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- trents replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Conflicting results
Statistically, the incidence of IBS and other bowel disorders is higher in the celiac population than it is in the general population. Still, I would take one thing at a time. There is significant reason to believe your son does have celiac disease and there is no nasty prep needed for that endoscopic procedure. Assuming that he does have either celiac disease... -
- Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Conflicting results
Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac. But there is a niggling doubt as I try and... -
- Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Conflicting results
As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet. -
- Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10
Conflicting results
Thank you. The borderline IgA deficiency is something I was wondering. Basically my query comes about because he had been offered an endoscopy to check for coeliac but a colonoscopy to check for IBD. We are keen to go ahead with endoscopy but trying to decide on the colonoscopy and the likelihood of it being coeliac is what is aiding our decision. His... -
- Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10
Conflicting results
PS - I forgot to mention, was he eating a lot of gluten daily for 6-8 weeks leading up to all blood tests? If not, this can cause lower than normal antibody results.
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Statistically, the incidence of IBS and other bowel disorders is higher in the celiac population than it is in the general population. Still, I would take one thing at a time. There is significant reason to believe your son does have celiac disease and there is no nasty prep needed for that endoscopic procedure. Assuming that he does have either celiac disease or NCGS, it is likely that a gluten-free diet corrects his symptoms and there would be no need to pursue a lower GI and it's nasty prep. I would also add that the immune system of a child his age is not mature. It's in flux. Because of this, celiac disease testing can yield erratic results. And I would also add that some experts believe that NCGS can be a precursor to the development of celiac disease. If this is true, there would seem to be transition phases. I hope you will keep us posted. -
Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac. But there is a niggling doubt as I try and make the right choice… I just want him to get better and be happy again!
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By Scott Adams · Posted
As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet. -
Thank you. The borderline IgA deficiency is something I was wondering. Basically my query comes about because he had been offered an endoscopy to check for coeliac but a colonoscopy to check for IBD. We are keen to go ahead with endoscopy but trying to decide on the colonoscopy and the likelihood of it being coeliac is what is aiding our decision. His inflammatory bloods are normal and so are stool tests. We basically are trying to decide the likelihood of being coeliac… If that likelihood is high then we are wondering whether or not to put him through the stress of the prep for the colonoscopy. Or see if the endoscopy confirms coeliac then decide after… He has been eating gluten containing cereal plus toast… Then sandwich plus all snacks gluten! We are naturally a low gluten family as dad is coeliac.
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By Scott Adams · Posted
PS - I forgot to mention, was he eating a lot of gluten daily for 6-8 weeks leading up to all blood tests? If not, this can cause lower than normal antibody results.
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