Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Have Celiac Without Anemia Or B12 Defiency?


captainjacksparrow

Recommended Posts

captainjacksparrow Newbie

Hey, I am new here.

 

I been having many symptoms celiacs disease, including clasic and non classic symptoms, neurological problems and even Alopecia Totalis (since the age of 19, no eyebrows etc). However, my CBC, Iron and B12 are allways normal. I have had low Iron levels once, when I was a kid, but when I do my routine blood tests each year, theyare fine.. Althoug,  I have had low levels of potasium good few times, but they werent above the norm.

 

 

I recived my CBC, b12, Iron blood results just few days, stil waiting for my antibody results to come back in few weeks.

 

My symptoms I experience are:

 

Frequent infections, colds (every year)

Alopecia universalis (Not even one hair on the body)

Eczemas

Nail problems

Fungal infections

Spots

Frequent nasal bleeds (especially when I was a kid)

Bloating, gas, GERD, fatty stools, diarhea

Enamel problems

Lip sores

Hot flushes

Cold hands and feet

Nasal congestion

Dry skin

Sore eyes

Heat intolerance

Swolen neck lymph nodes

Bleeding gums

Bruising

Blacking out when standing

Dizzines during physical activity

Dandruff

ADD, brain fog, anxiety, severe depression, extreme fatigue, memory problems, panic attacks when I was a kid. etc..

Weight gain and loss

Unable to gain muscle

 

 

So my main concern was, if it is possible to have Celiac without ANEMIA, folate or b12 deffency?

 

 

I really wish it was Celiac, this would mean a possible end of my problems. As I am 23 yo and been feeling like an old man since I was a little kid..

 

P.S. I got my thyroid checked few times and all came clear.Not sure if thyroid tests can show Heshimotos though. My GP thinks that I am a hypocondriac,  so do I sometimes..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

It's possible to have celiac without anemia, yes.

For a long time, I did not show B-12 or folate of Vit D deficiencies until I was really sick. 

There are dozens of celiac-related symptoms and conditions and you do not have to have all of them to be a celiac.

You may have a folate deficiency or a Vitamin D or K deficiency (but the tests they did on you will not show those).

 

Your other symptoms speak volumes, hon.  

 

The antibody tests don't usually take a few weeks, you may get word soon. Hang in the there and welcome to the forum!

Alwayssomething Contributor

I know that you said your vitamin levels are normal, but sometimes just because they are within the normal range on the lab paperwork it doesn't really mean it is suffecient.   If you are the low end of normal, then you can be defiecient.  Also not everyone is the same so one person may feel good with a B12 number of say 200 (the lowest end of normal) and some may feel horrible at that number.   Do you happen to have the ranges and the actual counts. 

 

For me, for some reason I have become more deficient since I have been gluten free, maybe becuase I was getting the majority of those  vitamins as an added ingredient to my breads and stuff in the past???  I don't really know the reason but with my supliments I am back to a nice middle of the line normal range now. 

captainjacksparrow Newbie

It's possible to have celiac without anemia, yes.

For a long time, I did not show B-12 or folate of Vit D deficiencies until I was really sick. 

There are dozens of celiac-related symptoms and conditions and you do not have to have all of them to be a celiac.

You may have a folate deficiency or a Vitamin D or K deficiency (but the tests they did on you will not show those).

 

Your other symptoms speak volumes, hon.  

 

The antibody tests don't usually take a few weeks, you may get word soon. Hang in the there and welcome to the forum!

 

 

Thank You! Btw, I am also in Ireland! It is reassuring. I am so fed up with me being sick for so long.But I dont wanna loose hope..

captainjacksparrow Newbie

I know that you said your vitamin levels are normal, but sometimes just because they are within the normal range on the lab paperwork it doesn't really mean it is suffecient.   If you are the low end of normal, then you can be defiecient.  Also not everyone is the same so one person may feel good with a B12 number of say 200 (the lowest end of normal) and some may feel horrible at that number.   Do you happen to have the ranges and the actual counts. 

