Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amount Of Gluten In Single, Small Bread Crumb?

powerofpositivethinking

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

 Gallbladder problems are a serious family curse!  

 

I'm not sure I'm expecting any answers, but it's nice to vent!

No one in my family has a gall bladder left. It was the first of several organs I lost.  <_<

 

I read what you wrote and my first thought is

Two parents with celiac...maybe a totally gluten-free home is not a bad idea. I am sure you had her tested, correct?

 

and my second thought was

You'd have to eat a boatload of cookies to get up to the level that article is talking about, hon.

I sincerely doubt your certified G F flours are the culprits.

 

Chances are the CC is coming from something else. Or your symptoms are from something other than gluten.

Hope you figure it out. I know it's exasperating to feel lousy and not know why. I've just had a bout of it myself, but since I did  some detective work, I am getting back to feeling better now. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

I'm a little late to the party. FWIW I'm a 3/5 missing a blood and gene test. I am diagnosed, and it happened very weirdly, but I have always been curious about which genes I have. Now that I have actual, real, non-total-crap insurance (yay! & ty husband!) I am going to find out if I can make them pay for it to satisfy my curiosity. Just because. If not, I will eventually pay for the test for the sake of keeping my curiosity from eating me alive. It's just not in my budget atm though.

surviormom Rookie
surviormom
Posted

 Sure, why not? I'm blaming a recent one I had....for everything. :lol:

My husband says I am starting to blame gluten for everything.  

IrishHeart Veteran
IrishHeart
Posted

My husband says I am starting to blame gluten for everything.  

If by "everything", he means your health history, well, yes. Gluten is to blame.

 

But if by "everything", he means you blame gluten for the glitch-filled obamacare website, the stupid twerking fad, the blown call in the Patriots game, etc etc...then, you have to stop doing that. (it may be true, but we can't prove it) :lol:

dilettantesteph Collaborator
dilettantesteph
Posted

So, I've been sick for two weeks now.   

 

I have been letting in gluten items into the house for months.

 

Two weeks ago, I started baking like a fiend using gluten-free certified flours.  

 

It's so darn hard to figure out since my gluten free husband is not sick.  But, I know, that each one of us is different and he's been gluten-free for over 12 years and has healed from any damage.  Maybe he can have some tiny gluten exposure with no visible effects.  

 

I suppose the best approach (before going to the doctor) would be to go grain free and stop allowing all gluten in the house temporarily.  What do you think?

 

Cycling Lady, I am so sorry that you are having a reaction to figure out.  I don't know if this is the case for you, but for me, my mind stops working well when I am having a reaction and that makes a difficult challenge much more challenging.

 

I hope my little summary with bolds added of your own words might help.  It looks like the first thing to try is to stop baking, and go back to what you were doing two weeks ago.

 

I do think that I can put up with a lot more contamination when I am well healed.

 

I hope you feel better soon.

 

Stephanie

surviormom Rookie
surviormom
Posted

If by "everything", he means your health history, well, yes. Gluten is to blame.

 

But if by "everything", he means you blame gluten for the glitch-filled obamacare website, the stupid twerking fad, the blown call in the Patriots game, etc etc...then, you have to stop doing that. (it may be true, but we can't prove it) :lol:

I love your sense of humor.  Yes, all health issues.  Now, you have a point, it could be the brain fog causing all of those other things, if we think about it.

Pegleg84 Collaborator
Pegleg84
Posted

It might not be that the flours and such your baking with are contaminated, but that you could be reacting to something else in them. I often have trouble if I eat too many baked goods even when I know they're perfectly safe. Could be too much refined stuff, sugar, gums, an intolerance rearing its head... who knows.

It's also possible that if you're getting CCd from other gluteny things in the house, it could be preventing you from digesting perfectly safe things properly.

Either way, fewer cookies might be a good idea (difficult, I know) and maybe start harping on your daughter a bit more again. It does sound like you're being super careful though.

 

I wish we could blame everything on gluten. Maybe we'll find out that (unfortunately my) Mayor Rob Ford is gluten intolerant and that's caused him to be a crazy idiot (It's fun to be in Cracktown these days...)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

 

 

I wish we could blame everything on gluten. Maybe we'll find out that (unfortunately my) Mayor Rob Ford is gluten intolerant and that's caused him to be a crazy idiot (It's fun to be in Cracktown these days...)

 

I almost just spit my tea all over this laptop, thanks. 

 

Yes. Gluten - the new crack. Makes us batshyte crazy.

IrishHeart Veteran
IrishHeart
Posted

I love your sense of humor.  Yes, all health issues.  Now, you have a point, it could be the brain fog causing all of those other things, if we think about it.

