Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Needed

eeyor-fan

Recommended Posts

eeyor-fan Contributor
eeyor-fan
Posted

I'm newly diagnosed as Celiac in the last couple months and I'm, on the most part, getting the hang of the whole thing; even contacted 2 of my favorite companies and found out that "Clean and Clear" is gluten-free as well as the "Healing Garden Mint Therapy" bath and body products is gluten-free (not sure about the rest of their products. I've learned alot by reading all your messages but really need help. What would you recommend for pain relievers since I read Tylenol has gluten and I really need help on shampoo, gel, hairspray etc. I know you say Pantene is gluten-free but does that include the new line with amino acids ( I tried to call the company but the rep I got just fell off the turnip truck and her answer was "If it gives tou a rash then do not use it)? I'm looking for something along the line of the biosilk with the sik protein that I cannot use anymore (due to the darn wheat in it) and need something with volume due to the thinning problem I've had. My nutritionist ( who admitted she knew nothing about Celiac and ended up getting fired by me and my doctor for giving me misinformation on my diet) pointed me in the direction of the "Back to Basics shampoo" but that made my scalp a million times worse. I'm in awe of all of you people on this message board because sometimes I'm so lost in all this I'm just not sure if I will ever get it! :(;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

hey there! take a deep breath... it does take some time to replace all of our products. there is a lot! go here to read all of the products i use: Open Original Shared Link

i have thin hair with lots of scalp issues... my favorite shampoo is listed (the rosa mosqueta). i swear my hair looks awesome when i use it--tons of body and lift. i was shocked--it works better than anything else i used before.

where did you read tylenol is not gluten-free? because it is gluten-free--you can go ahead and take it. that goes for canada too. just be aware of generic versions. go here to ck it out: Open Original Shared Link (this is a helpful resource)...

eeyor-fan Contributor
eeyor-fan
Posted
  • Author

Your a life saver. I can not thank you enough. The tylenol thing I think I read on another site and had some bad times with no tylenol. I assume the ones with the gel caps are off limits wouldn't they be? Someimes I don't think my entire body (5 feet tall) is big enough for all this info I'm learning...LOL :P THANK YOU, THANK YOU, THANK YOU!

jrom987 Apprentice
jrom987
Posted

Eeyor - I posted a thing on Paul Mitchell Products. If you can't find it, let me know and I will email a copy of what the company sent to me. I am new too so I share in your fears and concerns. :D Jo Ann

jenvan Collaborator
jenvan
Posted

happy to help!!

eeyor-fan Contributor
eeyor-fan
Posted
  • Author

I found it. Thanks I'll check them out too. My name is Bridget by the way...another user already used my name. :huh:

darlindeb25 Collaborator
darlindeb25
Posted

I only use Pantene and mine has amino proteins in it and I am fine, also very sensitive--so, I know Pantene is ok. I also take Tylenol--dont know that I have had gel tabs--I do take Advil Gel and they are gluten-free. Deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eeyor-fan Contributor
eeyor-fan
Posted
  • Author
I only use Pantene and mine has amino proteins in it and I am fine, also very sensitive--so, I know Pantene is ok.  I also take Tylenol--dont know that I have had gel tabs--I do take Advil Gel and they are gluten-free.  Deb

<{POST_SNAPBACK}>

:D Thanks that helps. I started out in all this with so much misinformation from my former nutrishionist and other uneducated sourced that I ended up so confused and now I'm just trying to sort through it all, forget the wrong stuff, and just get it all straight. I'm really confused and you all could never under stand how deeply I appreciate all your help!

Hugs

Bridget ;)

jenvan Collaborator
jenvan
Posted

bridget-- if i was you, i would also read 'wheat free, worry free' by danna korn. it will educate you on all the aspects of celiac and living gluten free. i ordered mine from amazon but you could get it in a bookstore too.

eeyor-fan Contributor
eeyor-fan
Posted
  • Author
bridget--  if i was you, i would also read 'wheat free, worry free' by danna korn.  it will educate you on all the aspects of celiac and living gluten free.  i ordered mine from amazon but you could get it in a bookstore too.

<{POST_SNAPBACK}>

Ok I'll check it out at my local Barnes and Noble, I just got my own copy of the "Gluten Free Bible" there. B)

jenvan Collaborator
jenvan
Posted

be cautious of the 'gluten free bible'. there have been quite a few discussions on the boards here about that book. many feel that there is misinformation given in it. i've never heard a complaint about danna's book though...

hthorvald Rookie
hthorvald
Posted
be cautious of the 'gluten free bible'.  there have been quite a few discussions on the boards here about that book.  many feel that there is misinformation given in it.  i've never heard a complaint about danna's book though...

<{POST_SNAPBACK}>

Two other books that I live by are: Gluten-Free 101 by Carol Fenster and Gluten-Free Diet by Shelly Case. Both books describe in layman's terms the disease, what to avoid, what to embrace. Both books are very positive, too. And, for the most part, the information seems very accurate.

Check 'em out.

Helen.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,308
    • Most Online (within 30 mins)
      7,748
    Cindy Lou who
    Newest Member
    Cindy Lou who
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      I’m terrified it’s too late for me😭

      By trents · Posted

      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’m terrified it’s too late for me😭

      By Cathijean90 · Posted

      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      diagnostic testing variance

      By trents · Posted

      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...