 

For me, for some reason I have become more deficient since I have been gluten free, maybe becuase I was getting the majority of those  vitamins as an added ingredient to my breads and stuff in the past???  I don't really know the reason but with my supliments I am back to a nice middle of the line normal range now. 

From now on, I will ask a copy of the results. I think I am entitled to it by low..

NoGlutenCooties Contributor

Hi Captain Jack and Welcome to the Forum!  Argh!

 

Nutrient deficiencies are common but not required.  I have always been "borderline" anemic, but still in the normal range - the doctors always just said that was typical for a skinny white woman.  I have never had any other nutrient deficiencies or even borderline bloodtest results. Even my Vitamin D levels have always been good - even though I discovered I have osteopenia at 40 years of age (hoping to correct that now that I'm gluten free).

Gemini Experienced

captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cmc811 Apprentice

My symptoms I experience are:

 

Frequent infections, colds (every year)

Alopecia universalis (Not even one hair on the body)

Eczemas

Nail problems

Fungal infections

Spots

Frequent nasal bleeds (especially when I was a kid)

Bloating, gas, GERD, fatty stools, diarhea

Enamel problems

Lip sores

Hot flushes

Cold hands and feet

Nasal congestion

Dry skin

Sore eyes

Heat intolerance

Swolen neck lymph nodes

Bleeding gums

Bruising

Blacking out when standing

Dizzines during physical activity

Dandruff

ADD, brain fog, anxiety, severe depression, extreme fatigue, memory problems, panic attacks when I was a kid. etc..

Weight gain and loss

Unable to gain muscle

 

The simple answer is that anything is possible with Celiac! My 5 yr old son is currently being tested and he has the symptoms that I made bold in your list. His alopecia is Alopecia Areata, not Universalis, but regardless it's still autoimmune and he was diagnosed at 20 months old when all his hair fell out. We thought he did have universalis initially but after about a year it all grew back and now he just gets the random round patches of hair loss that are classic for the areata presentation. His CBC is mostly normal except for low red blood cell count. His hemoglobin and hematocrit are in the lowest range of normal. All other labs have been normal. He also has asthma, abdominal pain, nausea, chronic constipation and is gaining weight very slowly. His height growth has remained at a steady rate, but he hasn't been gaining weight so his weight/height and BMI numbers have dropped significantly. Doctor thought there was no way he had Celiac, but I tested positive so I am demanding it be looked into further by a pediatric GI. Everyone's presentation is a bit different so it's great that you had the testing done. Your symptoms are definitely suggestive with or without deficiencies.

captainjacksparrow Newbie

The simple answer is that anything is possible with Celiac! My 5 yr old son is currently being tested and he has the symptoms that I dissappearold in your list. His alopecia is Alopecia Areata, not Universalis, but regardless it's still autoimmune and he was diagnosed at 20 months old when all his hair fell out. We thought he did have universalis initially but after about a year it all grew back and now he just gets the random round patches of hair loss that are classic for the areata presentation. His CBC is mostly normal except for low red blood cell count. His hemoglobin and hematocrit are in the lowest range of normal. All other labs have been normal. He also has asthma, abdominal pain, nausea, chronic constipation and is gaining weight very slowly. His height growth has remained at a steady rate, but he hasn't been gaining weight so his weight/height and BMI numbers have dropped significantly. Doctor thought there was no way he had Celiac, but I tested positive so I am demanding it be looked into further by a pediatric GI. Everyone's presentation is a bit different so it's great that you had the testing done. Your symptoms are definitely suggestive with or without deficiencies.

