Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Labels Say "may Contain Gluten"


Waitingindreams

Recommended Posts

Waitingindreams Enthusiast

Hi everyone!

 

Generally, when reading a food label that says "may contain traces of wheat and/or gluten", I tend to avoid it. I stick to products that specifically say 'gluten free' on the label, or that I can research easily.

 

I just received chocolate/flowers at work from my office, and though there are no actual gluten containing ingredients in the chocolate, it says 'may contain traces of gluten, tree nuts, etc". I've never heard of this brand before, and I've already tried to research it by googling but I've had no luck. The brand name is "Terravita" and it's plain chocolate.

 

Now, obviously I don't need the chocolate - but I was curious what most people do in these kind of situations. I know the 'may contain gluten, etc etc' is usually just a disclaimer to cover their asses, but am I right to assume this is probably not safe to eat? Although having a chocolate bar at my desk is tempting, I am trying to be good.  -_-

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Waitingindreams Enthusiast

I just switched chocolate bars with a co-worker. Hers was "Tiramisu" flavored, and there is no mention of gluten anywhere on the label (same brand)

kareng Grand Master

I never eat these.  They may be fine but, it is the principle of the thing!  I feel like they are too lazy to clean the machines or something.

Waitingindreams Enthusiast

That's what I figured! For the longest time I was trying to find cashews, and every time I found a bag/container of plain cashews they ALL said "May contain traces of wheat".So I just didn't eat cashews. I'd much rather be safe than sorry. For the most part, I'm going to stick to trusted brands that actually have "gluten free" printed on the label! 

 

Thanks for your feedback :)

IrishHeart Veteran

I would never eat anything labeled "may contain gluten". 

 

IMO, saying "may contain gluten" is actually an honest response. I figure it's better than not saying anything and you find out later. ^_^

 

There are ways to eat cashews without worrying about "traces of wheat" hon. Most nut companies use no wheat on their production lines.

You do not have to give them up for life. 

 

here is just one example

 

Open Original Shared Link

kareng Grand Master

I always get Plantars.   Yum....

NoGlutenCooties Contributor

I don't touch anything that says "may contain gluten" or "may contain wheat".  They're telling you up front that there is a cross-contamination risk.  I can respect that.  And eat something else.

 

As far as cashews... Planters just warns against traces of tree nuts and peanuts.  I've never had an issue with their cashews or anything else.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kirstenB Newbie

Personally, if it was mine, I would try a little and see how I felt. There is a lot of chocolate companies that do not say gluten free but are.

LauraTX Rising Star

I will personally eat from shared facilities, but will not eat from shared equipment unless it is from a trusted company like ghirardelli.  If the label blatantly says "may contain" I will pass.  I think you got a good deal with your chocolate bar trade!  I wouldn't recommend trying a little bit to see how you felt, especially if you are at work and don't want to have bathroom Armageddon there.  All depends on your sensitivity.

RMJ Mentor

I will personally eat from shared facilities, but will not eat from shared equipment unless it is from a trusted company like ghirardelli.  If the label blatantly says "may contain" I will pass.  

Just wondering why you feel Ghirardelli is ok? The label on their cocoa (my favorite) changed recently to "may contain wheat." I contacted them and they said it is now made by a "co-manufacturer" on shared equipment. I stopped using it and have been trying to convince myself that I like Hershey's cocoa.

Waitingindreams Enthusiast

Wow, thanks for the responses everyone! I agree that it's just not worth it to risk it. I chose the plain chocolate bar, thinking it'd be the least risky out of all of the flavors - but when I saw 'may contain gluten' it made me wary. I think it's interesting that the tiramisu flavor only said 'may contain traces of peanuts or tree nuts', but it worked out! I got to have chocolate and I didn't get sick. :)

 

Planters is such a well known brand, I don't know why I haven't come across their cashews yet. I was looking at the bags in the produce/organic section (thinking they'd be safer) and those all said they may contain traces of wheat, same with all of the store brands I was looking at (Stop & Shop, IGA, Walgreens, etc) Maybe they just don't sell the Planters cashews where I was looking. I think they mostly had mixes. I could try Walmart. 