 Yes, I am hilarious.

 

and I'm sorry, what were we talking about? see, I got glutened last week and.............

surviormom Rookie
surviormom
Posted

 Yes, I am hilarious.

 

and I'm sorry, what were we talking about? see, I got glutened last week and.............

But if by "everything", he means you blame gluten for the glitch-filled obamacare website, the stupid twerking fad, the blown call in the Patriots game, etc etc...then, you have to stop doing that. (it may be true, but we can't prove it)  :lol:

 

And of course there is that Mayor with issues.  I cracked up laughing when I read Pegleg84 too.  He just may have a gluten problem.

 

:D too funny.  Thanks for the laugh ladies.

IrishHeart Veteran
IrishHeart
Posted

 

:D too funny.  Thanks for the laugh ladies.

 

We have to laugh and we have to keep each other laughing. Especially through glutenings, Thanksgiving and assorted family gatherings, family denial, asshat doctor visits, etc..

 

It's in the celiac/NCGS handbook.. Honest.

cyclinglady Grand Master
cyclinglady
Posted

It might not be that the flours and such your baking with are contaminated, but that you could be reacting to something else in them. I often have trouble if I eat too many baked goods even when I know they're perfectly safe. Could be too much refined stuff, sugar, gums, an intolerance rearing its head... who knows.

It's also possible that if you're getting CCd from other gluteny things in the house, it could be preventing you from digesting perfectly safe things properly.

Either way, fewer cookies might be a good idea (difficult, I know) and maybe start harping on your daughter a bit more again. It does sound like you're being super careful though.

 

I wish we could blame everything on gluten. Maybe we'll find out that (unfortunately my) Mayor Rob Ford is gluten intolerant and that's caused him to be a crazy idiot (It's fun to be in Cracktown these days...)

Everything in moderation!  Thanks for the input.  It's been five days and I'm feeling better.  Not sure if it's the xanthan gum or not.  Will test it out later.  I really don't think it's a gluten reaction since it's just contained in my actual stomach and not causing problems in other areas of my body.  

  • 3 months later...
powerofpositivethinking Community Regular
powerofpositivethinking
Posted
  • Author

I needed to come back and update this thread.  It's almost been one year since I've been gluten-free (3/10), and my family was extreeeeeeemely resistant to it.  I remember starting this thread and being so upset, but I almost fell out of my chair the other week when my Mom and Dad told me they are going to slowly clean out their kitchen of gluten things and replace them with gluten free products.  

 

My family members have told me they see a huge change in my attitude.  I'm happy, upbeat and am finally living up to my name of powerofpositivethinking.  I have a much, much longer temper fuse when it comes to my family, and they've really taken note of that one  :lol:  I helped my Mom pick out Xantham gum the other day  :D  I figure I'll let them experiment with products first and then when they ask me to try something, I'll dive into how to prevent CCing in their kitchen.  One step at a time, and buying gluten free products is a HUGE step for them.  My Dad did tell me the new cookies he made were dangerous because you can eat more than two but not feel bloated hahahaha

 

This last year has had lots of ups and downs.  It's definitely hard to stand up for something when the rest of your family doesn't support it, but it made me stronger and made me realize I have to do what's right for me.  It seems I've been lucky to have my family change their tune.  I've found my confidence again  :)

dilettantesteph Collaborator
dilettantesteph
Posted

That's wonderful.  Both your family and your positive attitude.

Crimson58 Newbie
Crimson58
Posted

I would have agreed with you a few years ago, except ...my (then) 84-year-old Yankee Steadfast feet- in -cement -unbending

Mom read all the materials I sent her after my DX. She had watched me almost die after 3 years of crashing so bad

and she recognizing her own life-long symptoms (as well as the

reason my dad surely died).

She went G F immediately.  I helped her figure out what to eat and she never looked back. Never bothered with testing. 

Her doc gave his blessing and she feels fantastic. (probably for the first time in her life) and I have had to remind her to get her BP & thyroid med dosage reduced as needed.  Her lab work is awesome

and the doc says her EKG is one of a 60 year old. My Ma had suffered heart palps and "a-fib" for years--just like me (neither of us have that anymore)

No more GERD or cholesterol meds.....blah blah blah.

 

My Mom could out-walk any of us any day and at nearly 87, still goes to the gym 3X a week with her girlfriends (in their 60's) I know, she is amazing. She's in better shape than I am.