 

 

Hey, thank You for Your reply.For me the hair loss started when I was 8 years old. I used to get oval bald patches, which used to regrow. When I hit 19 my eyebrow started to dissappear.At the age of 22 I lost all my hair. And now, my naills ar affected.. I did gluten challenge few months ago. I had my hair regrowing after 2 weeks on gluten-free diet. It was just ear hair and facial hair, very small etc.. Then I begged my GP for celiac tests snd told all the stories about the other people that didnt have any classic symptoms and so on, told showed her a full list of my symptoms I experience and had experienced and she agreed to test me for the last time. I said to her that I will focus on my mental health if they will be negative. However, on the gluten chalange my anxiety was out of the roof! I wonder if it was the so called gluten withdrawal. As gluten is like opiate haha..

captainjacksparrow Newbie

captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)

 

 

captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)

 

 

captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)

Hahah.I know that I am a hypocondriac my self. But like hair loss, infections, bleedings etc..Not sure if hypochondria can be so powerful to create these symptoms.. ha

GottaSki Mentor

Hahah.I know that I am a hypocondriac my self. But like hair loss, infections, bleedings etc..Not sure if hypochondria can be so powerful to create these symptoms.. ha

 

Sometimes Hypochondria is caused by the failure of many doctors not running the correct tests.

 

Sometimes telling their patients they are perfectly healthy and their symptoms are all in their heads.

 

Sometimes leaving them with actually symptoms for many years.

 

Sometimes it is all in our guts, rather than our heads.

 

and then sometimes folks simply have Hypochondria (but those should have their gut checked too)

 

Welcome to the forum Captain Jack :)

IrishHeart Veteran

Thank You! Btw, I am also in Ireland! It is reassuring. I am so fed up with me being sick for so long.But I dont wanna loose hope..

 

 

I do not live in Ireland, capt'n jack. I wish I did. I have been there many times, but I live in the US. 

 

No,no, no...now..come on...do not lose hope! :) Please...we're here for you! We've walked in your shoes!!.

Even if that test is negative, you could try a gluten-free diet and get rid of the symptoms.

 

Many people with NCGS (non-celiac gluten sensitivity) have similar symptoms that resolve on a G F diet.

captainjacksparrow Newbie

I do not live in Ireland, capt'n jack. I wish I did. I have been there many times, but I live in the US. 

 

No,no, no...now..come on...do not lose hope! :) Please...we're here for you! We've walked in your shoes!!.

Even if that test is negative, you could try a gluten-free diet and get rid of the symptoms.

 

Many people with NCGS (non-celiac gluten sensitivity) have similar symptoms that resolve on a G F diet.

I tought You were from Ireland:))) I will! I am just so fed up of being sick and tired all the time. I even broke up with my girlfriend do to my problems... Thank You! I am 8 day on gluten-free diet. As I am not willing to wait 18 months for the biopsy if the tests indeed will be positive. But to be honest I feel worse.. The second day of gluten-free was amazing, but it was probably a placebo... However my stomach was really feeling very weird at that day.

Bmitchell2226 Newbie

Hi Captain Jack and Welcome to the Forum!  Argh!

 

Nutrient deficiencies are common but not required.  I have always been "borderline" anemic, but still in the normal range - the doctors always just said that was typical for a skinny white woman.  I have never had any other nutrient deficiencies or even borderline bloodtest results. Even my Vitamin D levels have always been good - even though I discovered I have osteopenia at 40 years of age (hoping to correct that now that I'm gluten free).

Hello I am very new to the forum. I also have normal iron levels as of a year ago. I have not been technically diagnosed with celiac yet. I do have a lot of symptoms that have been going on for years: stomach ache after eating, eye problems, some minor neurological problems, and really feeling very crappy and sometimes just feel very weak and sick. The list goes on and I would love to share information if at all possible. Thank you

IrishHeart Veteran

I tought You were from Ireland:))) I will! I am just so fed up of being sick and tired all the time. I even broke up with my girlfriend do to my problems... Thank You! I am 8 day on gluten-free diet. As I am not willing to wait 18 months for the biopsy if the tests indeed will be positive. But to be honest I feel worse.. The second day of gluten-free was amazing, but it was probably a placebo... However my stomach was really feeling very weird at that day.

