Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was It Too Good To Be True?

jrom987

By jrom987
in Coping with Celiac Disease

Recommended Posts

jrom987 Apprentice
jrom987
Posted

Help! I had a wonderful gluten free dinner tonight but I need to know if anyone has had any reactions to what I ate. I made DeBoles wheat-free, gluten-free corn spaghetti style pasta with a homemade, very plain, tomato sauce. The only ingredients on the tomato sauce was tomatoes. I have been itching so bad for the last hour or so! I feel bloated too. I have not had any of these symptoms since giving up gluten, two weeks ago. Is this a reaction or just my own body playing tricks on me? Does anyone have any suggestions? I thought I would call the company tomorrow (they are closed now) to ask if cross contamination is possible. Not sure what to do. I did find out that my shampoo (Paul Mitchell) had wheat in it but wouldn't my scalp have started itching this morning? Thank you for any insight! Jo Ann

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cornbread Explorer
cornbread
Posted

Hi Jo Ann,

I get really bloated and sluggish after eating corn. I used to eat as little as possible, but couldn't resist corn chips or the occasional corn tortilla. However, after reading about how similar corn and soy (my other problem food) are to the gluten and casein (dairy) proteins in Open Original Shared Link, I have just cut it out for good. Those guys are waaay too similar to gluten for me to feel comfortable eating. Better safe than sorry I think - there is very good rice pasta. In fact, one of the best gluten-free pastas around is made from brown rice: Open Original Shared Link

jrom987 Apprentice
jrom987
Posted
  • Author

Thank you, Cornbread. I still feel so bloated and am so mad at thinking I could have something like real spaghetti. I should have known! It tasted way too good. I will try to avoid corn and see what happens. Do you know why corn on the cob doesn't bother me? I will try that rice pasta. Thanks!

cornbread Explorer
cornbread
Posted

I don't remember corn on the cob bothering me either, just corn when it's ground into a grain... :unsure: I am determined to find out now though!

Are they maybe just from different parts of the plant? :unsure:

darlindeb25 Collaborator
darlindeb25
Posted

I too have to be very careful with soy/corn. I can eat corn as a veggie and it doesnt bother me at all. I cant have it processed in anyways--corn flour/soyflour both make me ill--I can tolerate soy lecithin and margarines as long as I make sure that soy is not the only ingredient--they say that the proteins in oils are gone from the heating process to make the oil clear--it's the proteins we react to from my understanding. I dont use veg oil or corn oil, I use olive oil--I cant use reg mayo, I get canola oil mayo and I do use tinkyada products. Deb

Guest nini
Guest nini
Posted

DeBoles does make gluten containing pastas, so I suppose there is that possibility of cross contamination. You may want to contact the company and let them know you had a reaction, just in case someone got lax in their cleaning procedures...

You can have pasta, just get Tinkyada! It's the best pasta I've found by far, and it's made in a dedicated gluten free facility.

happygirl Collaborator
happygirl
Posted

You mentioned that you gave up gluten two weeks ago....for many people, it takes a longer time for their symptoms to go away (a couple of months, etc) before their body feels back to normal. Just a thought!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kabowman Explorer
kabowman
Posted

I am adding my voice to the corn/soy issues - after going gluten free, I discovered problems with corn and soy both by process of elimination. I can tolerate just enough corn to take my pills but I don't do any more than that in my diet. Soy is even worse for me. I cannot have ANY amount of soy.

There are some really good rice pastas out there...see if changing to that makes the difference.

Mahee34 Enthusiast
Mahee34
Posted

I've actually been getting sick from the tomato sauce, I've read the ingrediants and everything looks ok, but i noticed the tomato fiber ingrediant is the common factor between the sauces that make me sick and the ones that don't. Maybe it's just the extra fiber or maybe it's something that triggers my celiac disease...all i know is that it kicks me right in the butt everytime!!

never any problems with the corn pasta though, could be the brand

jrom987 Apprentice
jrom987
Posted
  • Author

Thank you all for your words of wisdom! I appreciate everyone's input. As a new Celiac, it is so hard to figure everything out alone.

I just called the company and they said that there is "minimal to no risk" of cross contamination as they "practice safe processing procedures". First of all, isn't a minimal risk, still a risk? Second, maybe it was the processed corn that I had a reaction to. I have only suffered from the extreme itchiness a few times in the past but I definitely know what the bloating is! I have quite a bit of gas since eating dinner too.

I know my symptoms will not go away in two weeks but I have felt some relief since starting. The major stomach pains are tolerable now and the bloating has definitely lessened.

Again, thank you! Jo Ann

jrom987 Apprentice
jrom987
Posted
  • Author

I've actually been getting sick from the tomato sauce, I've read the ingrediants and everything looks ok

Oh no! Please don't tell me that! I am Italian and giving up all my favorite dishes has been so hard. Now, it could be my tomato sauce? Arggg! <_< I guess I will keep learning and learning. I will stay away from tomato sauce for a while and try some rice pasta.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    2. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    3. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    5. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • RMJ
      nothing has changed

      By RMJ · Posted

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.