Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was It Too Good To Be True?


jrom987

Recommended Posts

jrom987 Apprentice

Help! I had a wonderful gluten free dinner tonight but I need to know if anyone has had any reactions to what I ate. I made DeBoles wheat-free, gluten-free corn spaghetti style pasta with a homemade, very plain, tomato sauce. The only ingredients on the tomato sauce was tomatoes. I have been itching so bad for the last hour or so! I feel bloated too. I have not had any of these symptoms since giving up gluten, two weeks ago. Is this a reaction or just my own body playing tricks on me? Does anyone have any suggestions? I thought I would call the company tomorrow (they are closed now) to ask if cross contamination is possible. Not sure what to do. I did find out that my shampoo (Paul Mitchell) had wheat in it but wouldn't my scalp have started itching this morning? Thank you for any insight! Jo Ann


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

Hi Jo Ann,

I get really bloated and sluggish after eating corn. I used to eat as little as possible, but couldn't resist corn chips or the occasional corn tortilla. However, after reading about how similar corn and soy (my other problem food) are to the gluten and casein (dairy) proteins in Open Original Shared Link, I have just cut it out for good. Those guys are waaay too similar to gluten for me to feel comfortable eating. Better safe than sorry I think - there is very good rice pasta. In fact, one of the best gluten-free pastas around is made from brown rice: Open Original Shared Link

jrom987 Apprentice

Thank you, Cornbread. I still feel so bloated and am so mad at thinking I could have something like real spaghetti. I should have known! It tasted way too good. I will try to avoid corn and see what happens. Do you know why corn on the cob doesn't bother me? I will try that rice pasta. Thanks!

cornbread Explorer

I don't remember corn on the cob bothering me either, just corn when it's ground into a grain... :unsure: I am determined to find out now though!

Are they maybe just from different parts of the plant? :unsure:

darlindeb25 Collaborator

I too have to be very careful with soy/corn. I can eat corn as a veggie and it doesnt bother me at all. I cant have it processed in anyways--corn flour/soyflour both make me ill--I can tolerate soy lecithin and margarines as long as I make sure that soy is not the only ingredient--they say that the proteins in oils are gone from the heating process to make the oil clear--it's the proteins we react to from my understanding. I dont use veg oil or corn oil, I use olive oil--I cant use reg mayo, I get canola oil mayo and I do use tinkyada products. Deb

Guest nini

DeBoles does make gluten containing pastas, so I suppose there is that possibility of cross contamination. You may want to contact the company and let them know you had a reaction, just in case someone got lax in their cleaning procedures...

You can have pasta, just get Tinkyada! It's the best pasta I've found by far, and it's made in a dedicated gluten free facility.

happygirl Collaborator

You mentioned that you gave up gluten two weeks ago....for many people, it takes a longer time for their symptoms to go away (a couple of months, etc) before their body feels back to normal. Just a thought!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kabowman Explorer

I am adding my voice to the corn/soy issues - after going gluten free, I discovered problems with corn and soy both by process of elimination. I can tolerate just enough corn to take my pills but I don't do any more than that in my diet. Soy is even worse for me. I cannot have ANY amount of soy.

There are some really good rice pastas out there...see if changing to that makes the difference.

Mahee34 Enthusiast

I've actually been getting sick from the tomato sauce, I've read the ingrediants and everything looks ok, but i noticed the tomato fiber ingrediant is the common factor between the sauces that make me sick and the ones that don't. Maybe it's just the extra fiber or maybe it's something that triggers my celiac disease...all i know is that it kicks me right in the butt everytime!!

never any problems with the corn pasta though, could be the brand

jrom987 Apprentice

Thank you all for your words of wisdom! I appreciate everyone's input. As a new Celiac, it is so hard to figure everything out alone.

I just called the company and they said that there is "minimal to no risk" of cross contamination as they "practice safe processing procedures". First of all, isn't a minimal risk, still a risk? Second, maybe it was the processed corn that I had a reaction to. I have only suffered from the extreme itchiness a few times in the past but I definitely know what the bloating is! I have quite a bit of gas since eating dinner too.

I know my symptoms will not go away in two weeks but I have felt some relief since starting. The major stomach pains are tolerable now and the bloating has definitely lessened.

Again, thank you! Jo Ann

jrom987 Apprentice

I've actually been getting sick from the tomato sauce, I've read the ingrediants and everything looks ok

Oh no! Please don't tell me that! I am Italian and giving up all my favorite dishes has been so hard. Now, it could be my tomato sauce? Arggg! <_< I guess I will keep learning and learning. I will stay away from tomato sauce for a while and try some rice pasta.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    2. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    5. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.