Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am In A Funk


ItchyAbby

Recommended Posts

ItchyAbby Enthusiast

I have been feeling bad in the afternoons - shaky, nauseous, really tired, irritable. I feel marginally better when I eat something, so maybe it's a blood sugar thingy. But it's hard to eat when I am queasy.

 

And the #&$%ing rash - just ebbs and flows as it pleases, disrupting my sleep, my work, everything.

 

I am paranoid lately, totally convinced that something in my kitchen is contaminating me. I keep finding things that I am uncertain about - did I get this out of the bulk bins? Was this certified gluten free? I am loathe to throw them out - this gets expensive! But, I am not using it anyway, so....

 

I also got a flu shot yesterday and I think it is making me feel even more awful. I am super tired today.

 

And the anxiety - not as bad as it was before going gluten free, but still there and oh-so-tiresome.

 

*sigh*

 

I want my life back. I want to just have one day without itching, anxiety, sleeplessness, irritability, crying, fear and/or just not feeling so great. Just one day. Please.

 

Sorry for the pity party rant. And thanks for being here to hear me rant. I'm going to go cry now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Oh, I am sorry to hear you are having such a rough time. I have no medical advice or recommendations but just know I am thinking of you. There is always hope. ALWAYS. Hang in there, ok? Maybe have a hot cup of tea and a nice long bath with a good book.

w8in4dave Community Regular

I know how you feel!! I have been in a Funk also ... I know when your first Dx'd you do question everything!! The things I got out of the big bins, I wasn't sure about ,I gave to friends who can use it. I cannot take the chance. But lately something has been bothering me and I am not 100% what it is!! I think tonight I figured it out! I am hoping it isn't what I think it is, but I will check it tomorrow. I get a bit depressed and then I shut down. I close out my friends, I don't answer the phone. I even had quit posting in here then one of the Mods emailed me and I said I was in a funk. When I seen your post I thought , I don't remember posting that!! Lol I hope you feel better soon!! Make a log of everything you put in your mouth! It may help... Good luck

GF Lover Rising Star

Listen up you two Funky girls.  Healing is a process and can be a dreadfully long, aggravating and painful process. 

 

Abster,  re-read the DH threads and what Squirmy has has told you and concentrate on being as comfortable as you can.  Get as much rest as you can.  No iodine, no wheat products on skin and clean diet.  You have to get through this part to get well.  

 

Waitin,  there are no quick cures out there.  Only time will help.  You've drastically changed your diet.  Your body needs to catch up to your thinking.   I use the 15 minute rule.  For every 15 minutes of activity, follow with 15 minutes of rest.  Your body can't heal it if is stressed out.

 

About a year ago my life changed.  I had to accept that I now have certain restrictions.  I fought it like hell but only hurt myself by not accepting my new level of abilities.  It takes a lot of patience to get to the place where you don't feel completely overwhelmed by what life has thrown at you.

 

You guys are going to be alright.  Keep your eye on the goal.  Keep things in your life simple for now.  Listen to some music, gaze out a window, take a long walk.  Savor each day for what it is... LIFE

 

Colleen 

ItchyAbby Enthusiast

Thanks, you guys. It helps to have you all here. I really am doing better than I was, but some days...I just don't got it, you know? I try so hard and work so hard to keep my head up and for the most part I am succeeding. But today, it just fell apart. And I get so scared. This thing scares me so much. I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

And I am pissed that I had to miss my sewing class tonight. I love my sewing classes, they are important to me. But I was feeling so not good (probably from the flu shot) that I just did not think it was a good idea to go. And that just sucks.

 

I took a bath, drank tea and then my sweetheart hugged me while I cried, then rubbed my feet and we watched a show together. He's a treasure.

Marilyn R Community Regular

Thanks, you guys. It helps to have you all here. I really am doing better than I was, but some days...I just don't got it, you know? I try so hard and work so hard to keep my head up and for the most part I am succeeding. But today, it just fell apart. And I get so scared. This thing scares me so much. I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

And I am pissed that I had to miss my sewing class tonight. I love my sewing classes, they are important to me. But I was feeling so not good (probably from the flu shot) that I just did not think it was a good idea to go. And that just sucks.

 

I took a bath, drank tea and my sweetheart hugged my while I cried, then rubbed my feet and we watched a show together. He's a treasure.

At  end of the day, your time spent with your sweetheart was way more important than your sewing class IMHO.  There's always next week...

NoGlutenCooties Contributor

 I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

 

I know this can be easier said than done sometimes, but try not to get twisted over what MIGHT happen.  If something bad happens, freak out about it WHEN it happens.  Because whether or not you freak out about it BEFORE it happens, you're going to freak out when it happens anyways... and there's just no sense in freaking out about it twice.  And if it never happens... you saved yourself from an unnecessary stressful, twisted, freak-out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ItchyAbby Enthusiast

At  end of the day, your time spent with your sweetheart was way more important than your sewing class IMHO.  There's always next week...

True that. It was no hardship staying home, cozy by the fire with him.

 

I know this can be easier said than done sometimes, but try not to get twisted over what MIGHT happen.  If something bad happens, freak out about it WHEN it happens.  Because whether or not you freak out about it BEFORE it happens, you're going to freak out when it happens anyways... and there's just no sense in freaking out about it twice.  And if it never happens... you saved yourself from an unnecessary stressful, twisted, freak-out.

