Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Had Raynauds Syndrome Improve On Gluten Free Diet?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

I recently found out that I have Raynauds.  Is it related to celiac?  Also does it improve with a gluten free diet?

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KCG91 Enthusiast

I wondered about this as my Mum has Raynauds and although I've never seen a GP about it my circulation was really bad before I went gluten-free. Happy to say it's improved considerably :) hope yours does too!

Gemini Experienced

Yes, Diana, I have Reynaud's and it has improved tremendously on the gluten-free diet.  My fingers used to blanch and turn white when exposed to the cold and now, I can tolerate the cold much, much better.  They do not turn white and numb nearly as much as they used to and it's only the very fingertips that are affected.  I can also reach into the freezer section and grab frozen items without gloves!   :)

 

Reduce the inflammation in your body, over time, and other AI diseases improve.

jebby Enthusiast

Hi Diana. I have had the same experience as Gemini, my Raynaud's has virtually disappeared since going gluten-free in 2010.

1desperateladysaved Proficient

I think there is hope for me, for though I feel really good, I still feel I am in transition at 18 months gluten free.  One of my daughters has raynaud's  too, so the logical question is whether this might be a sign of celiac for my family.  I see everything as symptoms though, and my family sees nothing as symptoms.  Strange deal for a person with 2 copies of celiac genes!

 

D

LauraTX Rising Star

I have mild Raynauds with my lupus.  It seems to be one of the things that improve when I just eat more healthy in general, but I did not notice a difference after going gluten-free.  

frieze Community Regular

hey doc, I was wondering recently, is Raynaud's centrally controlled? ie, breath in cold air, peripheral circ. shuts down?  maybe we should ask Dr H if he sees it in his ataxia patients??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nick-incollege Rookie

yeah, actually! I didn't notice until now, but since going gluten free a year ago, I haven't had my fingers turn white once! which totally never happens, it used to happen like all the time

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

    2. - trents replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

    3. - knitty kitty replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

    4. - trents replied to Tyoung's topic in Related Issues & Disorders
      1

      Celiac Disease and Mild Chronic Gastritis

    5. - Tyoung posted a topic in Related Issues & Disorders
      1

      Celiac Disease and Mild Chronic Gastritis


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,908
    • Most Online (within 30 mins)
      7,748

    Rhan
    Newest Member
    Rhan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
    • trents
      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying finding that is commented on in the post scope/biopsy notes when people are positive for celiac disease. 
    • Tyoung
      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs or something entirely different? Thank you!!
×
×
  • Create New...