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At What Age Were You Diagnosed?

fisharefriendsnotfood

At What Age Were You (or Your Loved one) Diagnosed?  

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fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie

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  • Replies 66
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Lisa Mentor
Lisa
Posted
I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie

<{POST_SNAPBACK}>

Interested in seeing the results....good idea.

Lisa B.

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted
  • Author
Interested in seeing the results....good idea.

Lisa B.

<{POST_SNAPBACK}>

Thanks.

-Jackie

Eliza13 Contributor
Eliza13
Posted
I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie

<{POST_SNAPBACK}>

Oh boy....are you ever lucky. I learned this year at 29, after many medical complications.

KaitiUSA Enthusiast
KaitiUSA
Posted

I was diagnosed at 16...I am now 18

Carriefaith Enthusiast
Carriefaith
Posted

I was 22.

ianm Apprentice
ianm
Posted

I was 36 and on the verge of losing everything. You are one of the lucky ones to have been diagnosed so young.

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ravenwoodglass Mentor
ravenwoodglass
Posted
I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie

<{POST_SNAPBACK}>

Your so lucky. I was 45 and had been sick for 15 years, although the depression. DH and nuerological effects started when I was about 7. They couldn't figure out why I had poison ivy all year round. Duhhh. I went through years of very painful shots for that. I was almost totally disabled for the last 5 years before I was diagnosed. And I am not unusual :angry: .

2Boys4Me Enthusiast
2Boys4Me
Posted

My son was 5 (and 3/4) when he was diagnosed. So far, he's the only one in the family with it.

jerseyangel Proficient
jerseyangel
Posted

I was 49 (still am) and have had problems for 20 years. They got a lot worse 2 yrs. ago.

Rachel--24 Collaborator
Rachel--24
Posted

34 and like Ian...on the verge of losing everything. Back on track now.

jrom987 Apprentice
jrom987
Posted

I am 46 and have had symptoms for years and years. I am sure that everyone thought I was a hypochondriac, even my family and doctors! In a weird way, I am glad they found something and now I can "cure" myself. I have so much to learn about being gluten-free but I am off to a good start and this place is such a God send! Thank you!

burdee Enthusiast
burdee
Posted

I'm 58, was diagnosed 18 months ago, but had accepted most of my symptoms as 'normal for me' UNTIL I experienced increasing excruciating abdominal pain after hemorrhoid surgery. That surgery was necessitated by chronic constipation which was due to casein intolerance which I suspected 50 years ago. <_<

BURDEE

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I was 17 when I was diagnosed.

celiac3270 Collaborator
celiac3270
Posted

Diagnosed at 13.

psawyer Proficient
psawyer
Posted

I was 46 when given the diagnosis, but I had symptoms for years before that. I was an undiagnosed celiac for at least 5 years before that. Unexplained gastrointestinal problems since ange 15. Now I think I know what the cause was, but at the time the doctors had no clue.

jmarie Newbie
jmarie
Posted

Diagnosed at 29 after 12 years of severe arthritis and anemia. At 17, they diagnosed me with "autoimmune disorder - unspecified", and they treated just symptoms for years. I assumed my stomach distress was psychosomatic/stress-related until it became so severe that I was vomiting after I ate anything. It would have been nice to be diagnosed earlier, but my gluten-free diet doesn't seem to be helping too much, either.

sonjaf Rookie
sonjaf
Posted

Diagnosed at 35, after having severe symptoms for 3 months. You are lucky you found out so young. I hate having to change my entire lifestyle at my age! :P

happygirl Collaborator
happygirl
Posted

Diagnosed at age 23, right after I was married! Very sick for 10 months before diagnosis. But, had mild GI problems during college.

eherhold Newbie
eherhold
Posted

Diagnosed at 37. Prior to that had problems since age 20 or so. More severe the last 5 (after my daughter was born).

Nicolette Rookie
Nicolette
Posted

Diagnosed this year, aged 33, after twenty-five years of symptoms.

Marjolein Newbie
Marjolein
Posted

I am now 39. I was diagnosed when I was 2 and the doctor said I was cured when I was 9. Was not realy healthy my whole life. Got sick during the hollidays 3 months ago and was diagnosed with.............celiac. So I am learning to eat gluten-free again.

Marjolein

FaithInScienceToo Contributor
FaithInScienceToo
Posted

I was 47, when I self - diagnosed in January '05, and when I was officially diagnosed in Feb 05 -

I went through 2 decades of severe problems.

I am SO happy for those that got diagnosed earlier in life :), and I am also SO happy that I finally found out what was 'wrong with me'...

Love, Gina

TheLibertarian Rookie
TheLibertarian
Posted

<_< I was diagnosed just recently at 25. I was really fortunate because I work in the health care industry and had access to software and dictionaries and reference materials I could research my own symptoms on. If I had'nt, I would never have gotten help.

All-time worst doctor story:Right after getting sick, I noticed my abdomen seemed swollen and large compared to the rest of me. I knew I had been too sick to excercize but I knew this was'nt right. When I brought it up at the doctor's office, she advised me to "do leg lifts."

elonwy Enthusiast
elonwy
Posted

Diagnosed at 27 after years of minor naggling health issues and one year of really bad health. Interestingly enough, my bad symptoms developed after I quit smoking ( diff thread). Seems like theres alot of us here in that age range.

Elonwy

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    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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