Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Eat - Weight Loss Issues Now


Tanikit

Recommended Posts

Tanikit Newbie

I started a low carbohydrate diet in August 2013 - I am a type 1 diabetic who had been on far too much insulin for a long time having frequent hypoglycaemia. When I finally managed to get referred to someone who could help, I was put on carb counting and immediately dropped to low carbs to try to loose all the extra weight I had put on on the set insulin. The weight came off and then stabilised around November 2013 and my sugar levels looked a lot better, though still reasonably far from what would be considered normal.

 

I was still suffering from asthma, hypothyroidism, depression and PMDD and started doing some research regarding how these can all be connected. I found a site that linked many auto immune conditions to PMDD and suggested a diet to help. I got help with this as the diet would not have worked with the diabetes and the low carb diet I was following and was told to go gluten free and dairy free - a month in and I also had to go soy free. Two months in I was eating mostly vegetables and meat and doing much better - no asthma at all, better moods, but was still losing weight and was now below my ideal body weight (6 pounds below where I had planned to stop losing weight). They suspect I am outright celiac though have not ever had a biopsy.

 

It was then suggested that I had SIBO and that the solution for that is usually to go on almost no carbs - no fruit, no sugars and few starches. I could not do that as with the diabetes I was still having frequent hypoglycaemia even on tiny doses of insulin and in order to function I had to eat dextrose or some form of very high GI food - I did try to switch to fruit juice to treat these lows.

 

However in month 3 now of this diet my mood is all over the place. I am waking with chest pains every morning despite tests that say my potassium and magnesium in my blood are normal, I still had an increased PR wave on my ECG - I have had a number of ECGs in my life and they have never shown abnormalities at all. My sugars are also all over the place worse than they have been for a while.

 

It seems I respond in anger and depression, feeling overwhelmed and battling to concentrate to a LOT of foods - it has been advised that I stop rice and corn and dates and most fruit. Even quinoa is suspect. 

 

However at the same time I cannot afford to lose any more weight and I do not know how to eat properly when I cannot eat so many things (even avocados and bananas and tomatoes are suspect). I am now 9 pounds below the weight I should have stopped losing at.

 

Does anyone know of a diet that can help with this - I am getting desperate - I need to be able to function and also get all the nutrients I need. I am on a multivitamin, omega 3, calcium, magnesium and zinc supplements also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Try reading Dr. Berstein's diabetes solution. He is a type 1 diabetic who emphasizes a very low carb diet, exercise and insulin to manage blood sugar levels effectively.

Are you monitoring your blood sugar carefully? You should know by now what foods or exercise can cause your blood sugars to fluctuate. Juice is not good to take when you are hypo. Use glucose tablets (or glucose-based candy) based on your body weight to bring up your blood sugar levels and avoid a big spike. Your current diet of rice, corn and dates has got to go.

If your are eating low carb and consuming enough calories and keeping your blood sugar in line, then your weight should stabilize. What is your BMI, body fat percentage? Etc.

I urge you to find a diabetes clinic (or read the book) who will get you off your diabetic roller coaster ride. Address the diabetes and your other symptoms may improve.

Tanikit Newbie

Thanks for the reply.

 

My BMI is 20.5 - which sounds great actually, but I know I should weigh more than I do. 

 

I am monitoring my blood sugar 6-12 times a day - I have had trouble with night monitoring recently though as I am incredibly exhausted (night testing I find for me needs to be done at least 4 times a month and means waking every 2 hours - I think 1 hour is recommended, but then they presume your basals do not change as much as mine seem to) and since my basal rates change constantly (they really do - though it is said they should not - most of this is caused by my menstrual cycle - I also have PMDD and that is supposed to make things worse as far as sugar level control goes). It is also the initial reason I went on the gluten free diet.

