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Can Dh Be Strictly On Lips?

OHtummytroubles

By OHtummytroubles
in Dermatitis Herpetiformis

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OHtummytroubles Rookie
OHtummytroubles
Posted

Having a pretty intense reaction the last few days where my lips are very inflamed. It's not just "chapped lips". Have a few noticeable bumps w fluid. The rest of my lips around them fee like sandpaper. Like mini lip colored bumps that you wouldn't be able to see just looking at me. It's über uncomfortable. I did try a probiotic for two days while this breakout happened. Thought maybe an allergic flare to it; but I have always suspected I have celiac, and it just so happens I made beef and noodles the day I had this strong reaction. In the beef and noodles I used wylers bouillon cubes and it was so super salty. Could the salt in the bouillon cubes and the noodles have caused a lip DH outbreak if I do in fact have celiac, or are lips precluded from DH normally?

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squirmingitch Veteran
squirmingitch
Posted

I've had dh everywhere but my lips. Shhhhhhhhhhhhhhhhhhhh, I don't want the dh gremlins to hear me say that! Some people have said they get it in the corners of their lips but not many at all have reported that. Truthfully, I would look elsewhere for the cause of your lip problems. Sure, salty foods can really dry out your lips & mine have gotten sort of chapped from salty foods before.

MGR Apprentice
MGR
Posted

Hi there, I do get the blisters around and inside my mouth as soon as I ingest the tyniest amount of gluten.... First, intense tingling, like electric currents flowing around my mouth.. FIRE and an explosion of watery blisters around my mouth ( I generally get them on my top lip),, on the inside part of my lip inside the mouth, ion the palate and around the ridges, extremely painful when eating.... And sooooo iITCHY- you just HAVE to scratch- but you can't, because it gets worse- then they also appear on my scull soo painful and itchy like fire again- on my forehead, legs, around my genital area... I don't get them as bad as some people I have heard of on this forum... As I also get the digestive issues and my joints.... I don't wish them on anyone... I just want to cry when I see pictures of badly affected individuals with DH...

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

is it possible it could be angular cheilitis?  Open Original Shared Link I have not gotten it at all since going gluten-free, but it is painful and I had to put fungal cream on my lips...attractive  :P

OHtummytroubles Rookie
OHtummytroubles
Posted
  • Author

Thanks for the responses. I no longer have the "bumps"; just a completely swollen bottom lip:( It looks like lip injections gone wrong (or what I would imagine that to look like). Of course it hurts and burns. I had taken a probiotic for the first time the same day I ate the beef and noodles and this is when the swelling started. I saw my allergist who only gave me instructions of "stop probiotic/start mangosteen". So; a week later i haven't been taking the probiotic (Culturelle), but I still have a swollen owie bottom lip. So frustrating! I know I have multiple food allergies, but they have never caused this reaction in the past...why now? And How would I ever know what food or item is causing the reaction? :( Pretty tired of seeing the allergist when they can't give me good answers. All they ever say is "wow, you are allergic to alot", and "try to avoid the food you are allergic to"...which are way to numerous to avoid according to the allergy tests.

kareng Grand Master
kareng
Posted

Thanks for the responses. I no longer have the "bumps"; just a completely swollen bottom lip:( It looks like lip injections gone wrong (or what I would imagine that to look like). Of course it hurts and burns. I had taken a probiotic for the first time the same day I ate the beef and noodles and this is when the swelling started. I saw my allergist who only gave me instructions of "stop probiotic/start mangosteen". So; a week later i haven't been taking the probiotic (Culturelle), but I still have a swollen owie bottom lip. So frustrating! I know I have multiple food allergies, but they have never caused this reaction in the past...why now? And How would I ever know what food or item is causing the reaction? :( Pretty tired of seeing the allergist when they can't give me good answers. All they ever say is "wow, you are allergic to alot", and "try to avoid the food you are allergic to"...which are way to numerous to avoid according to the allergy tests.

 

 

I don't really know how to help you.  You might try limiting your food to a few safe ones and then add foods back in 1 at a time.  

 

Just wanted you to know - I had just read your post when my niece called.  Her little guy was at the ER.  He woke up with swollen lips - like he had had too much lip injections.  They can't really say what it is but it might be an allergy.  He is trying Benadryl to see if that helps.  If t helps, she will have to try to figure out what he is allergic, too.  In his case, it looks like a contact allergy.  She is washing his bedding and bed toys.  He may have tracked something in on his shoes or clothes.  Anyway, just wanted you to know you aren't alone.

  • 1 month later...
raisinflames Newbie
raisinflames
Posted

Hmm, I have one "blister"on my lip which is more like a painful, burning cyst.  Every time I pick at it, my eyes swell with tears, it is sooo painful. It is right under/attached to my bottom lip and will not decrease or go away.  I peel off a new layer of skin every few days just because it feels good to do so, and the skin is weird irregular shape.

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