Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have You Heard Of The Problem With Coffee For Us?

Missy1306

By Missy1306
in Coping with Celiac Disease

Recommended Posts

Missy1306 Newbie
Missy1306
Posted

I have noticed for the past few weeks that I am having trouble with coffee…has anyone else ever heard that celiacs often have trouble with coffee - it has properties that bring on the same response we might have to gluten. Has anyone else experienced this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi Missy, and Welcome to the Forum  :)

 

There is no gluten in coffee, however you need to check flavoring or creams as they may.  For some coffee can be a natural laxative.  There are always a very small minority that coffee doesn't sit well with but If you have had no problem in the past then you should be fine with it.  If you are newly diagnosed then your gut may be healing and coffee may aggravate it for a little bit.

 

Good Luck to you,

 

Colleen

kellysensei Apprentice
kellysensei
Posted

Coffee didn't sit well with me the first few weeks I was gluten-free, but I've had it four times in the last week and seem to be fine with it now! So maybe it's just a temporary reaction while the gut is healing...

kareng Grand Master
kareng
Posted

Coffee is hard on the stomach (gastritis, etc) for many people - Celiac or not.  I do bet if I have a little milk with mine - seems to cut the acidity of the coffee.

 

I went to the International Celiac Disease Symposium in Sept - all the food served was gluten free.  We went through gallons of coffee every day!  :D

dilettantesteph Collaborator
dilettantesteph
Posted

I drink coffee and I have problems with all sorts of other things.  Coffee has been found to be contaminated with gluten containing materials on occasion.  Open Original Shared Link

 

I buy whole beans to avoid that possibility.

GF Lover Rising Star
GF Lover
Posted

I drink coffee and I have problems with all sorts of other things.  Coffee has been found to be contaminated with gluten containing materials on occasion.  Open Original Shared Link

 

I buy whole beans to avoid that possibility.

 

Hi Steph, Thanks for that information.  It was you who I was thinking about when I said "a small minority", I just couldn't remember the specifics.  

 

Colleen

gilligan Enthusiast
gilligan
Posted

I have a problem with caffeine in general, but it started before I was diagnosed.  I think it was just upsetting my damaged gut.  I can drink tea now, but coffee…not so much, yet.  I read somewhere that instant coffee labels should be read, especially flavored instant coffees.  Try drinking very weak decaf for a bit.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

I drink Folger's and I drink Dunkin' Donuts. Every day. Lots of it. I start my morning with it on an empty stomach. No problems whatsoever.

Tbolt47 Newbie
Tbolt47
Posted

Coffee comes highly recommended for all.

 

Open Original Shared Link

 

I drink many cups daily ( black), with no problem.

Tbolt47 Newbie
Tbolt47
Posted

Coffee is hard on the stomach (gastritis, etc) for many people - Celiac or not.  I do bet if I have a little milk with mine - seems to cut the acidity of the coffee.

 

I went to the International Celiac Disease Symposium in Sept - all the food served was gluten free.  We went through gallons of coffee every day!  :D

Chicago is beautiful in the fall.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,917
    • Most Online (within 30 mins)
      7,748
    Jo Pelly
    Newest Member
    Jo Pelly
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • jadeceoliacuk
      How to choose a Naturopath for 6yr old

      By jadeceoliacuk · Posted

      Thank you Cristiana. I will check them out.
    • knitty kitty
      Gluten Ataxia

      By knitty kitty · Posted

      Hi, @Dawn R., I get gluten ataxia.  It's very disconcerting.   Are you still experiencing gluten ataxia symptoms eating a gluten free diet?  
    • knitty kitty
      Raw Meat Craving

      By knitty kitty · Posted

      @Jordan Carlson, Sorry to hear you're having a bumpy journey right now.  I've been there.  I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet).  It gave my digestive system time to heal.  After I felt better, I could add things back into my diet without reactions.   In Celiac Disease, we make lots of histamine as part of the autoimmune response.  There's also histamine in certain types of food.  Lowering histamine levels will help you feel better.  Foods high in histamine are shellfish, crustaceans, fermented foods like pickles and sauerkraut, canned foods, processed meats and smoked meats like bacon and ham, and aged cheeses.  Grains and legumes can also be high in histamine, plus they contain hard to digest Lectins, so they go, too.  Cutting out corn made a big improvement.  Some Celiacs react to corn as though it were gluten.   Dairy can be problematic, so it goes.  Some Celiacs have lactose intolerance because their damaged villi cannot make Lactase, the enzyme that digests lactose, the carbohydrate in dairy, while some Celiacs react to Casein, the protein in dairy that resembles gluten.  Dairy is high in iodine, which makes dermatitis herpetiformis flare up badly.  Eggs are high in Iodine, too.  I even switched to pink Himalayan salt, instead of iodized salt.  Avoid processed gluten free facsimile foods like cookies and breads because they have lots of additives that can cause high histamine, like carrageenan and corn.   Yes, it's a lot.  Basically veggies and meat and some fruit.  But the AIP Paleo diet really does help heal the intestines.  My digestive tract felt like it was on vacation!   I'd throw meat and veggies in a crock pot and had a vacation from cooking, too.  Think easy to digest, simple meals.  You would feed a sickly kitten differently than an adult cat, so baby your tummy, too! Take your vitamins!  It's difficult to absorb nutrients from our food when everything is so inflamed.  Supplementing with essential vitamins helps our absorption while healing.  Niacin B3, the kind that flushes (nicotinic acid -not the same as nicotine in cigarettes, don't worry!) REALLY helps with the dermatitis herpetiformis flares.  Niacin and Thiamine make digestive enzymes so you can digest fats.  Add in healthy Omega Three fats, olive oil, flaxseed oil, avocado oil, coconut oil.  Vitamin D helps lower inflammation and regulates the immune system.  Thiamine helps mast cells not to release histamine at the slightest provocation.  Benfotiamine, a form of Thiamine B1, has been shown to promote intestinal healing.  Pyridoxine B6, Riboflavin B2, Vitamin C and Vitamin A help heal the digestive tract as well as the skin.  Our outside skin is continuous with our digestive tract.  When my outside skin is having breakouts and hives, I know my insides are unhappy, too.   Talk to your doctor and nutritionist about supplementing.  Blood tests are NOT accurate measurements of B vitamin deficiencies.  These tests measure what's in the bloodstream, not what is inside cells where vitamins are used.  Supplementing with essential vitamins and minerals made a big difference with me.  (My blog has more of my bumpy journey.) Let me know if you have more questions.  You can get through this!    
    • Jordan Carlson
      Raw Meat Craving

      By Jordan Carlson · Posted

      Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take every precaution possible to be as gluten free as I possibly can and have simplified my diet as much as I possibly can but still cant get past this point in my recovery. If this is the case, I believe it would be considered non-responsive Celiac Disease or Refractory Celiac Disease. The only time I have ate gluten purposely in the last year was for the 3 weeks leading up to my endoscopy for diagnosis. Aside from that, the last year has been a constant disappointing effort to be gluten free with the same result of getting stuck at this point. I have a appointment with my doctor next week to discuss some treatment options and what the next steps are in trying to get my body to push past this point.   I will keep you posted! 
    • knitty kitty
      10 years later, my celiac is progressing

      By knitty kitty · Posted

      @GardeningForHealth, How are things going for you?   I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
×
×
  • Create New...