Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was Looking For A Welcome Thread.


Aquadan005

Recommended Posts

Aquadan005 Rookie

I was actually looking for a welcome / introduction thread, and unless I'm totally blind I didn't see any. I am newly registered here on Celiac.com and recently diagnosed ( Dec. 2013)

 

I can see this new lifestyle is going to take some getting used to and I'm hoping to get some help, support, encouragement and perhaps a decent pasta recipe to make this transition.

 

First impression on gluten free though....

 

I bought a box of gluten free multi grain rice snack crackers (don't recall the brand) at Wholefoods. When I shook the box they sounded like a box of poker chips. When I opened the box they looked like they had been dipped in some sort of polish (very shiny) and then came the tasting. A cross between bird food and dried alfalfa that I used to feed to my pet chinchilla.   :blink:

 

This is NOT going to be an easy transition!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Welcome!  We just sort of have people jump right in!  

 

Open Original Shared Link

 

(I was looking for someone jumping into a pool or something but this one was too fun to leave behind)

 

 

This might be a helpful thread

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

IrishHeart Veteran

Welcome!    good-morning-smiley-emoticon.gif

 

Don't let one shiny poker chip cracker discourage you. Like anything that comes in a box, there are "good ones" and "yucky ones".

Wander the site, read what appeals to you, and please, do read that Newbie 101 thread. 

(I hear there is some good info there  ;) although that person who wrote it is a little odd.......)

 

You've come to the right place. 

Hang in there. I promise you, it gets easier.

.

bartfull Rising Star

WELCOME!!!! :lol: 

 

Yeah, stick to whole foods at first and when it comes to gluten-free substitutes, it'll be trial and error. Some stuff is really good, some is really bad. For instance, Canyon Bakehouse makes great bread. But if your first taste of gluten-free bread were EnerG tapioca bread like mine was, you'd want to just shoot yourself and get it over with. Do NOT waste your money on that stuff! But DO try the Canyon Bakehouse, or Udi's multi-grain.

 

Check out the gluten-free products thread, and of course the breakfast/lunch/dinner threads. I can't help with pasta becasue I don't eat it. Instead I use white rice - just pour the sauce and meatballs right on and dig in. (I was never a pasta fan and always preferred rice.)

Adalaide Mentor

Welcome!    good-morning-smiley-emoticon.gif

 

Don't let one shiny poker chip cracker discourage you. Like anything that comes in a box, there are "good ones" and "yucky ones".

Wander the site, read what appeals to you, and please, do read that Newbie 101 thread. 

(I hear there is some good info there  ;) although that person who wrote it is a little odd.......)

 

You've come to the right place. 

Hang in there. I promise you, it gets easier.

.

It's totally true, she's kinda a freak.

I bought a lot of duds and a lot of winners. Just accept that it'll be different and try to enjoy it for what it is instead of what it's trying to replicate and you may find an easier time enjoying things. That was the key for me. And remember to keep your sense of humor or you'll end up crazy. Or you may anyway, hanging out with us.

kareng Grand Master

Here's a Welcome to Celiac gift:

Open Original Shared Link

LauraTX Rising Star

Welcome!  I am a year into my celiac diagnosis and it gets better, trust me.  This is the place that helped me the most.  Anything you have questions about, feel free to post and ask, and the search function can get you quick answers on stuff.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Welcome to the Forum!!

 

I'm with you... gluten-free processed crap is crap.  It ain't healthy (in my opinion) and most of it tastes like sawdust or cardboard.  The good thing is that the whole foods that are healthier for you anyhow have always been naturally gluten-free and will make you feel better!

I look at it this way... I used to try to avoid unhealthy carbs and junkfood... now much of the temptation has been taken away because it's not even an option any more.  Actually makes being healthy easier.  And just wait until you realize you've got more energy, look better, feel better, and think better.  It is soooooo worth giving up a few pieces of bread and some noodles!  :)

luvs2eat Collaborator

Welcome!!

 

"Shiny poker chips..." HA HA... your description of them (and I know exactly the chips you're talking about) is perfect!! There ARE better crackers out there.

 

It's all a learning process. You'll weed out the duds quick enough. This is THE place to be for any and all celiac information/support.

Aquadan005 Rookie

Thank you for the welcomes everyone, and a special thanks to "kareng" for the link. I will take all the advice given here and put it to good use I promise. Hopefully soon enough I'll be able to share some experiences and recipes with you all. Thanks again for the warm welcome !! :-)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,260
    • Most Online (within 30 mins)
      7,748

    Elizabeth Tageson
    Newest Member
    Elizabeth Tageson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, I can imagine. My celiac journey started with a rejection of a blood donation by the Red Cross when I was 37 because of elevated liver enzymes. I wasn't a drinker and my family doctor checked me for hepatitis and I was not overweight. No answers. I thought no more about it until six years later when I landed a job in a healthcare setting where I got annual CMP screenings as part of my benefits. The liver enzymes were continually elevated and creeping up every year, though they were never super high. My primary care doc had no clue. I got really worried as your liver is pretty important. I finally made an appointment with a GI doc myself and the first thing he did was test me for celiac disease. I was positive. That was in about 1996. After going on a gluten-free diet for three months the liver enzymes were back in normal range. Another lab that had gotten out of whack that has not returned to normal is albumin/total protein which are always a little on the low side. I don't know what that's about, if it's related to the liver or something else like leaky gut syndrome. But my doctors don't seem to be worried about it. One thing to realize is that celiac disease can onset at any stage of life. There is a genetic component but there is also an epigenetic component. That is, the genetic component is not deterministic. It only provides the potential. There needs also to be some health or environmental stressor to activate the latent gene potential. About 40% of the population have the genetic potential to develop celiac disease but only about 1% actually do.
    • cristiana
      Hello @Heather Hill You are most welcome.  As a longstanding member and now mod of the forum, I am ashamed to say I find numbers and figures very confusing, so I rarely stray into the realms of explaining markers. (I've self-diagnosed myself with dyscalculia!)  So I will leave that to @Scott Adams or another person. However as a British person myself I quite understand that the process with the NHS can take rather a long time.  But just as you made a concerted effort to eat gluten before your blood test, I'd advise doing the same with eating gluten before a biopsy, in order to show if you are reacting to gluten.  It might be worth contacting the hospital or your GPs secretary to find out if they know what the current waiting time is. Here is a page from Coeliac UK about the current NHS recommendations. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=If you remove or reduce,least six weeks before testing. Cristiana  
    • MI-Hoosier
      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Many thanks for your responses, much appreciated.  The tests did include tTg IgA and all the other markers mentioned.  I also had sufficient total IgA so if I'm reading the Mayo clinic thing correctly, I didn't really need the anti-deaminated gliadin marker? So, if I am reading the information correctly do I conclude that as all the other markers including tTg IgA and DGP IgG and tTg IgG and EMA IgA are all negative, then the positive result for the immune response to gliadin, on it's own, is more likely to suggest some other problem in the gut rather than Coeliac disease? Until I have a view from the medics (NHS UK) then I think I will concentrate on trying to lower chronic inflammation and mend leaky gut, using L glutamine and maybe collagen powder. Thank you for your help so far.  I will get back in touch once I have a response, which sadly can take quite a long time.   Kindest Heather Hill 
    • trents
      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
×
×
  • Create New...