 

 

You may feel worse before you feel better. Healing the gut  is an up and down road. Just be patient.

Here is your new motto: Every day is a healing day.

 

Please read this entire thread I have linked below  so you understand everything about cross contamination. Just BELIEVE you can get well! And as corny as this sounds, remaining hopeful and positive (and not fretting anymore) is very beneficial. Stress creates inflammatory cytokines in our bodies and we don't need that. 

 

Drink a lot of water, take a probiotic, stay completely G F (scrutinize everything before you eat it) and try and relax now.  I know how hard it is to

feel lousy for so long, but it gets better, I promise.

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

CaliSparrow Collaborator

Stress creates inflammatory cytokines in our bodies and we don't need that.

I believe that is what is going on with me. I was about to post a topic asking about stress and decided to do a search first. Thanks!
captainjacksparrow Newbie

You may feel worse before you feel better. Healing the gut  is an up and down road. Just be patient.

Here is your new motto: Every day is a healing day.

 

Please read this entire thread I have linked below  so you understand everything about cross contamination. Just BELIEVE you can get well! And as corny as this sounds, remaining hopeful and positive (and not fretting anymore) is very beneficial. Stress creates inflammatory cytokines in our bodies and we don't need that. 

 

Drink a lot of water, take a probiotic, stay completely G F (scrutinize everything before you eat it) and try and relax now.  I know how hard it is to

feel lousy for so long, but it gets better, I promise.

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 

So the blood tests came back all normal! I am lost and depressed. My GP says its one hundred percent not celiac and it is just stress. I am 14th day of gluten free. Feel a little better ,but I dont know if its gluten or not. I will stick to gluten challenge at least for few months.. I am so lost and just want to cry. GP told that all the tests are within the normal limit..... I asked for a copy so should receive them this afternoon. However, when I was on gluten, I used to have diarrhoea, small and fatty stools. And when I am on gluten free diet, they are all gonne. I am also on diary free,as diary makes me sick as well.... I wont give it up...

NoGlutenCooties Contributor

So the blood tests came back all normal! I am lost and depressed. My GP says its one hundred percent not celiac and it is just stress. I am 14th day of gluten free. Feel a little better ,but I dont know if its gluten or not. I will stick to gluten challenge at least for few months.. I am so lost and just want to cry. GP told that all the tests are within the normal limit..... I asked for a copy so should receive them this afternoon. However, when I was on gluten, I used to have diarrhoea, small and fatty stools. And when I am on gluten free diet, they are all gonne. I am also on diary free,as diary makes me sick as well.... I wont give it up...

 

There is absolutely no way a doctor can say 100% anything based on the Celiac blood tests.  They simply just aren't that accurate.  False positives are much more rare, but false negatives are not particularly uncommon.  And then there is always non-Celiac gluten intolerance, in which the tests come back negative but you still get all the symptoms and still improve on a gluten-free diet.  In my opinion, you're doing the right thing by trying a strictly gluten-free diet for a few months.  You've already seen symptom improvement - which to me is much more telling than the blood test results.  I know not having an "official" diagnosis can be frustrating, but if it means you can still get healthy it's not the end of the world.

 

Oh... and usually when people say they are on a gluten challenge they mean they are temporarily eating gluten for the purpose of getting tested.  It sounds like you're trying gluten free for a few months, so you're actually done with the challenge.  (or you never did a challenge because you were never gluten free before)...  Anyhow... just wanted to clarify that for others who may read this and get confused.

captainjacksparrow Newbie

There is absolutely no way a doctor can say 100% anything based on the Celiac blood tests.  They simply just aren't that accurate.  False positives are much more rare, but false negatives are not particularly uncommon.  And then there is always non-Celiac gluten intolerance, in which the tests come back negative but you still get all the symptoms and still improve on a gluten-free diet.  In my opinion, you're doing the right thing by trying a strictly gluten-free diet for a few months.  You've already seen symptom improvement - which to me is much more telling than the blood test results.  I know not having an "official" diagnosis can be frustrating, but if it means you can still get healthy it's not the end of the world.

