Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exact Ingredients To Look For?


JennaQ

Recommended Posts

JennaQ Rookie

I have had fibromyalgia since I was 16, but now I'm wondering if I am misdiagnosed and really just have a gluten sensitivity instead.

I figure that I might as well try, because if it doesn't help, then nothing has changed, but if it does, then awesome!

 

I keep reading a bunch of websites that say what ingredients to look for, but they are so super vague. I looked at a few food ingredients that I have currently and looking through the ingredient list (and comparing it to these vague websites), it would look fine. But then they have a label underneath that says, "contains wheat ingredients".

 

I'm sure the manufacturer is just being nice and it isn't required by law to put that little warning there. So how am I supposed to figure it out if all the ingredients look a-ok?? What are some ingredients that are almost tricky in their names?

 

Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emaegf Newbie

Actually that little "Contains:" message is by law required to be there if the product contians any of the top 8 allergens which wheat is one of them. Also having that label there is a good thing as well as the law. So any time you see that pass the product up it's not gluten free.

The eight foods identified by the law are:

  1. Milk
  2. Eggs
  3. Fish (e.g., bass, flounder, cod)
  4. Crustacean shellfish (e.g. crab, lobster, shrimp)
  5. Tree nuts (e.g., almonds, walnuts, pecans)
  6. Peanuts
  7. Wheat
  8. Soybeans

Open Original Shared Link

 

If you want to go gluten free you need to avoid all sources of wheat, rye, barley, spelt, etc. Here's a list that shows which ones are ok and which are not Open Original Shared Link

 

 

psawyer Proficient

Welcome.

 

In Canada and In the USA, wheat is an allergen that must be clearly disclosed on the label. The exact wording you posted, though, is not consistent with the rules.

 

Wheat may be listed (using that exact word) in the ingredients list, or may be disclosed in a "contains" statement. (either one is enough to satisfy the legal requirement). In the latter case the statement will list top allergens if present. The word "ingredients" must not appear in a contains statement. A "contains" statement can only contain the names of the allergens (8 in the US, those and more in Canada), although it can be more specific, e.g. "contains anchovies" is permitted when the more general allergen is "fish." Do not confuse "Contains" with "May contain" - they have very different meanings under the label rules.

 

Most companies do both. They list the allergen by name in the ingredients list, and also provide a "contains" statement. The "contains" statement, if provided, must list all scheduled allergens present. But if there is no "contains" statement, you MUST carefully read the ingredient list, since allergens can also be disclosed there.

 

So, now that we have taken care of wheat, let's move forward. Oats just don't hide--they will be obvious in the ingredient list. Rye appears where you might expect it, in certain types of bread and bakery products, listed as rye.

 

That leaves barley. In theory, it can hide in "flavors," although it almost never does. It may be listed as something with the word "malt" in the ingredient name, but not all ingredients containing the letters m-a-l-t are derived from barley, and other grains can be malted.

 

To expand on the above, maltodextrin and maltose are safe.

kareng Grand Master

I agree with what Peter said.  To simplify - read ingredients closely.  It will list wheat barley or barley malt or maybe plain malt, or rye and oats.  If the oats are gluten-free, they will proudly proclaim that.

 

Soy sauce usually has wheat but...there are several brands that do not.  I have seen salad dressings or sauces made with soy sauce that does not contain wheat - it will be labeled like this -  water, olive oil, soy sauce (soy, salt, wheat), onion....

 

 

If there is any chance you would want to find out if you actually have Celiac disease, you will want to get tested for it before going gluten free.  It can be really hard to go back on gluten later if you are feeling better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748

    Gabs
    Newest Member
    Gabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.