 

If somebody really wants to change, they can.. ;)

I've tried,I really have. I was diagnosed with Celiac through a biopsy from my colon 4 years ago. My problem is, I work offshore,and have NO access to gluten free foods. The few places I can get  it at home are so high it's outrageous. I cannot buy a months worth of meals as that is how long I am out there,sometimes longer. So,I try and stay away from bread/wheat,but usually end up eating it once or twice a week. I have to eat what is cooked. Sometimes I get lucky and get fresh meats,or veggies but not often. I suffer from bloating,fatigue diarreah and more on a weekly and sometimes daily basis. It really is getting old. I plan on looking here for offered products to help with it.

kareng Grand Master
kareng
Posted

I've tried,I really have. I was diagnosed with Celiac through a biopsy from my colon 4 years ago. My problem is, I work offshore,and have NO access to gluten free foods. The few places I can get  it at home are so high it's outrageous. I cannot buy a months worth of meals as that is how long I am out there,sometimes longer. So,I try and stay away from bread/wheat,but usually end up eating it once or twice a week. I have to eat what is cooked. Sometimes I get lucky and get fresh meats,or veggies but not often. I suffer from bloating,fatigue diarreah and more on a weekly and sometimes daily basis. It really is getting old. I plan on looking here for offered products to help with it.

Sounds like you know you shouldn't be eating gluten & what the consequences are. I would suggest you get another job or try to get your employer to make accommodations. But I think you will tell me you can't do that. Not sure why you couldn't bring things like peanut butter, dried fruits, protein bars, beef jerky, planters nuts, etc for the days you just can't avoid gluten in the dining hall. Just normal foods at a normal price that are gluten-free. But I am sure you have thought of that and maybe its a space issue or something?

So, what I would suggest, is you start planning you future. Save money. Think of what job you could do and what training you will need. The Celiac will eventually catch up with you and you will no longer be able to do your current job. Hopefully you will not become a safety hazard to others or fall off into the ocean! You will have to judge when you get that bad.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Tyoung's topic in Related Issues & Disorders
      2

      Celiac Disease and Mild Chronic Gastritis

      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section....
    2. Scott Adams
      - Scott Adams replied to Bebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Testing for celiac

      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or e...
    3. Scott Adams
      - Scott Adams replied to ognam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Glutening symptom? oily stool

      Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of glute...
    4. Scott Adams
      - Scott Adams replied to TerryinCO's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Status Update...

      As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications
    5. Scott Adams
      - Scott Adams replied to Dora77's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Permanent Floating & Undigested Stools for a Year

      It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture t...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,087
    • Most Online (within 30 mins)
      7,748
    C.E.L
    Newest Member
    C.E.L
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Testing for celiac

      By Scott Adams · Posted

      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
    • Scott Adams
      Glutening symptom? oily stool

      By Scott Adams · Posted

      Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of gluten exposure, such as in medications or ongoing dietary mistakes. Since you’ve been less careful recently and experienced this symptom after eating out, it’s plausible that the fries or other cross-contaminated foods could be the culprit. However, if the steatorrhea persists, it might indicate ongoing gluten exposure or another underlying issue, such as pancreatic insufficiency or bile acid malabsorption. Until you can see a GI doctor, it might help to strictly avoid any potential sources of gluten, including cross-contamination, and monitor your symptoms. If the issue continues, it’s important to investigate further, as persistent steatorrhea can lead to nutrient deficiencies. In the meantime, keeping a detailed food and symptom diary could help identify patterns or triggers. Good luck finding a new GI doctor—hopefully, they can provide clarity soon!  
    • Scott Adams
      Status Update...

      By Scott Adams · Posted

      As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications
    • Scott Adams
      Permanent Floating & Undigested Stools for a Year

      By Scott Adams · Posted

      It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture the full picture. Weight gain, especially with hgh injections, doesn’t necessarily rule out malabsorption, as nutrient deficiencies can still occur even if weight is stable. Regarding celiac disease, even small cross-contamination from "may contain gluten" foods could contribute to ongoing intestinal damage, especially since antibody tests aren’t always reliable indicators of healing. A follow-up endoscopy might provide more clarity. The persistent floating and undigested stools could suggest malabsorption, potentially impacting vitamin or protein levels, so it might be helpful to check for deficiencies. The fructose and lactose intolerance tests could be unreliable due to improper fasting or dietary preparation, so repeating them under correct conditions might be necessary. Stress or heavy lifting could temporarily affect digestion, but persistent symptoms likely point to another underlying issue. Consulting a gastroenterologist for further evaluation, including potential small intestinal bacterial overgrowth (SIBO) or other digestive disorders, might be a good next step. Keep advocating for yourself—your concerns are valid!
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Yes, there are blood tests for celiac disease, and feel free to share your son's results here if you have them.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...