 

I used to eat peanut butter like it was my job, and then last June (before my celiac diagnosis) I had a bunch of allergy tests done and I found out I was "allergic" to peanuts. I ate extra chunky peanut butter the day they told me I was allergic to peanuts. Heh. So, I've stayed away from peanuts and started eating almond and/or sunbutter...and I started to look for cashews to have as a  snack other than peanuts, then I couldn't find any that didn't have the "may contain wheat" warning. -_- I am planning on getting re-tested for the peanut allergy soon. My boyfriend has been itching to go to Five Guys (they have gluten free fries, but they use peanut oil) with me, but I played it cautious in case I actually am allergic to peanuts. 

IrishHeart Veteran

Then don't eat those! The can states they are made with peanut oil.

 

Allergy tests are notoriously incorrect. Are you sure it's a peanut allergy? 

 

Talk to StephanieL about this. Shoot her a PM . She has extensive knowledge about allergy testing. 

Waitingindreams Enthusiast

Nope! Haha. I've had pretty bad allergies all of my life (severe pollen allergies, etc) I never carried an epi pen or had an inhaler or anything, I just took my Allegra and that was just fine. Then last year they were absolutely terrible - my Allegra stopped being effective at all. So, I figured it was finally time to see an allergist. He did the prick test on my arms and they swelled up, it was terrible but nothing but what i expected. I had really bad seb. dermatitis on my scalp/ears, so I assumed (hoped?) it was an allergy. He sent me for some food allergy tests, peanuts being one of them. I tested positive for peanuts, then a few weeks later (after being very sick for a while) my primary care doctor gave me a blood test for celiac disease because I told him that everything I ate was just going right through me. It was like I had constant food poisoning.

 

My doctor told me that false positive are common with celiac disease, so I do plan on getting re-tested for peanuts soon. It certainly would make my life easier if I didn't need to worry about that, too! And so far this season my allergies have calmed down significantly. Last year was brutal, but I think everything was just coming to a head. I feel much better this year. 

 

I might send her a message. I really don't think it's a true peanut allergy, but of course I wasn't going to risk it. 

LauraTX Rising Star

Just wondering why you feel Ghirardelli is ok? The label on their cocoa (my favorite) changed recently to "may contain wheat." I contacted them and they said it is now made by a "co-manufacturer" on shared equipment. I stopped using it and have been trying to convince myself that I like Hershey's cocoa.

 

I was referring to the OP asking about chocolate bars.  The only product I buy of theirs is the filled squares... cocoa I haven't looked at since it is totally different and I buy the nestle tollhouse cocoa, and I also haven't bought any in a good while since I sparsely use it.  But a recent change in the labeling is a good reason to practice reading every label, every time.  Ever try scharffen berger chocolate or cocoa?  It is pricey but their stuff is sooooo good.  gluten-free and says so on labels to take out guesswork.

RMJ Mentor

I was referring to the OP asking about chocolate bars.  The only product I buy of theirs is the filled squares... cocoa I haven't looked at since it is totally different and I buy the nestle tollhouse cocoa, and I also haven't bought any in a good while since I sparsely use it.  But a recent change in the labeling is a good reason to practice reading every label, every time.  Ever try scharffen berger chocolate or cocoa?  It is pricey but their stuff is sooooo good.  gluten-free and says so on labels to take out guesswork.

In case anyone is interested, I also asked Nestle about their Tollhouse cocoa:

"Nestlé® Toll House® Baking Cocoa - Made in the same facility as products that contain gluten ingredients."

I have tried Scharffen Berger cocoa - good but pricey.

MGR Apprentice

I am new to this gluten-free life... And on some occasions I have eaten products with the " May contain traces of" and felt ill afterwards... I have to add I am extremely sensitive... No, I have learned to avoid these foods.

BlessedMommy Rising Star

I always get Plantars.   Yum....

Thanks for the recommendation! I was looking for snacks for a wedding reception that I was going to, and I remembered that, so I picked up a container of Planter's mixed nuts. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
×
×
  • Create New...