Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free But Still Minor Symptoms


DannyBoy90

Recommended Posts

DannyBoy90 Newbie

Hi all, 

 

This is my first time posting, so I dont know my way around the forum yet.

 

I have been back on gluten and dairy free for 2-3 days, after lasting two weeks, and my symptoms have reduced.

 

Flatulence, sorry (down 50%)

Burping (unchanged)

Frequent bowel movements (down 50%) (one or two a day, as opposed to three or four)

White coating on tongue (unchanged)

 

So overall, gluten free has helped but I still get symptoms eg gas, white tongue

 

Just wondering what this could be

 

PS: I get random bursts of gassyness, one time after I ate a mandarin, carrot and apple my stomach got really upset (strange because it's fruit and veg) and once after eating buckwheat pancakes and dark chocolate. I have also been working out a lot more than usual (weights)

 

Im trying to get rid of my white tongue for good, and the accompanying bad breath.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I am a little confused.  You have been gluten-free for 3 days? or 2 weeks?  Either way, it can take months, maybe years, to heal and get your system back to "normal" with Celiac disease.

 

Have you seen a dentist about the tongue?  That might require more than a gluten-free diet to clear up.

DannyBoy90 Newbie
 

Yes, I was gluten-free for 2 weeks, went gluten for a few days, now im back to gluten-free. 

kareng Grand Master

Yes, I was gluten-free for 2 weeks, went gluten for a few days, now im back to gluten-free.

Well... Like I said, it can take months or more for the Celiac damage to heal and everything to start working correctly. With Celiac, you must be gluten-free for life, not just 2 weeks and then take a few days off and then back at it again. Read the Newbie thread under " Coping" for some basic info to get you started.

 

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

nvsmom Community Regular

I had a couple of symptoms improve quickly, but most took months and months to improve.  I'm guessing you need more time as well.

 

Best wishes.

NoGlutenCooties Contributor

Have you been tested for Celiac?  If not, you should undergo testing before going gluten free.  You have to be consuming gluten for the tests to be accurrate and if you do have Celiac or Non-Celiac Gluten Intolerance then doing a gluten challenge after being gluten free for a significant period of time is usually painful and for many simply intolerable.

I also agree that you should see a dentist or a doctor regarding the white tongue as there are several potential causes for that.

Celiacandme Apprentice

I also wonder if you've been tested and diagnosed with Celiac's. If so, it can take quite a while for symptoms to improve! Hope the doctor/dentist can help determine if you need something else for your tongue.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,394
    • Most Online (within 30 mins)
      7,748

    vita frances
    Newest Member
    vita frances
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hope you're feeling better.   I use a combination of Thiamine, Cobalamine, and Pyridoxine (Vitamins B 1, B12, and B6) for pain relief.  Together these vitamins together have pain killing effects (analgesic).  They are water soluble, so the body can easily excrete any excess.  They are safe to take.   Hope this helps.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • trents
      I did some research on what exactly is gluten . . . what defines it.  "The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily . . . " "The types of grains that contain gluten include all species of wheat (common wheat, durum, spelt, khorasan, emmer and einkorn), and barley, rye, and some cultivars of oat" (emphasis mine) "The storage proteins in other grains, such as maize (zeins) and rice (rice protein), are sometimes called gluten, but they do not cause harmful effects in people with celiac disease." (emphasis mine) From: https://en.wikipedia.org/wiki/Gluten What I found most interesting is that some cultivars of oats contain gluten. Could this explain, in part at least, the controversy surrounding oats? I mean, depending on the source, it could indeed sometimes include gluten and cause a celiac reaction.
    • Scott Adams
      Your point about the limitations of current testing is valid, but the idea of "molecular mimicry" with rice and corn glutens is less clear. While corn contains zein, which can trigger reactions in some celiac patients, rice is generally considered safe and lacks proteins structurally similar to gluten. The term "molecular mimicry" is often overused and not well-supported in the context of all grains. While your experience with corn is noteworthy, extending this to all grains, including rice, may not be scientifically justified. Testing and research should indeed improve, but claims about all grains causing similar reactions need more evidence.
    • trents
      I think Scott speaks truth. And I think there is more to this than the prospect of her having celiac disease. If it wasn't this issue, I'm betting it would be another. 
    • Scott Adams
      So one does need a specific inherited gene in order to develop celiac disease, so in some way I suppose anyone with celiac disease could take the negative approach of blaming their parents for getting it, however, it also takes some other environmental trigger, such as a specific virus or other factor, and this part is not necessarily caused by the parents. Around 40% of people have the genes to get celiac disease, but only around 1% actually get it.  In any case, we could all go through life complaining about all sorts of different wrongs supposedly caused by our parents, however, it's probably a lot more healthy for everyone to try to deal with life in a more positive way and instead move forward. For most people it's probably far more important to maintain positive family relationships in life than it is to try to attach blame to family members for getting any disease. 
×
×
  • Create New...