You are right, I know this. I do so well at this sometimes, but this week...eck. I am worn down a bit, I think. I am in the middle of a flare that has been non-stop for almost three weeks. Again, not as bad as it was back in the spring, but it is disruptive nonetheless. It's almost like I have PTSD - my reactions to anything feeling even slightly off in my body go way overboard.

 

But really, freaking about about the unknowns does me no good. Thank you for the reminder

w8in4dave Community Regular

Listen up you two Funky girls.  Healing is a process and can be a dreadfully long, aggravating and painful process. 

 

Abster,  re-read the DH threads and what Squirmy has has told you and concentrate on being as comfortable as you can.  Get as much rest as you can.  No iodine, no wheat products on skin and clean diet.  You have to get through this part to get well.  

 

Waitin,  there are no quick cures out there.  Only time will help.  You've drastically changed your diet.  Your body needs to catch up to your thinking.   I use the 15 minute rule.  For every 15 minutes of activity, follow with 15 minutes of rest.  Your body can't heal it if is stressed out.

 

About a year ago my life changed.  I had to accept that I now have certain restrictions.  I fought it like hell but only hurt myself by not accepting my new level of abilities.  It takes a lot of patience to get to the place where you don't feel completely overwhelmed by what life has thrown at you.

 

You guys are going to be alright.  Keep your eye on the goal.  Keep things in your life simple for now.  Listen to some music, gaze out a window, take a long walk.  Savor each day for what it is... LIFE

 

Colleen

 

TY Colleen, 

I know I am feeling a lil better and I needed that lil "Talk" I actually think bootin Corn out of my diet is helping me also. I just keep needing a boot I guess!! Funny one of my biggest sayings when my kids were small was "Patients is a Virtue" I don't have patients. But I will really try to be patient! It is hard but I will try my darndest! What other option do I have really? I will be ok!! I am taking care of me!! I just hate this tho! I can do the diet! I can restrict eating what ever they tell me to! It is just the feeling like I do.. But I will push thru it! I will make it!! Thanks for the pep talk!  :)

w8in4dave Community Regular

Something happened up there lol you get the jest! TY! 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,136
    • Most Online (within 30 mins)
      7,748

    kfkynett
    Newest Member
    kfkynett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium.  B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy, that burning sensation.   (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC9804944/ ) Long Covid can be the result of nutritional deficiencies, as well.  Zinc, Selenium, Vitamin D, B12, Thiamine, Riboflavin, Pyridoxine, Niacin, and Choline.  (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC10015545/  and https://pubmed.ncbi.nlm.nih.gov/36587225/ ) I agree with @Wheatwacked to get Vitamin D level higher, 80 ng/ml.  Taking high doses of Vitamin D to correct a deficiency has been found to be beneficial.  I took Vitamin D3 supplements throughout the day when I had a severe deficiency.  It got my level up quickly and I started feeling much better.   (See... https://pubmed.ncbi.nlm.nih.gov/28167237/ , https://pmc.ncbi.nlm.nih.gov/articles/PMC4824637/) Vitamin D is a fat soluble vitamin.  Fats can be difficult to digest and absorb, so most of the newly diagnosed can be low in the four fat soluble vitamins (A,D,E,K).  A deficiency in Vitamin A can cause dry eyes.  Omega Threes and Evening Primrose Oil help with dry eyes, too.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10363387/) Blood tests are not accurate measurements of vitamin levels.  Blood tests will reflect any supplements being taken.  Blood tests do not measure how much of a vitamin is stored inside cells.  Supplementing with all eight essential B vitamins for several months will boost your ability to absorb the needed nutrients. A deficiency in Cobalamine, B12, can be aggravated by anesthesia.  Cobalt in Cobalamine binds irrevocably, irreversibly with the Nitrogen in anesthesia, rendering B12 useless.  Supplementing with B12 after exposure to anesthesia is beneficial.  (https://pubmed.ncbi.nlm.nih.gov/8250714/) Pyridoxine B6 and Riboflavin B2 as well as B12 are needed to lower histamine levels (produced during the inflammation process that occurs in Celiac Disease). This can help relieve the sinus pressure.  Riboflavin B2 and Thiamine B1 are helpful with headaches.   We need more Thiamine when we are emotionally stressed, physically ill, and physically active.  Benfotiamine, a form of Thiamine, has been shown to promote intestinal healing.  Thiamine is helpful in relieving anxiety.   (https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/  , https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ ) Celiac Disease causes malabsorption of vitamins and minerals.  It is rare to have a single vitamin deficiency.  Malabsorption in celiac disease affects all the nutrients we need.  Some vitamins just run out sooner than others because they can't be stored or we have a metabolic need for more.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10106602/ ) Hope this helps!
    • Jtestani
      My question is .. my test results Ttg (IgA 1.7 u/ml & IgG 3:3 u/ml)  both negative & DGP IGG 7.1025 negative but DGP IGA postive at 36.2007 U/ML.  Am I showing a negative test result?  any insight helps as I have to wait till new year for next Doctor’s appt.  Thanks 
    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • John.B
      Hello, Target recently changed their branding on the Up & Up Loratadine and no long have it labeled gluten free. I've not been able to find any meds labeled gluten free for allergies. Some lists showed them but the the packaging isn't labeled.  Wondering if anyone knows of or has a list that would be safe for Celiac kiddos.
×
×
  • Create New...