free diet for a long period of time?

Renaye Contributor

I am taking plaquenil due to fatigue and mild joint pain.  Obviously the rhuemmy doctor believes I have something.  Upper GI was done a year prior to fatigue and then 6 months after a gluten-free diet.  I am being tested in February for a whole bunch of things like lupus, sjogren's, mixed connective and scleroderma.  It has been negative in the past.  RA runs in the family on my dad's side and gluten intolerance runs on my mom's side.  I am afraid I have something ugly but it hasn't appeared yet.  I eat healthy and walk a mile 3 times a week. I am under weight.  I stay on the gluten-free diet as I feel that it will help with whatever I have.  I have looked at diets to heal the gut because I feel that this is where the problem begins but have no clue where to start at.  I don't want to drink raw milk or eat fermented foods.  Sounds like it will either make me sick or burn up my esophagus.  Who knows...I get GI results sometime this week and then will wait to see what the rhuemmy doctor comes up with in February.

 

Renaye 

nutritionguy Rookie

I am taking plaquenil due to fatigue and mild joint pain.  Obviously the rhuemmy doctor believes I have something.  Upper GI was done a year prior to fatigue and then 6 months after a gluten-free diet.  I am being tested in February for a whole bunch of things like lupus, sjogren's, mixed connective and scleroderma.  It has been negative in the past.  RA runs in the family on my dad's side and gluten intolerance runs on my mom's side.  I am afraid I have something ugly but it hasn't appeared yet.  I eat healthy and walk a mile 3 times a week. I am under weight.  I stay on the gluten-free diet as I feel that it will help with whatever I have.  I have looked at diets to heal the gut because I feel that this is where the problem begins but have no clue where to start at.  I don't want to drink raw milk or eat fermented foods.  Sounds like it will either make me sick or burn up my esophagus.  Who knows...I get GI results sometime this week and then will wait to see what the rhuemmy doctor comes up with in February.

 

Renaye 

 

The key here is to optimize the function of your immune system.  And although you think you eat healthy, the fact is that most Americans do not because they are not sufficiently knowledgeable about nutrition and how the foods they eat can help or hinder.  An excellent book that I highly recommend was written by a physician who developed brain cancer (glioblastoma multiforme), went through surgery and chemotherapy, had his brain cancer recur, and subsequently kept the cancer in check for the next 10 years by applying the latest discoveries in nutritional research to guide his diet.  For this type of cancer, this was quite extraordinary.  Unfortunately, he recently passed away from the cancer.  His name was David Servan-Schreiber, M.D, PhD, and the title of the book was Anticancer--A New Way of Life.  (The book can easily be found using Google and entering the word "anticancer"; it will be right at the top of the list of web pages selected.)  In the book, he makes some of the following recommendations:  Eat whole foods and keep away from foods containing added sugars.  Avoid grain fed cattle, chickens, and eggs as these are very high in omega-6 fatty acids which promote growth of cancer cells and promote inflammation, the latter of which is not good for people with autoimmune diseases in my opinion.  In the US, you will not be able to find 100% grass fed chickens or their eggs, and you will have to look around hard to find cows that are 100% grass fed.  Just to give you an illustration of what grain feeding does to chickens, studies have shown that eggs from grass fed chickens have an omega 6 to omega 3 fatty acid ratio of about 1 to 1, whereas eggs from grain fed chickens (even if it is organic) is about 20-30 to 1.  The conclusion is obvious.  As for "farm raised" fish which are also raised on grains (like tilapia), the problem is the same: high in omega 6 fatty acids.  On the other hand, wild caught fish do not have this problem.  As for an ideal diet, most carbohydrate should be complex carbohydrate--not simple sugars that are found in fruits.  I, myself, am a type 1 diabetic for almost 40 years, only on insulin and no other medications, and have absolutely no complications from my diabetes because I diligently control my blood sugars through optimal diet and daily exercise.  I also follow many of the recommendations in Servan-Schreiber's book.  I agree with you that healing the gut is key.  Is your diet high is simple sugars or fruits?  Do you know what your fasting blood sugar is?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I am taking plaquenil due to fatigue and mild joint pain.  Obviously the rhuemmy doctor believes I have something.  Upper GI was done a year prior to fatigue and then 6 months after a gluten-free diet.  I am being tested in February for a whole bunch of things like lupus, sjogren's, mixed connective and scleroderma.  It has been negative in the past.  RA runs in the family on my dad's side and gluten intolerance runs on my mom's side.  I am afraid I have something ugly but it hasn't appeared yet.  I eat healthy and walk a mile 3 times a week. I am under weight.  I stay on the gluten-free diet as I feel that it will help with whatever I have.  I have looked at diets to heal the gut because I feel that this is where the problem begins but have no clue where to start at.  I don't want to drink raw milk or eat fermented foods.  Sounds like it will either make me sick or burn up my esophagus.  Who knows...I get GI results sometime this week and then will wait to see what the rhuemmy doctor comes up with in February.

 

Renaye

Waiting for the GI results sounds wise. Maybe you could see if you could get an appointment with the Rheummy doc sooner?

