Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post Here To Join Celiac.com's Online Support Group With Live Chat Meetings! (Free)

Scott Adams

By Scott Adams
in Meet Up Room

Recommended Posts

Scott Adams Grand Master
Scott Adams
Posted

This is the topic for the new "Celiac.com Online Support Group". We hold regular monthly online meetings in the forum's "Live Chat" area (see link in top menu):

 

To join: Create a forum account, then make just post in this topic--be sure to click "Follow This Topic" at top right.

 

Our goals:

  • To help our members adjust and deal with being gluten-free;
  • To help our members adjust and deal with the effects of celiac disease and gluten sensitivity;
  • To provide a friendly and convenient way for our members to meet and exchange information online, including regular live chat support group meetings.

Next Meeting Notice:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 81
  • Created
  • Last Reply
mendylou Rookie
mendylou
Posted

 

I've been thinking about starting a "Celiac.com Online Support Group" which would hold regular online meetings here in our "Live Chat" area? I am hoping there are others out there who might be interested. Please let me know if you are:

  1. Interested in joining such a group;
  2. Interested in helping to lead or otherwise help out with such a group;

 

Iwould be interested in joining an online support chat group

Celtic Queen Explorer
Celtic Queen
Posted

Would be interested in joining.  Unfortunately don't have the time to lead.

moosemalibu Collaborator
moosemalibu
Posted

I would be interested in joining the group. I don't know about being a lead, though. I'm new to the celiac disease game. ;)

  • 2 weeks later...
Scott Adams Grand Master
Scott Adams
Posted
  • Author

I nominate Jamie (moosemalibu) to help lead our group. Also, I am starting to promote this more, so hopefully we'll have more folks join by posting here.

GF Lover Rising Star
GF Lover
Posted

Hi Scott, Did you have a particular day and time in mind?  Weekly, Monthly?

 

Colleen

moosemalibu Collaborator
moosemalibu
Posted

I nominate Jamie (moosemalibu) to help lead our group. Also, I am starting to promote this more, so hopefully we'll have more folks join by posting here.

 

Haha - I can certainly try. Do we have organized agenda's/topics to discuss? How do we want to organize it? A date/time and then just have at it. What about a journal seminar? Like - read this article and then discuss kind of thing...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted
  • Author

All good questions...at the moment I am thinking of using this thread as the ongoing discussion thread, and having one meeting per month, at least to being. If members later decide they want to meet more often that will also be possible, as the chat area is always open.

 

It may be too early yet to formulate the first meeting's agenda, as we really don't have enough members. Hopefully this will change soon as I am ramping up promoting this new group. I think we need at least 20 members before we can have a meeting.

GF Lover Rising Star
GF Lover
Posted

Scott,  would you like interested members to propose topics that interest them?  May help you plan agendas. 

 

Colleen 

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Yes, this would be best I think. The first step is to see if there is enough interest in the idea of a "Celiac.com Online Support Group."  Does this sound like a good idea for a name?

Scott

 

Scott,  would you like interested members to propose topics that interest them?  May help you plan agendas. 

 

Colleen 

moosemalibu Collaborator
moosemalibu
Posted

Forgive me.. maybe I misunderstood the concept. Is this a LiveChat functional group or a topic posting group? Either sounds great - but the livechat would be neat. 

 

The name sounds great!

Scott Adams Grand Master
Scott Adams
Posted
  • Author

The group will have both--this thread for posting, and live chat meetings (see the "Live Chat" link at the top of the board). So all meetings will be live, and participants can communicate in real time. I believe the live chat meeting content can also be archived. 

GFinDC Veteran
GFinDC
Posted

Once a month sounds possible.  I'm in.

RevKate Newbie
RevKate
Posted

I'm newly diagnosed, and still adjusting (healing and fighting leaky gut)...unfortunately there are no Celiac support groups locally so my hubby and I are muddling through this process on our own. We live in a small community with very limited grocery shopping options, etc. so any support online or otherwise would be greatly appreciated...

 

  • 2 weeks later...
jackiejasbedt65 Newbie
jackiejasbedt65
Posted

I would greatly appreciate a online support group, as the small town I live in has no group here.  So I'm in.

Scott Adams Grand Master
Scott Adams
Posted
  • Author

We've got the start of a group...but we do need more members to begin. I'll keep promoting it the group.

SkyBlue4 Apprentice
SkyBlue4
Posted

I love the idea of an online support group!

tonalynn Explorer
tonalynn
Posted

This sounds like a great idea! Count me in!

julissa Explorer
julissa
Posted

I've been away from here for a while, but I am interested as well. thanks..

StephenB Newbie
StephenB
Posted

Count me in.

lcdconsumer Newbie
lcdconsumer
Posted

We've got the start of a group...but we do need more members to begin. I'll keep promoting it the group.

