Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Clobetasol Propionate Cream, Usp, 0.05%


124chicksinger

Recommended Posts

124chicksinger Apprentice

This is the prescription cream the dermatologist prescribed for my feet and hands.  After reading the insert, I'm inclined NOT to use it. The insert states that it is a super high potency corticosteroid.  It WILL raise my blood sugar, it likely will cause sugar spillage into my urine.  It states that in as little as a week can produce HPA axis suppression - adrenal gland issue - cushing disease, and more.

 

It seems the potential cure is more harmful than the rash.  He said it was a form of eczema.  I feel that I just reached a point about 3 months ago where I was putting the pieces together and coming to the conclusion that gluten was at the root of much of my symptoms and conditions.  I am eating healthier and trying to heal my body.

 

I think I will treat the symptom of this rash the way I did last time, with aloe vera gel and lotions.  I think I'd rather take my chances than add this corticosteroid into my system where it can cause other, perhaps more severe, issues.  

 

My dog has Cushings, and at 14 y.o., there is nothing we or the vet are willing to do for him - fortunately one of the worst symptoms hasn't happened to him yet (extreme thirst and urination).  

 

Anyhow, I don't want to cause my body more harm to get rid of the rash.

 

I wish I had asked what the medicine was (they emailed it direct to the pharmacy and my husband picked up 2 tubes of this today) and I know the pharmacy won't let us return it b/c of tampering laws, so we're out $20 but I just don't think I can bring myself to put this onto my skin to be absorbed into my system.

 

I'm going to call the dermatologist on Monday and ask if there is anything with less side effects.  These side effects happen quickly and at 52% of the time.  

 

Anyone use this stuff?  Am I being rational?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Nope.......I wouldn't use it either but I rarely use any Rx meds unless it really is necessary. You know what? Eczema is associated with celiac and so are many other skin rash problems. When your gut is a mess, the badness comes out your pores. I had skin problems for years and it all went away after I went gluten-free for a little bit and I used nothing topically. I think your rash problem will clear up and go away if you stay strictly gluten-free but be patient....it won't happen overnight. Skin rashes are a symptom of an underlying problem and it usually revolves around a food intolerance or allergy. Dermatologists do nothing more than symptom treat.

The aloe idea is good....it is excellent for skin problems. It may not cure the problem but it can alleviate some symptoms until you heal.

124chicksinger Apprentice

Thank you for your input, Gemini.  I already have the aloe vera gel from last time, and it was worse then.  Right now it is worst on my right foot, and definitely flared when I took 2 aspirin this week.  Within hours, it was brighter, redder, more dotted, and had moved up my ankle more and got itchy and hot.  

 

I asked could it be allergy, food problem? I mentioned I had stopped gluten 5 weeks ago.  He basically said .... eh, its a form of eczema, I'll give you a cream for it.

 

I take Synthroid and Metformin daily--I saw there is a possible Synthroid connection to DH. This does not look like DH;  I have no blisters.  I've had Rosacea flares, with pustules.  I googled if you can get Rosacea on the extremities, but it does't look like broken capillaries and veiny--it looks like petechia but the dots get raised.

 

Right now, I wish I stopped gluten at least a year ago so I could see where I am today.  

ItchyAbby Enthusiast

I was prescribed that as well, and had the same reaction as you. "I'm not using this stuff!!" Every fiber of my being said "NO".

  • 4 years later...
Evissecer Newbie

I've used this expensive-but-effective stuff for a few years now, on all parts of my body including my face. No thinning of the skin, none of the reported side effects, though I would caution to wash your hands thoroughly after applying as you do not want to ingest any quantity of clobetasol.

Point being, we're all built a little differently. Concurrent medical conditions could excaserbate the developments of some listed side effects, or they may not. Always ease into new medications, practice moderation, and cease use at the sign of any troubling developments.

  • 4 years later...
Grammy9 Rookie

I am Celiac. I was just given a small tube of clobetasol by my Dermatologist for clearing up a biopsy scar. I checked on line and even though the ingredients are gluten free, it is not certified gluten free. That tells me cross contamination. Maybe I’m too picky but I won’t use it. 

Scott Adams Grand Master

@Grammy9If the ingredients are gluten-free then the medication is likely gluten-free. Medications are not prone to cross contamination in the same way as foods. There is no GF certification for medications. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rogol72 Collaborator

A cautionary tale about supplements and medications. I recently came across a calcium supplement Kalcipos at my local pharmacy. I looked at the ingredients and it seemed to be gluten free but had Maltodextrin in it. So I emailed the manufacturer/distrubitor and asked if there was gluten and/or what the maltodextrin was derived from. Sure enough, they replied to me stating that the supplement contained gluten! If in doubt about any supplement or medication, I always ask about the ingredients.

Scott Adams Grand Master

If made in the USA maltodextrin is generally gluten-free and made from corn, but unfortunately they don't need to disclose ingredients or allergens on medications. Hopefully this will change.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,877
    • Most Online (within 30 mins)
      7,748

    filippa
    Newest Member
    filippa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Most likely cross-contamination I believe.
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...