Renaye Contributor

All biopsies came back negative....good news but it doesn't explain intestinal damage and constipation.  I think my blood sugar is within normal levels.  I don't eat much fruit or sugar. 

 

Renaye

kareng Grand Master

All biopsies came back negative....good news but it doesn't explain intestinal damage and constipation. I think my blood sugar is within normal levels. I don't eat much fruit or sugar.

Renaye

If the biopsies were negative - what intestinal damage? I think I missed something.... Oh...I see..they see inflammation but the biopsies are negative?
GFinDC Veteran

Hi Renaye,

 

Biopsies should come back negative for villi damage if you have been eating gluten-free for a while.  That would be normal.  Testing for celiac disease should always be done before going gluten-free, as the immune response decreases after the gluten is removed.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Opinions on my test results/symptoms

    2. - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

    3. - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

    4. - knitty kitty replied to plumbago's topic in Related Issues & Disorders
      3

      Anyone else with very high HDL?

    5. - Nicbent35 replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,889
    • Most Online (within 30 mins)
      7,748

    Missymid
    Newest Member
    Missymid
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees.  The 600 mcg of Liquid Iodine helped.  Also good for hair, nails, skin and brain fog.  Another good thing for brain fog is phosphatyl choline.  It is essentil for acetylcholine- a brain chemical. I have familial hyperlipdemia and instead of a statin I got a prescription for Nicotinic Acid, 2000 mg a day.  I was already taking 500 mg a day and was really surprised when my HDL when up to  44 and I began sleeping better and my legs and back are getting more flexible.  In addition after the first few doses of itchiness I get a warm fuzzy feeling Raising your vitamin D is crucial.  Low vitamin D allows the immune system to run amuck. intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe).  Look at Thiamin deficiency. consistently ran hot, was always cranking the a/c, to someone who wears a down vest.  Any combination of deficiencies in B1, B2, B3, B5, choline and Iodine can cause this.  Likely all of them. After a lifetime of mouthbreathing GFD cleared my sinuses.  Post nasal drip is my first symptom of cross contamination nowaday.  
    • Wheatwacked
      If you mean continueing on Gluten Free my answer is yes.  She showed significant improvement in her behavior and that translates to a happy family.  Do get her tested as sooon as you can.  You might want to investigate genetic testing for Celiac Disease.  Children recover more quickly than adults.  It took my son about 6 months on Nutramigen before going to regular food, gluten free.  Blood tests are not always accurate in very young children. You may be advised to see a gastroenterologist instead of relying on blood tests results. Logic: She is better off gluten than before.  Wheat flour has no nutritional value and has an omega 6: omega 3 ratio of 22:1.  Our bodies do better at 3:1.  Omega 6 causes inflammation. When my son was diagnosed, back in 1976, his doctor recommended my wife and I also go gluten free.  We declined and lived to regret it.  I started GFD at 63 and have spent the last 10 years undoing the damage, some of my symptons went all the way back to my childhood and things I lived with all my life got better.
    • Wheatwacked
      Hi @Nicbent35,             When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration.       With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing.  In the meantime, though, continue on GFD.  Her health is more important than convincing a doctor.  Bring videos of her behaviors if you can.  Even if the blood tests and biopsy prove negative, that is part of the diagnosis process for NCGS and later when she is recovered you can always do a Gluten Challenge.      This is an important time in her developement.  Celiac Disease causes malabsorption syndrome, leading to malnutrition, regardles of what she eats.  Though NCGS may not cause malabsorption, it will affect food choices which can lead to malnutrition.  There may be benifits that an official diagnosis may have, but they don't trump a healthy child.      Get her healthy, then worry about validation later.  Celiac Disease is difficult to diagnosed, especially in children, because doctors look for antibodies in the blood and young children have immature immune systems.  Also you don't mention any gastrologic symtoms and celiac disease is traditionally considered gastrolic only.  Not true.  There are over 200 symptom that celiac disease and the accompaning malnutrion mimics or causes that often causes misdiagnosis and delay in recovery. While at the doctors, ask them about vitamin D deficiency and Iodine deficiency in particular. Milk being the primary source of iodine in the diet, but concerns exist regarding the lower iodine content in organic milk and reduced milk consumption in certain demographics.  Vitamin D deficiency is 40% of the industrialized population and a recent study in the Great Britain showed a wopping 60%, beaten only by some areas of Canada at 70%. And B1, B2, B3, B5 and B6.  Deficiencies in these are common in untreated Celiac Disease and they affect energy production. Are You Confused About Your Celiac Disease Lab Results?
    • knitty kitty
      @plumbago, Are you taking any folate with your B12?   Folate helps regulate HDL levels.  You may try taking a methylfolate supplement with your B12.   If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency despite supplementing, resulting in HDL levels not getting regulated, but running high or low.   Pushing the envelope in explanations, too. P. S. Are you taking a B Complex?  Folate and B12 Cobalamine need enzymes made from B6 Pyridoxine's interaction with Thiamine, and B2 Riboflavin's interaction with Thiamine.  Is your Vitamin D low?
    • Nicbent35
      Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her?
×
×
  • Create New...