 

I was told to switch to 100% fruit juice for treating lows rather than the dextrose tablets I had been taking - this was to try to get rid of all processed foods and specifically colorants and flavorants - I know there are naturally flavored glucose tablets available in America, but I live elsewhere and they are incredibly hard to get hold of - I have asked the supplier to order some and it is clearly a problem as even the ones with flavoring and coloring have not made it into this country recently - no idea why, but they are out of stock of all of them now.

 

The calories is an issue - I have never checked how many calories I am eating - the nutritionist suspects I am around 1000-1200 per day which is too little - I know they advise avocados and also nut butters to increase calories - I seem not to tolerate peanut butter so have switched to other butters and I cannot handle avocados and land up nauseous soon after eating any (this has been since I was a child).

 

A few days back I did switch back to just meat/fish/eggs and vegetables with almost no fruit (just pieces of fresh apple - never a whole apple as it is too many carbs) and my sugars did improve greatly and my mood and ability to concentrate has also improved - but again, this is a terribly restrictive diet to remain on long term. 

 

So for anyone on a very restrictive diet like this: how do you cope with it - do you constantly look up new recipes, or cook the same old things (I made stew and ate it breakfast, lunch and supper yesterday) I am also preparing food for my children who need a gluten free dairy free diet but without any other restrictions (and they do need carbs) and my husband who is vegetarian and is not restricted in any other way (so eats gluten and dairy and soy) which means by the time I get to prepare my food I am sick of food and do not want to make any more.

cyclinglady Grand Master

Although I'm a pretty good authority on Celiac Disease (I was diagnosed a year ago, but my husband has been gluten free for 13 years), I'm new at Diabetes.  

 

Your BMI is fine.  Don't worry about that.  Just make sure you are tracking your calories for your current weight (or more if you want to gain).  

 

You need to be concerned (and you are) about your diabetes first over your other illnesses.  

 

Who told you to switch to juice to bring up your blood sugars?  An endocrinologist?  A medical doctor?  Forget "natural" you need glucose.  Fructose found in fruit and juices will only give you a wild swing.  You can not control it.  That's why you need glucose tablets or glucose candy.  Search the internet for how you can accurately dose to bring up your sugar level but not go too high.  The glucose tablets or candy will give you control.  

 

Check out a few diabetes forums like TuDiabetes.  They'll be able to give you support.  

 

I am on a very low carb diet 35 to 50 carbs/day.  I mostly eat meat, fish, and veggies.  I only use soy milk in my coffee (allergic to milk).  I'm testing to determine what other foods I can eat without spiking over 140 post meals.  

 

I too, am sick of cooking three meals a day for my family, but if it's cooked, they are eating the same thing as me.  My daughter gets pre-packaged gluten foods that she takes to school.  She also has access to all fruits and veggies and milk products.  My husband who is also gluten free, eats low carb with me.  He can indulge out of the house!  

 

I try to vary my veggies and I eat pretty simply.  It is hard, but seeing good results is my reward. 

 

Dealing with hypoglycemia is difficult and can be dangerous! 

 

Please see if you can get some expert help!  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to alimb's topic in Coping with Celiac Disease
      1

      How to keep water down?

    2. - alimb posted a topic in Coping with Celiac Disease
      1

      How to keep water down?

    3. - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

    4. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,548
    • Most Online (within 30 mins)
      7,748

    Bissy
    Newest Member
    Bissy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Get someone to take you to the local ER and get some IV fluids on board. You already are or are at risk for serious dehydration. If you have no one who can transport you or you are too weak to make the trip in a car, call 911.
    • alimb
      Hi, I don't know if this is the right topic, but I've been glutened and I'm having a horrible time trying to keep even a sip of water -or any liquid- down. I've gotten to the point of which I'm having dry-heaving episodes because there's nothing left to vomit, and it's incredibly painful and I'm so weak and lightheaded as a result. If I try even taking the tiniest sip of water, doesn't matter how long after I vomit, I start feeling nauseous and I no longer have the energy to try fighting keeping it down. Is there anything I can do to try keeping it down? I've taken prescribed zofran and dicyclomine already.
    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
×
×
  • Create New...