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Celiac Is More Than What You Eat


jam7515

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jam7515 Newbie

I wanted to make this post for all the newbies like me because I could not find all these answers in once place.  Mostly aimed at women.  Gluten intolerance is more than just what you eat, here are my findings:

I developed a sort of greasy, stiffness in the hair on the top of my head.  The fix Suave Clarifying shampoo and conditioner.  If you want to go a little more upscale Loreal EverCreme Sulfate Free works good too.

I developed Rosacea like symptoms on my face.  The fix.  All the Roc products seem ok, I use Olay Regenerist for cleansing, works great too.

Morning nausea.  Toms of Main Flouride Free Thoothpaste.

Itching armpits and swollen glands.  Arm and Hammer Essentials Deodorant, Paraben and Aluminum free.

Body wash, most of the Olay products seem to be fine.

All these products were found by trial and error and a lot of research.  Hope it helps someone else out there.


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BelleVie Enthusiast

Thank you for taking the time to share this! 

notme Experienced

I wanted to make this post for all the newbies like me because I could not find all these answers in once place.  Mostly aimed at women.  Gluten intolerance is more than just what you eat, here are my findings:

I developed a sort of greasy, stiffness in the hair on the top of my head.  The fix Suave Clarifying shampoo and conditioner.  If you want to go a little more upscale Loreal EverCreme Sulfate Free works good too.

I developed Rosacea like symptoms on my face.  The fix.  All the Roc products seem ok, I use Olay Regenerist for cleansing, works great too.

Morning nausea.  Toms of Main Flouride Free Thoothpaste.

Itching armpits and swollen glands.  Arm and Hammer Essentials Deodorant, Paraben and Aluminum free.

Body wash, most of the Olay products seem to be fine.

All these products were found by trial and error and a lot of research.  Hope it helps someone else out there.

there is some pretty good info on the newbie 101 thread in the 'coping with' section of the forum.  :) 

LauraTX Rising Star

I also use the suave daily clarifying shampoo, after a few weeks I will get greasy buildup at the roots that my regular shampoo doesn't take out well. Thanks for sharing the products you use with us! :)

answerseeker Enthusiast

I wanted to make this post for all the newbies like me because I could not find all these answers in once place. Mostly aimed at women. Gluten intolerance is more than just what you eat, here are my findings:

I developed a sort of greasy, stiffness in the hair on the top of my head. The fix Suave Clarifying shampoo and conditioner. If you want to go a little more upscale Loreal EverCreme Sulfate Free works good too.

I developed Rosacea like symptoms on my face. The fix. All the Roc products seem ok, I use Olay Regenerist for cleansing, works great too.

Morning nausea. Toms of Main Flouride Free Thoothpaste.

Itching armpits and swollen glands. Arm and Hammer Essentials Deodorant, Paraben and Aluminum free.

Body wash, most of the Olay products seem to be fine.

All these products were found by trial and error and a lot of research. Hope it helps someone else out there.

I get the swollen glands in the arm pit area too! I thought it was a lump it was scary!

  • 4 weeks later...
celiac girl Newbie

hi. i was just thinking i continue to be glutened by ma hair products. for example, today i took off my glasses, and put the temple in my mouth, while i was contemplating something (you know....how people put a pencil or pen in their mouth).

 

i realized when i do that, i'm probably glutting myself.

 

i'm good at not eating anything with gluten...at least on purpose.

 

i'm wondering about cleaning products now...dish soap, laundry soap, body soaps and lotions.

 

it's been about 2-1/2 years since i was diagnosed, and i've never experienced a drastic change in my health.

 

any thoughts?

1desperateladysaved Proficient

My first wonder is if you are getting cross contamination. If your home is not 100% gluten free, you may want to create a small kitchen using a table, electric skillet, and utensils.  It is nice to have running water and a tub near by for washing dishes.   I would suggest you consider an SCD (Special Carbohydrate Diet) diet.  This was developed to help those with celiac that are not healing. Basically the diet is grain free.  One can make baked products using nut flour.  You can find the allowed foods by googling SCD diet. 

 

You may want to look at the Newbie thread to see if there is anything you missed.  Since you don't feel you are getting results you may want to be extremely vigilant about all forms of gluten.

 

I hope you will have startling results in the future.

 

D


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    • trents
      We usually see mucus in the stool in those with undiagnosed celiac disease and those not adhering to a gluten free diet. However, the mucus could also be coming from lower down in the intestinal track. I would seek a physician consult. You might also check into getting a follow-p endoscopy/biopsy on the small bowel to check for healing progress since going gluten free.
    • trents
      @ARSTONE, not to be picky because there has been evolution in the terminology with regard to gluten disorders. And the terms "gluten intolerance" and "gluten sensitivity" are still used by some interchangeably. But with time, "gluten intolerance" has become synonymous with celiac disease with "gluten sensitivity" referring to NCGS (Non Celiac Gluten Sensitivity). Having said that, whatever it may be, apparently there is an ingredient in that product that doesn't agree with you.
    • knitty kitty
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    • Di Wallace
      I don't know if anyone can help. I was diagnosed with celiac last June. Since going gluten free the diarrhea has stopped, in fact things have gone the other way. What is bothering me is the occasional rectal mucus discharge. I have no other symptoms and it doesn't happen very often. As I haven't seen anyone since my diagnosis, I don't know if this is normal or not
    • ARSTONE
      The issue is I'm not actually celiac but gluten intolerant. So do t know why I am so sick from this. It's been two days. 
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