Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gurgles, Neck Pain, Headache Ugghh


answerseeker

Recommended Posts

Adalaide Mentor

There are lots of ways to treat endo if it turns out you have it. It can cause pain in really weird places. I end up spending 1-2 days a month in bed feeling sorry for myself in pain. At least once a year it's so bad I can literally not walk for at least half a day.

 

I used hormone birth control for a long time as treatment and it was quite effective. I can no longer use it and instead have turned to home remedies and such to get me through until I can find a suitable surgeon I like. I am electing for radical surgery because of my age and circumstances, and simply having my uterus removed. I don't need nor desire a uterus or period any more, as they are nothing but trouble and pain.

 

If your doctor diagnosis you, you'll be able to work with them to find the best course of action for you. But use the internet and reputable websites with valid medical information to be informed so that you aren't just doing what you're told.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

There are lots of ways to treat endo if it turns out you have it. It can cause pain in really weird places. I end up spending 1-2 days a month in bed feeling sorry for myself in pain. At least once a year it's so bad I can literally not walk for at least half a day.

I used hormone birth control for a long time as treatment and it was quite effective. I can no longer use it and instead have turned to home remedies and such to get me through until I can find a suitable surgeon I like. I am electing for radical surgery because of my age and circumstances, and simply having my uterus removed. I don't need nor desire a uterus or period any more, as they are nothing but trouble and pain.

If your doctor diagnosis you, you'll be able to work with them to find the best course of action for you. But use the internet and reputable websites with valid medical information to be informed so that you aren't just doing what you're told.

I agree, don't just go with the first treatment your doc tosses out. Start with the least invasive approaches, my advice. If they do a laparoscopy they'll probably try to remove what they can during the procedure.

answerseeker Enthusiast

My OB/GYN is going to revisit the possibility at my 6 week ultrasound. The report said the cyst was possibly endometrieom.

Right now they are looking at my kidneys and bladder. Along with this pain I had blood and protein in my urine and it's foul smelling. I'm also lightheaded.

I'll update when I find out what's going on! At least I know where to come for advise if I have endo!

pricklypear1971 Community Regular

My OB/GYN is going to revisit the possibility at my 6 week ultrasound. The report said the cyst was possibly endometrieom.

Right now they are looking at my kidneys and bladder. Along with this pain I had blood and protein in my urine and it's foul smelling. I'm also lightheaded.

I'll update when I find out what's going on! At least I know where to come for advise if I have endo!

Well, bladder and kidney issues can definitely make you sick and miserable. I hope they figure it out soon, and you feel better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,360
    • Most Online (within 30 mins)
      7,748

    Connie Smitj
    Newest Member
    Connie Smitj
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Connie Smitj
      I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I  had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?
    • trents
      Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption again.
    • Joyes
      Interesting for sure. Have you heard of potential cross reactivity to casein (dairy), corn, milket, iats, rice, and yeast?
    • Brown42186
      Thanks for all the info! I'll see how my appointment next week goes. I think I'm going to push for having a blood test done again since I've been consistently eating gluten and go from there.
    • Scott Adams
      At the very least this seems like it could be non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If you want a formal diagnosis the next step would likely be an endoscopy, but again, this would reveal whether or not you have celiac disease, but you still could have NCGS.    
×
×
  • Create New...