Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Symptoms After Being "glutened"?

GFJen97

Recommended Posts

GFJen97 Newbie
GFJen97
Posted

Hi- first time posting here so hopefully I'm in the right place. After about 10 years of no answers and supposed acid reflux disease, I decided to take steps into my own hands and stop trying new A/R medications (if there are any more left to try) and began a gluten-free diet about 3 1/2 weeks ago. After a rough detox, I've been feeling amazing. I used to be bloated every day, had reflux, joint pain, fogginess, and a constant tiredness I liken to the first trimester of pregnancy- too exhausting to handle. All of these are gone. I don't even need coffee anymore! I haven't reintroduced gluten as my doctor and I agreed I'd stay gluten-free for a month and then we MIGHT reintroduce if I still have symptoms, which I don't.

 

But I may have accidentally been glutened. I went to a restaurant and even though they said the food had no flour in it, I realized about halfway through, my "corn-only" tortillas had powder all over the bottom ones, which look and felt like flour. Probably my fault and shouldn't have eaten since we had a language barrier. Figured I'd be fine but about 30 minutes later, I started to get so tired I had to lay down, my stomach was aching and spasming, and a few hours later my joints and head were aching, too. Two days later, I feel foggy, am having digestion issues, joints aching so badly, reflux, restless limbs, and so tired but have insomnia. Does this sound like your experience with being glutened? I definitely feel I have intolerance, but my friend seemed to think that the symptoms are too serious to just be intolerance so I must have just eaten something that doesn't agree with me. Can anyone share their experiences? Not looking for a diagnosis. Just looking for any hint to whether I'm crazy or not. Everyone seems to think I'm overreacting and its probably not the "gluten thing".

 

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi GFJen and welcome to the forum.  Your symptoms are quite common for a glutening.  I get all those and more and it usually last for up to three weeks to fully recover.   Celiacs as well as Intolerant can both have severe reactions.

 

You are definitely not crazy.   Hope you feel better soon.

 

Colleen 

notme Experienced
notme
Posted

that sounds like glutening to me, too - mine takes about 2 days to come up to full on headache, fatigue, joint pain, the big D, etc, and mine hangs around for 2 weeks.  gluten intolerance is so hard to diagnose  :(  i hope you feel better - it's amazing what clears up when gluten is removed, isn't it?  i was really a non-believer when i started the diet, but quickly changed my tune!  after 3 years, i have noticed my hair is getting so thick.  :)  yay!  i really never believed my hair would be anything but thin ever again, but the other day i was absent-mindedly thinking of how heavy my hair was lolz - what?!  :D

GFJen97 Newbie
GFJen97
Posted
  • Author

Great, thanks! We live in a small town and so even my doctor is not super familiar with intolerance. I call the doctor's office today and they said they aren't super familiar with it, so they can only speculate and said it could be a virus, too. Originally, I wanted a Celiac test but she said I would have to go back to eating gluten for a week first, and I don't think that's worth it. I know I feel better gluten-free, why would I make myself so sick again just for someone to confirm it? No thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,259
    • Most Online (within 30 mins)
      7,748
    Adriane Tramontin
    Newest Member
    Adriane Tramontin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Test uncertainty

      By trents · Posted

      Yes, I can imagine. My celiac journey started with a rejection of a blood donation by the Red Cross when I was 37 because of elevated liver enzymes. I wasn't a drinker and my family doctor checked me for hepatitis and I was not overweight. No answers. I thought no more about it until six years later when I landed a job in a healthcare setting where I got annual CMP screenings as part of my benefits. The liver enzymes were continually elevated and creeping up every year, though they were never super high. My primary care doc had no clue. I got really worried as your liver is pretty important. I finally made an appointment with a GI doc myself and the first thing he did was test me for celiac disease. I was positive. That was in about 1996. After going on a gluten-free diet for three months the liver enzymes were back in normal range. Another lab that had gotten out of whack that has not returned to normal is albumin/total protein which are always a little on the low side. I don't know what that's about, if it's related to the liver or something else like leaky gut syndrome. But my doctors don't seem to be worried about it. One thing to realize is that celiac disease can onset at any stage of life. There is a genetic component but there is also an epigenetic component. That is, the genetic component is not deterministic. It only provides the potential. There needs also to be some health or environmental stressor to activate the latent gene potential. About 40% of the population have the genetic potential to develop celiac disease but only about 1% actually do.
    • cristiana
      Does this definitely suggest Coeliac Disease?

      By cristiana · Posted

      Hello @Heather Hill You are most welcome.  As a longstanding member and now mod of the forum, I am ashamed to say I find numbers and figures very confusing, so I rarely stray into the realms of explaining markers. (I've self-diagnosed myself with dyscalculia!)  So I will leave that to @Scott Adams or another person. However as a British person myself I quite understand that the process with the NHS can take rather a long time.  But just as you made a concerted effort to eat gluten before your blood test, I'd advise doing the same with eating gluten before a biopsy, in order to show if you are reacting to gluten.  It might be worth contacting the hospital or your GPs secretary to find out if they know what the current waiting time is. Here is a page from Coeliac UK about the current NHS recommendations. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=If you remove or reduce,least six weeks before testing. Cristiana  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Does this definitely suggest Coeliac Disease?

      By Heather Hill · Posted

      Many thanks for your responses, much appreciated.  The tests did include tTg IgA and all the other markers mentioned.  I also had sufficient total IgA so if I'm reading the Mayo clinic thing correctly, I didn't really need the anti-deaminated gliadin marker? So, if I am reading the information correctly do I conclude that as all the other markers including tTg IgA and DGP IgG and tTg IgG and EMA IgA are all negative, then the positive result for the immune response to gliadin, on it's own, is more likely to suggest some other problem in the gut rather than Coeliac disease? Until I have a view from the medics (NHS UK) then I think I will concentrate on trying to lower chronic inflammation and mend leaky gut, using L glutamine and maybe collagen powder. Thank you for your help so far.  I will get back in touch once I have a response, which sadly can take quite a long time.   Kindest Heather Hill 
    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
×
×
  • Create New...