 

Oh... and usually when people say they are on a gluten challenge they mean they are temporarily eating gluten for the purpose of getting tested.  It sounds like you're trying gluten free for a few months, so you're actually done with the challenge.  (or you never did a challenge because you were never gluten free before)...  Anyhow... just wanted to clarify that for others who may read this and get confused.

 

 

This what I meant, sorry for confusing... But can gluten intolerance cause alopecia totalis, nail ridging and so on ??? I will try, although I starting to loose hope, but I wont give up.. I had been bitten by two ticks when I was a kid, will try and will get tested for Lymes disease, also Lupus..  Even though it is less common in men.. If You wont mind I will post my results later on in this thread. Or should I create a new one?

GF Lover Rising Star

Hi Captain.  You can post your results here or start a new topic.  

 

I would get tested for Lyme's, Lupus is probably unlikely as you would have a positive ANA and I'm assuming your Doc would have seen that with general blood work.  I haven't read your history so excuse me if you've already covered that.  I'm also assuming you have had nutritional testing?

 

Colleen

NoGlutenCooties Contributor

This what I meant, sorry for confusing... But can gluten intolerance cause alopecia totalis, nail ridging and so on ??? I will try, although I starting to loose hope, but I wont give up.. I had been bitten by two ticks when I was a kid, will try and will get tested for Lymes disease, also Lupus..  Even though it is less common in men.. If You wont mind I will post my results later on in this thread. Or should I create a new one?

 

From what I understand of NCGI, you can get all of the same symptoms and issues that folks with Celiac can get.  The only difference is that the blood test and biopsy are negative.  (If there are other differences, hopefully someone more knowledgable about NCGI will chime in here).  And by all means, post your test results.  You should probably start a new thread so more people will see it.  There are quite a few folks on here that are very good at reading the various test results.

captainjacksparrow Newbie

You may feel worse before you feel better. Healing the gut  is an up and down road. Just be patient.

Here is your new motto: Every day is a healing day.

 

Please read this entire thread I have linked below  so you understand everything about cross contamination. Just BELIEVE you can get well! And as corny as this sounds, remaining hopeful and positive (and not fretting anymore) is very beneficial. Stress creates inflammatory cytokines in our bodies and we don't need that. 

 

Drink a lot of water, take a probiotic, stay completely G F (scrutinize everything before you eat it) and try and relax now.  I know how hard it is to

feel lousy for so long, but it gets better, I promise.

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

I have no idea what blood tests I had. I know that IGA and EMA as well as CBC, Iron, folic acid, thyroid all of them a WITHIN THE NORMAL LIMITS. But the sentence it self gives me some wondering. As I talked to her via the phone and she mentioned few times - WITHIN THE NORMAL LIMITS.. Anyhow, in about an hours time I will get the results back and will post there.. She is referring me to psychiatrist and dermatologist for my alopecia totalis.. I have so many symptoms that just relate to celiacs so much as well as to lupus and Lyme. 

GottaSki Mentor

I have no idea what blood tests I had. I know that IGA and EMA as well as CBC, Iron, folic acid, thyroid all of them a WITHIN THE NORMAL LIMITS. But the sentence it self gives me some wondering. As I talked to her via the phone and she mentioned few times - WITHIN THE NORMAL LIMITS.. Anyhow, in about an hours time I will get the results back and will post there.. She is referring me to psychiatrist and dermatologist for my alopecia totalis.. I have so many symptoms that just relate to celiacs so much as well as to lupus and Lyme. 

 

Good Morning CaptainJack!

