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Blood Tests Are In


SimonSez0721

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SimonSez0721 Rookie

Ok, so, I have an advance copy of my blood work from last weeks celiac panel but do not have an appointment to go back to have a consultation until December 2. I'm hoping some of you will be able to help me interpret these numbers.

In addition to gas, bloating, and cramps, I am also currently suffering with the following:

Fibromyalgia, CFS, migraines, myofacial pain syndrome, degenerative disc disease, patellofemoral syndrome, benign hyper-mobility, insomnia, anxiety and depression secondary to living with chronic pain for 25 years, kidneystones, and a recent gallbladder removal secondary to pancreatitis.

It appears to me, however, that Celiac might not be the cause of all that ails me?

tTG. 19. 19 or less = normal

Endomysial <1:10

Reticulin Antibody negative

A few non-celiac but interesting numbers:

ESR Sed rate 8

Lipase 16

Basophil% Reference range 0.0-5.0%. Mine is 0.6. They've never checked this before for me. Hm, that's of some interest...

Does anybody have any thoughts?

thank you in advance, your input to my previous post was so amazing. I am so grateful for everyone's insight!

Thank you,


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nvsmom Community Regular

I'm guessing that your doctor will probably declare you normal because your results are technically in range, but I don't know if I agree. With your symptoms, and a borderline tTG IgA, I think celiac disease could be a possibility for you. An EMA titre of 1:10 is sometimes sonsidered positive as well (depends on the lab). If that is the case with you, then I think celiac disease is pretty much a sure thing. An EMA test is only positive when the damage to the villi is pretty extensive and the disease is well established - it's very specific to celiac disease.

 

Good luck with your appointment. Are staying on gluten until then?

SimonSez0721 Rookie

Thank you for your reply,

Yes, I am staying on gluten until after my doctor reviews my labs and decides whether or not to request an endoscopy. He did say that he felt the lab work was not super reliable, so maybe he will feel like following up with additional studies it they are close enough to being weak positive.

I was remembering, that my daughter, was having daily stomach aches at the age of 8. Her doctors were never able to find a cause but casually mentioned once, "Oh, by the way, we tested you for food allergies. You are allergic to peanuts, egg whites, and wheat."

Hm. Curious.

nvsmom Community Regular

Allergies are a different part of the immune system than what is affected by celiac disease,although celiacs do seem to have many allergies. Allergies are through the immunoglobulin E (IgE) system whereas celiac disease is in the IgA (mucosal linings) and IgG (system wide dealing with pathogens). There could be a link, but I personally don't know of it.

JustCricket Newbie

Basophils are one of the white blood cells. I believe they are associated with allergy and correlate with IgE. (Stretching my study of Immunology from a few years ago.) 

 

My neutrophil and C reactive protein (both associated with inflammation) were tested a few years back, so this is just another check on your immune system, to see if there is a possible infection or allergy going on. 

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    • trents
      I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
    • Celiacsugh
      Encouraging to hear others have had this pain and thanks for the responses   yes I was checked, no H pylori. 
    • trents
      We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
    • Celiacsugh
      Hi! Yes I have, endoscopy didn’t show anything other than celiacs. I’ve been wondering if it’s possibly that my intestines are so damaged that the wine is irritating because they have not fully healed. Very odd, I felt better for a few weeks and then all the sudden started noticing the pain again after the weekends when I drink wine (don’t drink during the week). I’ve also heard that dull left side pain isn’t a common symptom with celiacs so my diagnosis was surprising to doctor as well though the pain did initially subside with gluten-free diet. 
    • trents
      Welcome to the forum, @Celiacsugh! Have you been checked for a gastric or peptic ulcer?
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