Please count me in also.  ABSOLUTELY HEALTHY 59 year old, certified fitness trainer, suffered a heart attack September 30, 2012 resulting in 8-stents!  Sickness followed for 7-months by 35+ pounds of uncontrolled weight loss.  Blood test resulted in severe celiac sprue (redundant).  I feel like the only one in the world suffering from this.  I have numerous challenges, not the lease of which is the fact that we cannot determine how much heart medicine my body is actually absorbing.  Anyway, THANK YOU, THANK YOU, THANK YOU for providing an up-to-date communication vehicle for those of us with this crazy disorder.  Prayers go out to everyone!

Googles Community Regular
Googles
Posted

I am interested. I would be able to make the on line chat as long as it isn't when I'm working (which is way too many hours.)

Sue B Newbie
Sue B
Posted

I would be interested.  I am always interested in up to date information.

 

BZBee Apprentice
BZBee
Posted

I'll join, there aren't any local support groups in my area.

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Excellent...it is good to see more people joining. For anyone who can't attend a live meeting this thread will act as the non-live discussion area, so everyone can basically interact here between live chat meetings. If we can get 10-20 more members we can plan our first live chat meeting.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,302
    • Most Online (within 30 mins)
      7,748
    ZeeRi
    Newest Member
    ZeeRi
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      Thank you so much! 
    • Scott Adams
      is Kirkland Imported French Brie gluten freeL

      By Scott Adams · Posted

      Yes, cheeses are generally considered to be gluten-free with very few exceptions. Our family eats that particular one regularly with out issues.
    • Scott Adams
      Contaminated cooking oils

      By Scott Adams · Posted

      Consider California olive oils, as they seem to be very pure, and as @RMJ mentioned, look for certified gluten-free ones.
    • Scott Adams
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By Scott Adams · Posted

      You’re already making significant strides toward healing, which is great to see. It's not uncommon to experience persistent or new symptoms during the early stages of a gluten-free diet, especially since full healing can take time and other underlying issues might still need addressing. Here are some thoughts and suggestions based on what you've shared: Regarding Your Current Symptoms: Sweating Issues and Heat Intolerance: These might be linked to autonomic nervous system dysfunction, which can occur with celiac disease. You may want to discuss testing for conditions like dysautonomia or neuropathy with your doctor. Dry Skin and Cracked Hands: This can sometimes result from vitamin deficiencies, especially A, E, or zinc, common in untreated celiac disease. Your body's absorption should improve over time, but consider adding skin-friendly moisturizers or consulting a dermatologist for support. Pins and Needles, Weakness, and Dizziness: These could be due to ongoing malabsorption of vitamins like B12, iron, or magnesium. Bloodwork for these deficiencies might provide clarity. Food Sensitivities and Burning Sensations: Many with celiac initially experience heightened food sensitivities or stomach irritation. A low-FODMAP diet or similar temporary approach could help identify and reduce triggers while your gut heals. Fat Malabsorption (Yellow Stools): This suggests your gut still isn’t absorbing fats properly. Pancreatic insufficiency or small intestinal bacterial overgrowth (SIBO) might play a role. Ask your GI about testing for these. Frequent Urination and Sticky Mucus: These could indicate dehydration or another metabolic imbalance. Ensure you're staying hydrated and consider asking about possible thyroid or blood sugar issues. Vitamin and Nutrient Intake: If oral supplements upset your stomach, here are some alternatives: Sublingual or liquid vitamins (especially B12 and D): These are absorbed under the tongue and bypass the gut. Vitamin Injections: Ask your doctor if a short course of injections could address deficiencies like vitamin D or B12. Bone Broth: It can provide nutrients like collagen and minerals while being gentle on the stomach. Long-Term Diet Improvements: Your current diet is understandably limited to avoid triggering symptoms, but diversification will help as your gut heals. Working with a registered dietitian who specializes in celiac disease could be invaluable to safely reintroduce foods and build a balanced diet. Next Steps: Follow up with your GI about your ongoing symptoms and consider further testing (e.g., nutrient levels, SIBO, or pancreatic function). Ask your doctor about working with specialists, like a neurologist or endocrinologist, if symptoms like dizziness, sweating issues, or fatigue persist. Be patient with your body—healing can take months or even years for some. Keeping a symptom diary might help identify triggers and measure progress. You're asking the right questions, and it's clear you're doing your best to manage your health. Keep advocating for yourself with your healthcare team, and don't hesitate to seek second opinions if you're not getting answers. Wishing you continued progress and healing!
    • Scott Adams
      Skinesa

      By Scott Adams · Posted

      Does the same issue happen if you eat a vegan yogurt, kimchee, pickles, etc? Those might be better ways for you to get your probiotics.
×
×
  • Create New...