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Houston, Tx Doctor?


rduchess

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rduchess Newbie

I just moved to the Houston area and absolutely love it!  I am undiagnosed but very sensitive to gluten.  I also have neurologic symptoms (pseudo seizures, muscle weaknes, peripheral neuropathy...) and a history of Hodgkin's Lymphoma, Breast Cancer, and Basal Cell Carcinoma.  Neurologic symptoms started the day after a severe intestinal reaction to a meal with wheat items.  It set off a chain reaction that initially was diagnosed as Guillian Barre Syndrome, but later progressed to respiratory failure and Breast Cancer. While I am now in remission (Praise God!) I am still plagued with multiple neurologic symptoms including seizures, that my dr. in Oklahoma was unable to diagnose...so they labeled me with "Conversion Disorder".  I am looking for a celiac doctor that can help with neurologic symptoms.  I also have a mother, sister, and daughter with undiagnosed gluten sensitivity.  If I can unravel this mystery, my whole family would benefit from better health. 


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LauraTX Rising Star

My doctor is in the Dallas/Fort worth area, but I can call them next week and see if they know any practices in the Houston area.  The University of Chicago center has a new doctor database but not many doctors had been added last time I looked at it.  Also, if there is a GIG-Gluten Intolerance Group chapter in that area, you can see who they go to as well.  Good luck! :)

  • 3 weeks later...
Kath Urbahn Newbie

I just moved to the Houston area and absolutely love it!  I am undiagnosed but very sensitive to gluten.  I also have neurologic symptoms (pseudo seizures, muscle weaknes, peripheral neuropathy...) and a history of Hodgkin's Lymphoma, Breast Cancer, and Basal Cell Carcinoma.  Neurologic symptoms started the day after a severe intestinal reaction to a meal with wheat items.  It set off a chain reaction that initially was diagnosed as Guillian Barre Syndrome, but later progressed to respiratory failure and Breast Cancer. While I am now in remission (Praise God!) I am still plagued with multiple neurologic symptoms including seizures, that my dr. in Oklahoma was unable to diagnose...so they labeled me with "Conversion Disorder".  I am looking for a celiac doctor that can help with neurologic symptoms.  I also have a mother, sister, and daughter with undiagnosed gluten sensitivity.  If I can unravel this mystery, my whole family would benefit from better health. 

My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.  

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    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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