Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

SylviaOtepks

Recommended Posts

SylviaOtepks Newbie

Hey everyone, this is my first post about becoming gluten free, or really it's my first time ever talking about it.

 

I guess I'll start with the fact that I was on the verge of tears when I was reading my vegetable broth that I had bought for my dinner tonight to find that it had wheat in it. Thats when I decided I needed a little support.

 

It's very hard to transition in the beginning and I have had a very hard time getting any support. I constantly have to bug my sister and her boyfriend, whom I live with, about keeping things gluten free like dipping their regular chips in the entire hummus container or not eating my gluten free treats I buy. Constantly getting picked on for being "difficult" or "expensive" to buy for doesn't help either. And they constantly question whether I'm telling the truth. I'm 17 and just discovered I was gluten intolerant. I have had severe anxiety and digestive problems my entire life and finally have gotten rid of those problems (still have anxiety but not as bad). My intolerance seems to keep getting worse also. Before If I would come in contact with something with gluten in it I would get a bit of a stomach ache, bloating and such. Now I get all those problems and extreme itchiness. I break out in welts and it is awful. Ive also lost a significant amount of weight and am suspect Im becoming malnourished. Not having a lot of money to buy a bunch of gluten free things has taken a toll on me and I am also a vegetarian to top it off.

So ending the tangent, does anyone have any tips to make this easier on me and also does anyone have any idea what vitamins or supplements I should add to my diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I can't imagine he difficult it would be to be changing your eating habits at age 17 while living inan unsupportive environment. Good for you for watching out for your own health. :)

In the first few months tTG I was gluten-free, I wasted money a few times on food With labes that i did not read, luckily I read the label again enforce I opened it. Misses like that happen a lt in the early months. I takes a lot of time to change shopping and eating habits. It takes months to find new brands that are good and safe.... As for soup stock, I likeGoBio Organics. :)

To keep your food separate, try buying some green painters tape and label all your food with "Gluten-free" and your name. A big colourful label might help deter them from eating or contaminating your food... I would hope. A separate shelf in the fridge and pantry might be a good idea too - preferably on an upper shef so their crumbs are less likely to fall on your food.

Don't forget to get separate condiments and baking supplies that could be contaminated. Items such sugar, baking powder and soda, corn starch, etc, might have had a flour coated spoon or measuring cup dipped into it during baking. You might want to keep separate continers of things like that.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748

    Kerischultz
    Newest Member
    Kerischultz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kiwifruit
    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
×
×
  • Create New...