 

Sorry you had a frustrating doctor's appt.  Many of us have a great deal of experience with dismissive doctors. 

 

First thing -- always get written or electronic copies of all medical tests -- I have had several doctors or their staff tell me incorrect information -- one left cancer untreated for nine months until a computer caught the error -- if that computer hadn't been doing some sort of check/balance -- I might not be here -- ever since I have asked for all results in writing.

 

Once you have them, post them here...this thread is fine -- there are often normal results that high/low within "normal" range that can help lead to requesting more tests -- but most docs read normal and don't think -- what else haven't I tested for?

captainjacksparrow Newbie

OK, here are my results (they seem very good to me):

 

U/E+CREAT

urea - 6.5

sodium - 144

potassium - 4.4

creatinine - 88

 

 

LFT (Liver function test from serum)

bilirubin - 12

ALT (GPT) - 22

alkaline phosphatase - 81

gamma GT - 17 

 

GLUCOSE

4.3

 

VITAMIN B12 SERUM

523

 

ESR 

2

 

FULL BLOOD COUNT

WBC - 7.4

RBC - 5.27

haemoglobin - 15.8

PCV - 0.461

MCV - 87.5

MCH - 29.9

MCHC - 34.2

Red Cell Distribution Width - 13.1

plateletes - 177

PCV - 8.1

lymphocites - 3.20

monocytes - 0.70

neuthrophils - 3.2

eosinophils - 0.20

basophils - 0.00

 

THYROID FUNCTION 

FREE T4 - 14.3

TSH - 2.72

anti-TPO Ab: 2.72 - negative 28

tTG ANTIBODY 0.4 negative

 

It is probably anxiety and stress related. However I been like this since my early early childhood... Anti anxiety meds and antidepressants does not help..

 

What do You think about the results?

GottaSki Mentor

OK, here are my results (they seem very good to me):

 

U/E+CREAT

urea - 6.5

sodium - 144

potassium - 4.4

creatinine - 88

 

 

LFT (Liver function test from serum)

bilirubin - 12

ALT (GPT) - 22

alkaline phosphatase - 81

gamma GT - 17 

 

GLUCOSE

4.3

 

VITAMIN B12 SERUM

523

 

ESR 

2

 

FULL BLOOD COUNT

WBC - 7.4

RBC - 5.27

haemoglobin - 15.8

PCV - 0.461

MCV - 87.5

MCH - 29.9

MCHC - 34.2

Red Cell Distribution Width - 13.1

plateletes - 177

PCV - 8.1

lymphocites - 3.20

monocytes - 0.70

neuthrophils - 3.2

eosinophils - 0.20

basophils - 0.00

 

THYROID FUNCTION 

FREE T4 - 14.3

TSH - 2.72

anti-TPO Ab: 2.72 - negative 28

tTG ANTIBODY 0.4 negative

 

It is probably anxiety and stress related. However I been like this since my early early childhood... Anti anxiety meds and antidepressants does not help..

 

What do You think about the results?

 

You are right...what was run looks pretty good.  It's hard to know what they mean for sure without ranges -- not all labs use the same ranges.

 

To save you some tying -- what was the range for ALT in the liver section and the range of the tTG Antibody?

 

Not to bum you out...but you did not have sufficient celiac blood work to know anything with any degree of certainty.

 

The one tTG test you had means very little without the Total Serum IgA - if it was an IgA based test -- not clear from your list.

