Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was It Too Good To Be True?


jrom987

Recommended Posts

jrom987 Apprentice

Help! I had a wonderful gluten free dinner tonight but I need to know if anyone has had any reactions to what I ate. I made DeBoles wheat-free, gluten-free corn spaghetti style pasta with a homemade, very plain, tomato sauce. The only ingredients on the tomato sauce was tomatoes. I have been itching so bad for the last hour or so! I feel bloated too. I have not had any of these symptoms since giving up gluten, two weeks ago. Is this a reaction or just my own body playing tricks on me? Does anyone have any suggestions? I thought I would call the company tomorrow (they are closed now) to ask if cross contamination is possible. Not sure what to do. I did find out that my shampoo (Paul Mitchell) had wheat in it but wouldn't my scalp have started itching this morning? Thank you for any insight! Jo Ann


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

Hi Jo Ann,

I get really bloated and sluggish after eating corn. I used to eat as little as possible, but couldn't resist corn chips or the occasional corn tortilla. However, after reading about how similar corn and soy (my other problem food) are to the gluten and casein (dairy) proteins in Open Original Shared Link, I have just cut it out for good. Those guys are waaay too similar to gluten for me to feel comfortable eating. Better safe than sorry I think - there is very good rice pasta. In fact, one of the best gluten-free pastas around is made from brown rice: Open Original Shared Link

jrom987 Apprentice

Thank you, Cornbread. I still feel so bloated and am so mad at thinking I could have something like real spaghetti. I should have known! It tasted way too good. I will try to avoid corn and see what happens. Do you know why corn on the cob doesn't bother me? I will try that rice pasta. Thanks!

cornbread Explorer

I don't remember corn on the cob bothering me either, just corn when it's ground into a grain... :unsure: I am determined to find out now though!

Are they maybe just from different parts of the plant? :unsure:

darlindeb25 Collaborator

I too have to be very careful with soy/corn. I can eat corn as a veggie and it doesnt bother me at all. I cant have it processed in anyways--corn flour/soyflour both make me ill--I can tolerate soy lecithin and margarines as long as I make sure that soy is not the only ingredient--they say that the proteins in oils are gone from the heating process to make the oil clear--it's the proteins we react to from my understanding. I dont use veg oil or corn oil, I use olive oil--I cant use reg mayo, I get canola oil mayo and I do use tinkyada products. Deb

Guest nini

DeBoles does make gluten containing pastas, so I suppose there is that possibility of cross contamination. You may want to contact the company and let them know you had a reaction, just in case someone got lax in their cleaning procedures...

You can have pasta, just get Tinkyada! It's the best pasta I've found by far, and it's made in a dedicated gluten free facility.

happygirl Collaborator

You mentioned that you gave up gluten two weeks ago....for many people, it takes a longer time for their symptoms to go away (a couple of months, etc) before their body feels back to normal. Just a thought!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kabowman Explorer

I am adding my voice to the corn/soy issues - after going gluten free, I discovered problems with corn and soy both by process of elimination. I can tolerate just enough corn to take my pills but I don't do any more than that in my diet. Soy is even worse for me. I cannot have ANY amount of soy.

There are some really good rice pastas out there...see if changing to that makes the difference.

Mahee34 Enthusiast

I've actually been getting sick from the tomato sauce, I've read the ingrediants and everything looks ok, but i noticed the tomato fiber ingrediant is the common factor between the sauces that make me sick and the ones that don't. Maybe it's just the extra fiber or maybe it's something that triggers my celiac disease...all i know is that it kicks me right in the butt everytime!!

never any problems with the corn pasta though, could be the brand

jrom987 Apprentice

Thank you all for your words of wisdom! I appreciate everyone's input. As a new Celiac, it is so hard to figure everything out alone.

I just called the company and they said that there is "minimal to no risk" of cross contamination as they "practice safe processing procedures". First of all, isn't a minimal risk, still a risk? Second, maybe it was the processed corn that I had a reaction to. I have only suffered from the extreme itchiness a few times in the past but I definitely know what the bloating is! I have quite a bit of gas since eating dinner too.

I know my symptoms will not go away in two weeks but I have felt some relief since starting. The major stomach pains are tolerable now and the bloating has definitely lessened.

Again, thank you! Jo Ann

jrom987 Apprentice

I've actually been getting sick from the tomato sauce, I've read the ingrediants and everything looks ok

Oh no! Please don't tell me that! I am Italian and giving up all my favorite dishes has been so hard. Now, it could be my tomato sauce? Arggg! <_< I guess I will keep learning and learning. I will stay away from tomato sauce for a while and try some rice pasta.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.