 

You've already removed gluten for some time -- so it is up to you when/if you want to proceed with proper celiac testing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,463
    • Most Online (within 30 mins)
      7,748

    robingfellow
    Newest Member
    robingfellow
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • robingfellow
      The Celebrity brand Luncheon Loaf (found at dollar tree, distributed by Atalanta Corporation) is gluten free according to the distributor. I emailed their customer service line for information on the ingredients, and they contacted the vendor and followed up with me that the "starch" ingredient I was worried about is corn and potato. It should be safe.
    • trents
      Welcome to the forum, @jimmydee! Celiac disease is an autoimmune disorder, meaning the consumption of gluten triggers a response by the immune system that causes the body to attack it's own tissue. Celiac disease has a genetic base that requires some kind of trigger for the genes to be turned on. We know that there are two primary genes responsible for providing the potential to develop celiac disease and we know that about 40% of the population carries one or both of these genes. However, only about 1% of the population actually develops celiac disease. So, that tells us that something more than just having the genes is necessary in order to develop celiac disease. Something must trigger those genes to wake up and produce the active disease. It's that "something" that we are struggling to understand and that is somewhat of a mystery. But there is a growing body of evidence pointing to the culprit being a disruption of the proper balance of microorganisms in the gut. Apparently, the microorganisms that live in our intestines produce chemicals that regulate the size of the openings in the mucous lining of our small bowel. A disruption in the healthy balance of this microorganic community causes an increase in the size of the openings in the mucous lining. This in turn allows protein fragments from the food we eat that are larger than normal to invade the mucous lining where they are detected as threats by the immune system. This is what is happening with gluten for those with celiac disease. The attack in the mucous lining of the small bowel by the immune system on these incompletely broken down gluten components causes inflammation and, over time, as we continue to consume gluten, it damages the mucosal lining of the small bowel which results in the loss of efficiency of nutrient absorption. This mucosal lining is made up of millions of tiny finger like projections that create an enormous surface area for the absorption of nutrients when healthy. The "wearing down" of these millions of finger-like projections due to celiac inflammation greatly reduces the surface area and thus the ability to absorb nutrients. This in turn typically results in numerous health issues that have a nutrient deficiency base. But the answer to the question of why there seems to be an epidemic of celiac disease in recent years may not be simple. It may have many facets. First, we don't know how much of this epidemic is real and how much is apparent. That is, how much of what we perceive of as a dramatic increase in the incidence of celiac disease is simply due to greater awareness and better detection methods? Celiac disease is not new. There is evidence from ancient writings that people suffered from it back then but they did not have a name for it. And it wasn't until WW2 that gluten was identified as the cause of celiac disease. Current thinking on what is causing imbalance in gut biology has put forth a number of causes including overuse of antibiotics and pesticides, environmental toxins, fluoridation of drinking water, preoccupation with hygiene and sanitation, and the western diet. https://www.celiac.com/celiac-disease/theories-on-the-growing-prevalence-of-celiac-disease-and-gluten-sensitivity-over-the-last-half-century-video-r6716/?tab=comments#comment-25345 All this to say that I doubt your UTI or the low dose aspirin had anything to do with the onset of your celiac disease. It was probably just coincidence unless the UTI was the stress trigger that activated the celiac potential genes. The onset of celiac disease an happen at any stage of life and many people report it following a period of illness. But what is interesting about your low dose aspirin theory is that aspirin is in a class of medications known as NSAIDs (Non Steroidal Anti Inflammatory Drugs). Scientific studies have shown that long term use of NSAIDs can damage the villous lining of the small bowel in the same way as celiac disease.  The other thing I wish to point out is that unless you have actual testing done for celiac disease, you can't be sure if you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms, the difference being that NCGS doesn't damage the lining of the small bowel. There is no test for NCGS, celiac disease must first be ruled out. NCGS is 10x more common than celiac disease. The antidote for both is a gluten free diet.
    • julie falco
      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
    • jimmydee
      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
    • knitty kitty
      Welcome to the forum, @Karen Chakerian, We need more information, please.   What homeopathic remedies or medications are you taking now?  Do you still have the blood pressure and other symptoms?  What is included in your diet currently?  Dairy? Oats?  Processed gluten free foods?  Vegetarian?  Other food allergies?  Do you take vitamins?  When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease.  To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer.   A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue.  Has your doctor checked you for nutritional deficiencies? Glad you're here!
×
×
  • Create New...